New here - questions, questions ...
Steve
I'm wondering whether it is a possibility I have FMS.
I have chronic neck pain, and I have pain/tenderness througout my
shoulders, upper back and in my rib cage.
However, I don't have chronic pain in my lower body.
I have terrible problems sleeping, and missing even an hour or two of
sleep makes me feel horrible the next day. I get a strong and
distinct anxiety reaction that gets worse as the day goes on after
missing sleep. Pain does get worse with less sleep also (I've always
assumed that was due to increased tension but I don't know).
I don't get migraines. Otoh, I am sensitive to light and have
terrible problems under fluorescent lights and/or on computer screens
for prolonged periods.
I have tenderness in most of the 18 points.
I know nobody can diagnose here, but would you recommend I look into
fybromyalgia as a possibility?
Thanks very much guys,
Steve
JoLyne
sure it wasn't something else.
Good Luck!!!!!!!
Jobie
http://www.wcnet.org/~bjgraham/
"Steve" <sth...@iprimus.com.au> wrote in message news:9e721231.02060...@posting.google.com...
diversions
I just wanted to tell you I went to your website and I think it's **GREAT**!
I especially like Jobie's Games Place.
http://www.wcnet.org/~bjgraham/games.htm Fabulous! Wonderful!
Stupendous! Can't think of any more superlatives at the moment, but if I
could, they'd apply too. Great way to pass some time on a rainy day when I
have no customers. ;o)
Congratulations on a job well done.
Take GOOD Care,
Jane
"JoLyne" <nos...@ironless.com> wrote in message
news:ug98nrf...@corp.supernews.com...
JoLyne
((((((((((((((((((Jane)))))))))))))))))))))
Jobie
http://www.wcnet.org/~bjgraham/
"diversions" <dive...@telusplanet.net> wrote in message news:eS2N8.9428$vo2.2...@news2.telusplanet.net...
JoLyne
grandma!
(((((((Hugs to both of you)))))))
Jobie
http://www.wcnet.org/~bjgraham/
"diversions" <dive...@telusplanet.net> wrote in message news:eS2N8.9428$vo2.2...@news2.telusplanet.net...
GottaMoveIt
to your own....
When my fms was diagnosed about a decade ago, 'all' I had was chronic neck
pain, upper body aches, and tenderness in most of the 18 points. No
migraines. No reactions to changes in weather. Tired but not exhausted.
Still able to work full time, raise kids, volunteer, workout, and basically
have a very physically and mentally active life.
Over the years, pain and other symptoms have moved around, changed and
increased until I now describe myself as 'impaired', and I cringe when I say
this, but the word 'disabled' fits now. I have my own theories as to why the
presenting symptoms wax and wane and change as fms progresses from the time
of diagnosis, but tender points still remain the constant 'telltale' sign
for everyone.
However, looking back, I now see that doctors ignorance and/or apathy, HMO
influences, and my brain fog largely contributed to my deterioration. I
found for myself, that in areas where my body was vulnerable, either due to
accidents, surgery, arthritis or stress, the fm hit the hardest. And because
of the fatigue and fibro-fog, I was not able to keep on top of many of the
management strategies that do work.
I still am fiercely determined however, to create my own 'rehabilitation'
program and make significant changes in my functioning and quality of life.
In my opinion, whets important to remember:
--as the others posted, everyone's experience with the symptoms of fms are
individual.
--and there ARE many, many ways to manage and/or minimize many of those
symptoms
Sorry I strayed from your original simple question. I guess I just get
carried away, hoping that people getting diagnosed and treated now may have
it just a bit easier than I did.
I wish you well.
Steve <sth...@iprimus.com.au> wrote in message
news:9e721231.02060...@posting.google.com...
diversions
> Gee thanks. I needed this note today more than you can know.
> ((((((((((((((((((Jane)))))))))))))))))))))
> Jobie
> http://www.wcnet.org/~bjgraham/
You're more than welcome, Jobie. You're worth every word. Sorry you're
having a crappy day, and I hope it improves soon. I'm not doin' so hot
today either. I swear the weather in this province is aimin' at giving me a
nervous breakdown, let alone a flare. The snow's barely melted and now it's
been POURING rain here for the past four days. My house is leaking, my
store is leaking, and I think my brains are leaking by now!
Anyway, Jobie, just know that everything you do here is noticed and
appreciated. :o)
TGC,
Jane
Mark London
->I'm wondering whether it is a possibility I have FMS.
->I have chronic neck pain, and I have pain/tenderness througout my
->shoulders, upper back and in my rib cage.
->I have terrible problems sleeping, and missing even an hour or two of
->sleep makes me feel horrible the next day. I get a strong and
->distinct anxiety reaction that gets worse as the day goes on after
->missing sleep. Pain does get worse with less sleep also (I've always
->assumed that was due to increased tension but I don't know).
->I don't get migraines. Otoh, I am sensitive to light and have
->terrible problems under fluorescent lights and/or on computer screens
->for prolonged periods.
