Widespread Support for critical needed diabetes / diabetic name changes

[Pro-Humanist FREELOVER]

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Everyone who cares about knowing the
actual specific High Glucose Condition
being described cares about that fact
that it's impossible to know the spe-
cific condition when the diabetes and
diabetic words are used, as they all-
too-often are, without any clarifier.

Some examples from folks who care:

https://www.change.org/p/revise-names-of-type-1-2-diabetes-to-reflect-the-nature-of-each-disease?utm_campaign=action_box&utm_medium=twitter&utm_source=share_petition

https://www.trainedbyinsulin.com/blog/petition-for-diabetes-name-change

https://www.activism.com/en_AU/petition/changing-the-name-of-type-1-diabetes/43249

https://www.change.org/p/uk-goverment-type-1-diabetes-name-change-ed845843-6513-47de-b41d-d0ca7274f01b

http://www.latimes.com/health/ct-met-diabetes-rift-20101122-story.html

Excerpt with support for diabetes
and diabetic name changes that I
posted in MHD on 11/7/17:
https://groups.google.com/d/msg/misc.health.diabetes/0J5CqdbTyko/M5W6ySnSAwAJ

...

Article with some examples of the many
people who support the types of name
changes I've been promoting since 2010.

The preponderance of the media which
promotes the idea that only -2- types
of diabetes exist (sometimes mentioning
a 3rd type, rarely mentioning any other ...

... type), as well as the impact of
using the diabetes word as if it were
a single disease rather than over 80
disparate specific types, you can see
the result within many of the comments
below.

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April 10, 2013

Rename Diabetes?
https://www.diabetesselfmanagement.com/blog/rename-diabetes/
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The post I made in response to that article
on October 23, 2010:

In 2010, I created a detailed proposition
for changing all diabetes names -and- the
confusing reactive hypoglycemia name:

Diabetes Bubble / Diabetes Bubble Burst
(superb) http://prohuman.net/diabetesbubblediabetesbubbleburst.htm

Name changes for old outdated diabetes
and diabetic words are desperately needed
to eliminate the confusion and misleading
that transpires when those words are used
without clarifiers, which often happens.

From reviewing the 91 comments made prior
to today (October 23, 2017), it appears
that about 45 of the 91 posters might be
open to the name changes I created in 2010.

I suggest that folks visit that web article
to understand the comprehensive nature of
the name changes, which total (the diabetes
name changes and the reactive hypoglycemia
name changes) ...

... close to 100 new specific types of
glucose anomalies (6 apply to the mostly
non-glucose anomaly Insipidus).

...

Budhita - 2 months ago

This inaccuracy keeps T1D from getting the
interest and funding needed for a cure by
being mixed up with a metabolic disorder.

...

David Bolt - 4 years ago

... Good Luck with this petition, It is
long overdue.

...

Joanne Bassett - 5 years ago

I agree the names need to be changed. ...
If different names for Type 1 & Type 2
diabetes can help people understand it,
then by all means, change the names!

...

Larry - 5 years ago

The two conditions have similar symptoms
but they are not the same at all. They
should have different names. Medical
science has allowed us to learn the
difference.

Having a cold and having hay fever have
similar symptoms but they have different
names. Type 1 and Type 2 names should be
updated.

...

Joe - 5 years ago

A lot of folks seem more worried about
what other people think than how it
affects their own disease management.

These kind of comments almost always
come from those affected by type 1, or
their loved ones.

They seem to be extremely concerned
someone might confuse their disease
with the "other" diabetes, or that
type 2 might be taking away attention
from their affliction.

There is also the slightest indication
that they consider type 2 to be less
"honorable" than type 1. For their
sake I would be fine with renaming
both diseases.

...

jon T. Wilkins - 5 years ago

I have had Type 1 for 40 years. Mostly
I find that a name change would help
when writing articles about diabetes.

many times one starts reading but learns
they are talking about type 2. It would
be helpful to know which one as there
are many differences in the kinds of
diabetes.

...

Dee Fones - 5 years ago

My opinion is to find a new name! Maybe
at the same time some marketing guru
could help with advertising to change
misconceptions and educate people.

...

J. C. - 5 years ago

Yes, absolutely change the names.

...

Both my parents, two of my grandparents,
my only sibling, and several cousins
have been type 2 -- more than 10 people
in my immediate family. No one in my
family was type 1.

Although I know MANY type 2 diabetics,
I know only one type 1, a classmate of
my son. I think that ratio is truly
representative of the incidence of
type 1 versus type 2.

Everyone deserves help and to have
their medical condition researched,
but because of the differences, the
conditions need separate research,
and separate fundraising for research
for each type, and that can happen
only if the different diseases are
clear.

