Did i have AWS as a child?

[adi]

Hello all ! Having stumbled across the term today , and its symptoms... I had that moment of 'wow, that's what I had'.

I got no visual disturbances, but what I did have was the following, mostly at nights, sometimes semi awake, sometimes fully awake, and a lot when I was ill.

- Arms, hands, and fingers feeling very long.. sometimes my hand would feel normal size, but at the end of a very long thin arm of perhaps 10-20ft. Sometimes, it was my fingers extending out for my hand.

- A feeling of the bed disappearing below me when lying down, in a kind of white mineshaft, I was suspended at the top.

All times, it was scary.

Of course they are just memories now, and I thought they were a type of recurring dream.. but they were very real. I guess I was between 5-10 years of age. I once got it very bad when I had glandular fever at the age of about 14 though.

Does this sound like AWS?

I'm  not sure if this is related, but even now, when I relax and look at the grass.. it physically moves around like the surface of water. This only happens if I kinda stare a bit though.

:)

[Krystal_sloth]

This sounds like aiw 

symptoms are spot on to what i used to have

have u ever experienced the same feelings as an adult when you are run down or ill

i always thought i grew out of these untill it started again in my early 20s

[adi]

Hi, no I've not really had it as an adult. There have been a few occasions where it has felt like it *may* be coming on, but this quickly goes and is nowhere near as intense as when I was young.

[Diede van Dijk]

I was wondering, do you know about when your symptoms stopped?
I've read a lot of stories of people who said that they'd 'grown out of it'.


Op maandag 20 juli 2015 12:31:45 UTC+2 schreef adi:

[Darius Helm]

Yeah, for me it was also growing out of it after childhood. Around age 10. I still get effects, but not at the same level. Now it’s entertaining. Back then it was downright scary.

Sorry. Wish I could offer better insight.

Darius

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Darius Helm
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[Diede van Dijk]

Well, I've got AIWS too. I can't remember when I first had the symptoms, but I know I've had it since I was little (probably even before I turned 6).
Now I'm 18 and I think it might be getting a bit worse. Eventhough I know what I have and I accept it, it still bothers me and I'm still hoping I'll grow out of it like many, many others.
Maybe the main reason I asked this is because I'm uncertain about my future and want to have a normal life.
Besides all that, thanks for your answer.

Op vrijdag 1 april 2016 16:43:23 UTC+2 schreef Orod Bavar:

Yeah, for me it was also growing out of it after childhood. Around age 10. I still get effects, but not at the same level. Now it’s entertaining. Back then it was downright scary.

Sorry. Wish I could offer better insight.

Darius

On Apr 1, 2016, at 10:29 AM, Diede van Dijk <died...@gmail.com> wrote:

I was wondering, do you know about when your symptoms stopped?
I've read a lot of stories of people who said that they'd 'grown out of it'.


Op maandag 20 juli 2015 12:31:45 UTC+2 schreef adi:

Hello all ! Having stumbled across the term today , and its symptoms... I had that moment of 'wow, that's what I had'.

I got no visual disturbances, but what I did have was the following, mostly at nights, sometimes semi awake, sometimes fully awake, and a lot when I was ill.

- Arms, hands, and fingers feeling very long.. sometimes my hand would feel normal size, but at the end of a very long thin arm of perhaps 10-20ft. Sometimes, it was my fingers extending out for my hand.

- A feeling of the bed disappearing below me when lying down, in a kind of white mineshaft, I was suspended at the top.

All times, it was scary.

Of course they are just memories now, and I thought they were a type of recurring dream.. but they were very real. I guess I was between 5-10 years of age. I once got it very bad when I had glandular fever at the age of about 14 though.

Does this sound like AWS?

I'm  not sure if this is related, but even now, when I relax and look at the grass.. it physically moves around like the surface of water. This only happens if I kinda stare a bit though.

:)

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[jjwy...@gmail.com]

Yes people grow out of it.
I noticed it just stopped happening!
Then all of a sudden it came back.
When I spoke to nuro as I had some very scary events.
He told me most kids grow out of it and attacks normally only last 5 minutes.
He said when it goes for longer and into adult hood it's rarer and usually related to exacerbating circumstances.

[Linda Greenwell]

I also had it as a child - I'm old so no one knew what I was talking about :)

It was kind of scary when no one understood or even believed me

Then it did go away

I have had brief visits with it later. About a year ago. But knowing what it is makes the who brief episode "entertaining" and not scary

i do have very brief  and random episodes of these perceptual abnormalities - almost feels like dizziness but with the world getting far away and then large - lol There seems to be no reason for these brief recurrences ( not stress or anxiety) - just random

[Johann Wyrsch]

Hello,

Yes my small episodes don't have any relating factors. They just come at random and I also have no fear. even as a child not knowing what they were I wasn't scared as it was normal to me.

However, due to stress in adult hood I  have had them last longer and scary episodes. They start like regular alice but then carry on into something horrible. Recently I just saw a new nuro who said the long lasting scary ones are more migraines mixing with the Alice.

Its good to meet people with similar storys as it helps make you feel more normal.

Recently I have been prescribed beta blokers to help reduce them.

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