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Photosensitivity proven once and for all

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Sharon Perloff

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Jan 27, 2003, 10:25:53 PM1/27/03
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I spent all last semester sick as a dog, and searching long and hard for
a doctor to take my complaints seriously. The one thing that many docs
told me was not true was my photosensitivity. Every day, after I'd come
home from sitting under those danged flourescent lights, my face would
be bright red, and on fire, like I had a sunburn or windburn. But I
thought, maybe they're right, and maybe it's my fevers, or maybe I'm
just flushed.

Well, it has gone away while off from school. Never happened the whole
time I was off from school. Today was my first day back, and I'm
noticing while I'm sitting eating dinner, my face feels on fire! So I
mention this to hubby, and he says that my face is beet red. So I guess
it is true afterall, and I have yet another symptom. Oh well.

Tomorrow I will pick up sunblock, and hopefully that will work for me.

-Sharon

--
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~Integrity~

Integrity is one of the several paths.

It distinguishes itself from the others
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and the only one upon which you will never
get lost.
-M.H. McKee

Allison

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Jan 28, 2003, 1:32:03 AM1/28/03
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you know I have noticed that myself.

I thought it was the meds making me break out, but I think it might be the
light.....hmmmmm I will have to investigate that for myself.

Like you said, just another thing to add to the long list of shit to deal
with.

Allison

"Sharon Perloff" <nowa...@hotmail.com> wrote in message
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J

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Jan 28, 2003, 3:48:03 AM1/28/03
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Sharon,
Looked that up in Medline. Now I understand your rheumys thinking and about
the Enada.
Maybe he's trying a process of elimination?
http://www.nlm.nih.gov/medlineplus/ency/article/001201.htm

The only other one in Medline under Photosensitivity (other than meds) is
http://www.irondisorders.org/disorders/pct/index.htm
http://search.nlm.nih.gov/medlineplus/query?DISAMBIGUATION=true&FUNCTION=search&PARAMETER=photosensitivity&SHOWTOPICS=0&x=18&y=14

Not sure it's proven (once and for all) since so many other factors are/can
be involved by "going back to school".
Would have to have a period off (again) and expose yourself at home or a
doc's office, I would think. (to exclude other factors)
J

Sharon

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Jan 28, 2003, 4:30:42 PM1/28/03
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J wrote:
> Sharon,
> Looked that up in Medline. Now I understand your rheumys thinking and about
> the Enada.
> Maybe he's trying a process of elimination?
> http://www.nlm.nih.gov/medlineplus/ency/article/001201.htm
>
> The only other one in Medline under Photosensitivity (other than meds) is
> http://www.irondisorders.org/disorders/pct/index.htm
> http://search.nlm.nih.gov/medlineplus/query?DISAMBIGUATION=true&FUNCTION=search&PARAMETER=photosensitivity&SHOWTOPICS=0&x=18&y=14
>
> Not sure it's proven (once and for all) since so many other factors are/can
> be involved by "going back to school".
> Would have to have a period off (again) and expose yourself at home or a
> doc's office, I would think. (to exclude other factors)
> J
<snip>

Thanks for the link J. I don't remember him mentioning this one, and
I've never heard of it, but it does consist of three of my symptoms, and
maybe he was trying to rule it out.

Today the light got me again. I am sooo red in the face, and I have
broken out in hives today. The one on my neck disappeared after the
professor turned the lights off for an hour, so that points in the
photosensitive direction.

I am just so tired, I am going to call my RD tomorrow (I have a day off
tomorrow) and tell him I need something now. I can't wait, because at
this rate I will not make it through this semester. I already had to
miss my chem lecture today because my hip is on fire, and I can't walk
across campus to my class, and my face like I said broke out in hives,
as did my neck. I just want to go home, and am waiting for hubby to
finish with his boss. Then I can at least go in his office, and in
about two hours we will be on our way home.

Thanks again J. :)

-Sharon

fran

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Jan 29, 2003, 8:13:40 PM1/29/03
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Sharon Perloff <nowa...@hotmail.com> wrote in message news:<b14t5c$v6dp2$2...@ID-163463.news.dfncis.de>...
> I spent all last semester sick as a dog, and searching long and hard for
> a doctor to take my complaints seriously. The one thing that many docs
> told me was not true was my photosensitivity. Every day, after I'd come
> home from sitting under those danged flourescent lights, my face would
> be bright red, and on fire, like I had a sunburn or windburn. But I
> thought, maybe they're right, and maybe it's my fevers, or maybe I'm
> just flushed.
>
> Well, it has gone away while off from school. Never happened the whole
> time I was off from school. Today was my first day back, and I'm
> noticing while I'm sitting eating dinner, my face feels on fire! So I
> mention this to hubby, and he says that my face is beet red. So I guess
> it is true afterall, and I have yet another symptom. Oh well.
>
> Tomorrow I will pick up sunblock, and hopefully that will work for me.
>
> -Sharon
>
>I don'tknow if your eyes are affected, but try pink lenses.
Seriously go to lens crafters or any other low cost chain and pick up
a pair of them. My prescription lenses that I wear to work are pink
because of the florescents and they are very effective. One hospital
I worked for actually switched to "blue" lights which are very easy on
the eyes, but most work places go for the bottom line and use the
harsher "white" florescents which are very difficult if you are at all
photosensitive. Give them a try.--fran

Sharon Perloff

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Jan 29, 2003, 8:54:32 PM1/29/03
to
fran wrote:
<snip>

>>I don'tknow if your eyes are affected, but try pink lenses.
>
> Seriously go to lens crafters or any other low cost chain and pick up
> a pair of them. My prescription lenses that I wear to work are pink
> because of the florescents and they are very effective. One hospital
> I worked for actually switched to "blue" lights which are very easy on
> the eyes, but most work places go for the bottom line and use the
> harsher "white" florescents which are very difficult if you are at all
> photosensitive. Give them a try.--fran

Wow, cool! Thanks Fran. My eyes are very photosensitive when it comes
to being outside, but inside I'm ok. Maybe a pink pair of sunglasses
will be another purchase for me.

Jeannette

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Jan 30, 2003, 12:45:07 AM1/30/03
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My face gets that way from the computer screen.

Nettie

"fran" <independ...@yahoo.com> wrote in message
news:7914f719.03012...@posting.google.com...

fran

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Jan 30, 2003, 11:54:13 AM1/30/03
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Sharon Perloff <nowa...@hotmail.com> wrote in message news:<b1a0hv$10k21e$2...@ID-163463.news.dfncis.de>...

> fran wrote:
> <snip>
> >>I don'tknow if your eyes are affected, but try pink lenses.
> >
> > Seriously go to lens crafters or any other low cost chain and pick up
> > a pair of them. My prescription lenses that I wear to work are pink
> > because of the florescents and they are very effective. One hospital
> > I worked for actually switched to "blue" lights which are very easy on
> > the eyes, but most work places go for the bottom line and use the
> > harsher "white" florescents which are very difficult if you are at all
> > photosensitive. Give them a try.--fran
>
> Wow, cool! Thanks Fran. My eyes are very photosensitive when it comes
> to being outside, but inside I'm ok. Maybe a pink pair of sunglasses
> will be another purchase for me.
>
> -Sharon
> Don't waste your money on them for outdoor use, that's why I have a pair strictly for the florescents at work, they don't do a thing for sun light. Just those miserable florescents.--fran
> --
>
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