->I know nobody can diagnose here, but would you recommend I look into
->fybromyalgia as a possibility?
The obvious answer is yes. I had all the same symptoms. Sleep is a main
component in many people. Lack of sleep causes disturbs neurochemicals
levels, affecting both neurological and immune functions. You can become
hypoglycemic. Your cortisol levels rise which decreases the immune system.
Cortisol levels also increase magnesium excretion. Lack of magnesium causes
all your neurons to be hypersensitive. That is possibly the reason for
sensitivity to light. If you've seen movies with scenes of people with
hangovers (or experienced them), they always highlight the fact that the
people can't stand bright light. The reason for this (and other hangover
effects) is lack of magnesium, as alcohol causes extra excretion of magnesium.
For more information about magnesium, see:
http://www.healthy.net/asp/templates/article.asp?PageType=Article&ID=541
Magnesium is just one small aspect of problems associated with fibromyalgia,
but it's one thing you can do right away to help your problems. You will
likely need supplements or meds to help with your sleep, something your doctor
will hopefully help you with (if you can't see a doctor for a while, you can
try taking benadryl for sleep, as it's otc).
Mark London
M...@PSFC.MIT.EDU
rinehart
on , like Jobie said I think if I was you I would get it looked into.
Melissa
Nanny
organization. She is only 8, but super organized. We about drive her Mom
(our daughter) nuts! It was her idea, however, to sign your guestbook, and
she dictated it for me to type. Hugs, Nannynews:ug9fn1m...@corp.supernews.com...
JoLyne
Jobie
http://www.wcnet.org/~bjgraham/
"Nanny" <dorl...@tds.net> wrote in message news:YCbN8.14214$fH5.15...@kent.svc.tds.net...
Steve
experiences, yes. I really appreciate you relating yours, and I
suspect you gave the simplest answer feasible.
My experience sounds a lot like yours in many ways. I've recently
suffered from anaemia, and my CNS seems to have become sensitive in
the extreme. I am now most definitely impaired (and I know what you
mean about cringing).
All of my problems have been exacerbated hugely subsequent to anaemia,
so your comments re: surgery, illness etc compare with my experience.
Though I guess many problems will arise secondary to a serious health
condition.
I'm really interested to know what you (and others) mean by fibro-fog.
Could you possibly describe your experience of this? For a long
time, I have said to my partner that I get foggy by the end of the day
at work. It seems to be triggered by work conditions. I never knew
what, but now it seems almost certainly the combination of intense
fluorescent light and looking at a computer monitor (to my surprise, I
had thought of all sorts of possibilities but never this).
Now, worse than a fog, at work my body virtually feels as though it is
in pain. It’s like my CNS is totally overloaded in terms of
sensory, visual, and auditory faculties. It accumulates until I
eventually feel totally zombied out, so on edge it feels quite
literally like pain, and so anxious I regularly come close to panic.
I don’t, however, suffer from fatigue outside that due to the
strain on my CNS (seemingly). I play tennis and recover reasonably
well, other than having more muscle soreness than I would expect. I
did have a period of a few months where I became extremely fatigued
after exercise, but that was 8 years ago and it has no recurred
(fingers crossed!!).
Thanks for alerting me to the fact that everyone’s experience is
individual and for the other tips.
Steve
"GottaMoveIt" <ca...@prodigy.net> wrote in message news:<qb3N8.13017$jd7.55...@newssvr16.news.prodigy.com>...
Steve
I read the article, and I am astounded at some of the quite strange
symptoms that are listed and I experience. I am very skeptical in
general, but it seems beyond coincidence I'd have so many of the
listed symptoms. I really hope it all stands up, this could save me
from going over the edge!! We'll see.
Has magnesium helped you?
Just some of the things listed I have:
twitches, soreness, neck pain, jaw joint problems, 'peculiar sensation
that I can't take a deep breath' (this one has been going on for weeks
with no explanation), difficulty swalling, lump in the throat (this
one is weird and no-one has had any clue why), insomnia, anxiety,
restlessness, panic attacks, heart 'flutters', carbo craving,
photophobia, loud noise sensitivity (and a humming/trembling in the
ear which seems to apply also).
That's a big list. I have a pretty good diet, but I can improve it
further and then add magnesium.
Man, thanks so much, I am really hopeful. Right now, work is hell
because of the light (and maybe noise too).
The other thing is that I have had erosions in the stomach, which may
well have affected iron absorption. That or loss of blood. Any ideas
on this? I'll check it out anyhow.
Thanks!!!
Steve
ps: how much has magnesium helped you, and what else did you do in the
way of supplements if you don't mind the questions.
Mark London
->symptoms that are listed and I experience. I am very skeptical in
->general, but it seems beyond coincidence I'd have so many of the
->listed symptoms. I really hope it all stands up, this could save me
->from going over the edge!! We'll see.
->Has magnesium helped you?