...

Lisa Fown - 5 years ago

I am a mother of two twin girls that
both got type 1 when one was 13 months
old and the other twin was 15 months
old they are 23 years old now.

I have been saying for 22 years the
names need to and must be changed there
is too much confusion.

There are too many commercials that
advertise food for type 2 to lose
weight and they very rarely say just
for type 2 so the majority of the
population when they hear Diabetes
just know about type 2.

So in a lot of peoples mind if you
have diabetes all have do is eat
right and exercise and the diabetes
will go away. I don't know how many
times I have heard well they can get
rid of the diabetes or grow out of
it because they are misinformed.

I took one of my daughters to the
ER when they were toddlers and the
"nurse" checking us in ask "she will
grow out of it right?" there is a
very BIG difference in the two
diseases.

Everyone that ask me I always tell
them that they are two separate
diseases and Type 1 is much more
severe. My daughters could die in
the middle of the night, my daughters
have had thousands of pokes during
their life.

they have to watch when they are
sick, if they exercise too much,
if they have too much stress, if
they eat something and get the carb
count wrong etc

everything can effect their blood
sugars. Most people have no idea
what a type 1 diabetic goes through
in a day.

I always have been an advocate for
my girls - one of my daughters is
in college away from home so I found
a way to get her a diabetic dog to
be with her at all time.

I obtained information on sensors
that help let you know when your
blood sugars are going up and down
and they both have sensors along
with their pumps now.

I also called Columbus Ohio when I
read an article about the islet cell
study they were doing and talk to
one of the head people to see if my
girls would qualify to get the islet
cells that was supposed to get rid
of the diabetes.

what i found out that only people who
have had transplants such as a kidney
transplants were eligible because you
had to be on the medications for trans-
plant patients so body would not reject
the cells and the cost was around $1,000
a month and insurance was not covering
it.

so as you see i worry about my daughters
everyday and would do anything to help
make their lives easier.

I had a conversation just last week with
my daughter that we need get the name
"diabetes" changed also we were trying
to figure out the best way to do it.

to find out someone else is already doing
it is just amazing! This name has to be
changed because it will show that they
are different diseases and Type 1 doesn't
have anything to do with amount you eat
or dieting.

i am willing to help in any way to help
get this done. what my girls go through
on a daily basis. I have found my daughters
too many times with a low blood sugar were
they are convulsing and i have had to give
them a glucagon shot and they have been in
the hospital more times then I can count
especially when they were toddlers.

A name change would give people with Type 1
diabetes such a sense of satisfaction to
know people would know what disease they
have and stop confusing their disease and
saying just start eating right and you will
get rid of your disease

some people assume that someone with Type 1
brought their disease on themselves which
can not be further from the truth!!!

...

Di A. Beet Tees - 5 years ago

YES, two distinct names will save lives as
the dietary recommendations and treatments
for type I versus type 2 are different.

Further, the medical community is confused
by treatments based on the study of one
that is applied to two, and vice versa.

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Kris - 5 years ago

I believe a name change would be very
helpful. I've been a Type 1 (originally
called Juvenile) for the last 40 years.

As more and more people were diagnosed
with Type 2, I found myself explaining
to more and more lay people why I couldn't
just get by with a better diet and some
exercise.

Worse than that, however, lately I've
found actual medical personnel in walk-in
clinics that don't seem to know the dif-
ference!!

No, they aren't endocrinologists but
I would expect that a basic medical
education would explain the difference.
Apparently it doesn't and/or they don't
remember which is which.

In either case, something needs to be
done to help both lay and professional
people keep them straight!!

...

Karen - 5 years ago

Oh my heavens...YES - there is a medical
need to differentiate between Type 1 and
Type 2 diabetes. I have thought about this
for many years. I have 5 children, 3 of
which have Type 1 diabetes. I, myself,
have Type 1 diabetes as well.

There is absolutely NO comparison between
these two diseases. Having lived with
another person who has Type 2 diabetes,
we may as well be on opposite sides of
the planet.

...

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Pro-Humanist FREELOVER, endeavoring to
fix all of the issues mentioned above,
and more, as well as promoting new
clarifying names for over 80 disparate
specific types of High Glucose Conditions
and 4 specific types of a non-glucose ...

... anomaly Insipidus (with Insipidus
also having 2 specific types with high
glucose), as well as 21 specific types
of hypoglycemia uncaused by any treat-
ments for high glucose (Hut) at the
best diabetes name change article on ...

... the web (Diabetes Bubble / Diabetes
Bubble Burst Burst) http://prohuman.net/diabetesbubblediabetesbubbleburst.htm

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