Engelmann's Syndrome

Hello all, It seems that Google are making some changes to the Groups services they offer and this is

Hi everyone. Some of you may have noticed that recently we have been having people posting SPAM

Hello Fabio, I apologise for taking so long to reply. I have not heard of any treatments for CED,

Hi everyone, Below are a list questions that have been devised by members of this group in order to

HI Angie so sorry for your head pain, i´m not have important problems with my head, i hope your

Best Wishes to all of you for a Blessed Christmas and prosperous New Year!!! Sheryl

Hello Inneke Welcome to our group, I am pleased that you found us! :o) You are very lucky not to have

Hy Mary, My wife wrote a letter with help of a friend Who know english. Can you send It to Dr. Wilcox

Hello Laura, Welome to the engelmann's group. I have Camurati Engelmann"s disease too. I

Hello Christina Thanks for answering I will tell you that my current level of alkaline phosphatase is

Thanks for answering I appreciate this I hope you keep in touch a fraternal hug from chile Ingrid.

Hi everyone, its been a while since I have been on here to check my messages as I havent been getting

Hi My name is ingrid i have CED, i live in santiago chile and my English is very little.:) I looking

Hi, I am Allison and have been a member of this group for a long time now though when I got my new

Jo, Welcome! Like you I live in the midwest (Minneapolis) and was diagnosed in my twenties, but have

Hi all, I hope everyone is enjoying the season! I had a great wknd @ a friends wedding!! THANKS Gabes

Hi there, I am so glad you found our site and would like to welcome you to our small CED community! I

Hey Everyone, Just letting you know that our faithful leader isn't very well at the moment. Chris

Dear Elsa, I am also new to this group. I have CED, but haven't had many problems (some pain and

Hey Everyone, I recently received an email from GARD - The Genetic and Rare Disease Information

Hi Loll!\ My name is Mary and I have suffered with CED my whole life. I was diagnosed when I was 17

"Feelin' hot hot hot!" :o) Originally posted by Christina on Wed, August 29, 2007 - 4:

Hi all, As I read everyone med list, I realize that i have been on most of these @ some point in my

Welcome Back Patrick! It's great to hear from you and I hope you are well. I look forward to

Hi there! I was just looking at the posts and saw your note! Your cousin is Stephanie Wallace? I met

Here here, Gret!!!!! I completely agree with you and am rather concerned that Eugene missed the most

Hi Gret, How are you chooky? I hope your pain has eased off for a little while at least. I agree with

We have 3 CED support groups in cyber space at the moment... 1. Google group (this one) 2. Tribe -

Mary , I could not have said it better! Is there a way that we could sign our names to that? or to

Hi Gret, Good to hear from you! Dr. Wilcox is my doctor! He has been my doctor for years. I didn'