Definitely. A long time ago I used to have eye twitches which I thought were
due to computer use and/or flourescent lights (I even looked into "natural"
flourescent light bulbs). Eventually I started having facial twitches
elsewhere. When someone suggested I try magnesium, it helped almost
immediately, and when I got up to a high enough dose, all the twitches stopped
completely. Since I've been taking about 2xRDA (800mg), I also notice I have
far less muscles problems, i.e. haven't had a muscle pull in years, something
which used to be common before then.
Since my wife has been taking it, she no longer has swallowing problems from
anxiety, and no longer gets the skipped and rapid heartbeatting that she used
to get.
Magnesium deficiency is probably quite common, but the problem is that it's
harder to test for magnesium status than it is for other minerals, since the
magnesium in the serum is not a good indicative of the magnesium in the
tissues. But what is known is that most modernized/westernized diets don't
get the daily amount that doctors believe is required, and even lots of
doctors believe the optimum daily amount is higher.
For more information about magnesium, see this page.
http://www.mindspring.com/~sandysimmons/5_13_magnesium.html
The trick is to get up to a high enough dose and finding the right form. The
claim is that chelated magnesium is the best form (solgar has magnesium
glycinate), but sometimes liquid magnesium chloride works better, especially
for people with digestion problems. Start at a low dose and then slowly
increase, splitting up the doses with meals, until you start to feel the
laxative effect. If you get any side effects from one form of magnesium, try
another (sometimes people get side effects from whatever the magnesium is
combined with).
->The other thing is that I have had erosions in the stomach, which may
->well have affected iron absorption. That or loss of blood. Any ideas
->on this? I'll check it out anyhow.
There are a lot of things that can affect iron absorption, so I couldn't
advise you on that. But if you have a digestion problem with any mineral, it
likely affecting other mineral absorption.
Note: Sometimes magnesium deficiency is worsened by a b vitamin deficiency,
especially b12, and b12 can cause anemia (although not the iron deficient
type).
Mark London
M...@PSFC.MIT.EDU
Steve
Thanks for all the information. It's really nice of you. Have
already started a Mg supplement (chelated with amino acid).
> Definitely. A long time ago I used to have eye twitches which I thought were
> due to computer use and/or flourescent lights (I even looked into "natural"
> flourescent light bulbs). Eventually I started having facial twitches
> elsewhere.
Lol, I have looked into natural spectrum fluoro lights as well! I do
get twitches but the worst thing is a feeling of hyperarousal - under
the fluoros I become very 'stressed out' litereally. Like my CNS is
under stress. Did you feel any of this? Interestingly, it is
something like a hangover feeling (light and sound sensitivity,
sensitivity in fingers, pain worse, etc). I also feel very
spaced-out. It's almost my whole nervous system is 'ringing' and
almost in pain, if that makes any sense.
> http://www.mindspring.com/~sandysimmons/5_13_magnesium.html
Thanks, very useful.
> The trick is to get up to a high enough dose and finding the right form. The
> claim is that chelated magnesium is the best form (solgar has magnesium
> glycinate), but sometimes liquid magnesium chloride works better, especially
> for people with digestion problems. Start at a low dose and then slowly
> increase, splitting up the doses with meals, until you start to feel the
> laxative effect. If you get any side effects from one form of magnesium, try
> another (sometimes people get side effects from whatever the magnesium is
> combined with).
Thanks for the tips as well. I'm even going to talk to my doctor
about an injection as a therapeutic trial. I think it was the first
ref you gave - the guy said this is the only way of being 100% sure
you are getting the Mg. In the mean time, I'll try to supplements.
I've gathered, like you say, it can be a little tricky making sure you
absorb Mg.
> Note: Sometimes magnesium deficiency is worsened by a b vitamin deficiency,
> especially b12, and b12 can cause anemia (although not the iron deficient
> type).
I had iron deficiency anaemia, so like you say, B deficiency wasn't
the cause of my anaemia. All the same, I am taking a b supplement, on
advice from my doctor (for anxiety).
You said your wife saw improvements quickly ... how long did it take
for you?
Steve
Mark London
->get twitches but the worst thing is a feeling of hyperarousal - under
->the fluoros I become very 'stressed out' litereally. Like my CNS is
->under stress. Did you feel any of this?
Not specifically, although I've been on some form of magnesium for quite a
while so I might have forgotten. Some people with hypoglycemia also get such
symptoms, and magnesium and hypoglycemia are related (each worsens the other
problem). Many people with fibromyalgia have hypoglycemia because of the
hormonal disturbance found in fibromyalgia.
I did used to have noise sensitivity also, but can't say definitely
if magnesium helped that, or whether it was due to taking medication to help
get sleep. Magnesium alone probably can't solve the sleep problem, although
it's worth a try (and you might want to take some calcium also, if your diet
doesn't have much in it).
->You said your wife saw improvements quickly ... how long did it take
->for you?
My twitches went away pretty quickly within a week.
Mark London
M...@PSFC.MIT.EDU