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Jill Mann
Jan 21, 2008, 7:46:01 AM1/21/08
to Williams Syndrome grp
I am trying out my new posting site for the
Williams Google group.
Louis Kerswill helped me alot with this ( thank
you).
Luke Mann aged 8 is our son with Williams
Syndrome.
We are learning more and more all the
time.
I have seen patterns of behaviour now (we found out
that Luke had Williams S. when he was 6).
Luke loves people and is very friendly, but he does
become agitated, loud and over the top when there is alot of activity and people
around.
My strategy thus far is to remove him from the
situation and let him calm down. I have found this harder as he has got older as
he tends to protest loudly when I try to distract him or move him in another
direction.
Luke loves to read,so it works well when I read him
a book, this calms him down and I have his full attention.
He loves to be tickled under his feet, arms and
behind his Knees, this also calms him down.
I hope this will help someone, or perhaps you can
relate?
I would welcome any suggestions on how best to
handle, social interaction?
with kind regards Jill
Mann
magda
Jan 21, 2008, 3:58:48 PM1/21/08
to Williams-sa
Magda Coetzee:mom to Johan 14 (WS) years
Welcome to Williams-sa! Did you receive your copy of THE STORY OF MY
LIFE? Yes, Johan is the most friendly little boy as told in this
documentary. It is common for the WS child to behave in an angry way!
I have also found it is not possible to change his behaviour when mad
at everyone else - I would waite until a later stage and then come
back to his inapropriate behaviour and tell him that he cannot behave
like that! Would he like it if some one else starts throuing a
tantrum?????? This is a procedure to follow many times until he
understands that such behaviour is not acceptable, that no one likes
it and he have to do better! Sometimes I will go that far: If you two
keep fighting/talking like this to one another, woud you like met to
take away this month's pocket money ??????? Not? Now then behave!
When Johan meets some of his adult "friends" he would walk up to a
person and talk very loudly, greeting and laughing and just enjoys
himself, and every one else will enjoy the encounter as well. I would
remind him not to be so loud but next time he will do exatly the same:
people encourage him to reach out in this overfriendly and confident
way: Johan making every one elses' day.
Johan saw the ortodontist today when he had his braces removed and he
was so agitated: he went on a youth camp this weekend and the teens
told him having to remove the braces is much worst than having a tooth
extracted!!!!! He was so frighted, I could have cried, luckily, the
doctor had so much patience with him after seeing him for more than 20
months. AND HIS TEETH LOOKS BEAUTIFUL: WS children often have very
skew/turned and widely spaced teeth. It is hard to believe this is
the same child!
How is Luke doing? We are still trying to get Carte Blance to do a
programme on our Williams Syndrome children: PLEASE SEND ME YOUR
STORIES AND PHOTO's and I will keep trying to convince George that WS
affects many children in our societies, we must just identify them!
Kind regards,
Magda.
Welcome to Williams-sa! Did you receive your copy of THE STORY OF MY
LIFE? Yes, Johan is the most friendly little boy as told in this
documentary. It is common for the WS child to behave in an angry way!
I have also found it is not possible to change his behaviour when mad
at everyone else - I would waite until a later stage and then come
back to his inapropriate behaviour and tell him that he cannot behave
like that! Would he like it if some one else starts throuing a
tantrum?????? This is a procedure to follow many times until he
understands that such behaviour is not acceptable, that no one likes
it and he have to do better! Sometimes I will go that far: If you two
keep fighting/talking like this to one another, woud you like met to
take away this month's pocket money ??????? Not? Now then behave!
When Johan meets some of his adult "friends" he would walk up to a
person and talk very loudly, greeting and laughing and just enjoys
himself, and every one else will enjoy the encounter as well. I would
remind him not to be so loud but next time he will do exatly the same:
people encourage him to reach out in this overfriendly and confident
way: Johan making every one elses' day.
Johan saw the ortodontist today when he had his braces removed and he
was so agitated: he went on a youth camp this weekend and the teens
told him having to remove the braces is much worst than having a tooth
extracted!!!!! He was so frighted, I could have cried, luckily, the
doctor had so much patience with him after seeing him for more than 20
months. AND HIS TEETH LOOKS BEAUTIFUL: WS children often have very
skew/turned and widely spaced teeth. It is hard to believe this is
the same child!
How is Luke doing? We are still trying to get Carte Blance to do a
programme on our Williams Syndrome children: PLEASE SEND ME YOUR
STORIES AND PHOTO's and I will keep trying to convince George that WS
affects many children in our societies, we must just identify them!
Kind regards,
Magda.
Wanita van Zyl
Jan 23, 2008, 2:50:23 PM1/23/08
to willi...@googlegroups.com
Hello there
My son Henry (7WS) also gets agitated with too many
people around him. He is very happy to go to school (he is currently
repeating grade R at a preschool for children from 3 - grade R - he
turned 7 on 9 January) but he gets agitated when his classmates or friends
all try to talk to him at once or if they touch him without him expecting it (if
they touch him from behind to get his attention for example). Luckily most
of the kids that did it on purpose is in grade 1 this year so most of the
children left in school are younger than him and they get along fine.
I make a point of arranging play dates with
children his own age (most of his friends are in grade 1 or 2). He is also
in grade 1 Sunday school at our local church. This helps him learn how to
interact with peers and the adults supervising (either me or the other parents)
know Henry and can tell him immediately if his behaviour is inappropriate.
Mostly his play dates now consist of him and his friend playing for an hour or
two and the friend's mother and I chatting inside with a glimpse outside
every ten or so minutes.
You mention that Luke loves reading. Can he
read by himself? I am just curious because Henry is learning his alphabet
now (bit rusty after the long holiday but catching up slowly) and can sound out
words but he does not "hear" them yet. He will for example sound b-a-g but
can not hear that it is the word bag. I am trying to get info from other
parents who can perhaps help with methods to try and help him hear the
words. I must however add that we are Afrikaans - I know there are great
phonics programs in English but I have not found one yet in Afrikaans. Any
tips will be greatly appreciated.
Kind regards
Wanita
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Jeani...@gmail.com
Jan 23, 2008, 10:59:25 PM1/23/08
to Williams-sa
Hi Wanita,
Magda Coetzee, mom of Johan (WS 14 years)
Glad you have decided to keep Henry in Grade R again for this year.
The longer he can stay there, the better: Johan went to grade one in
2003 at the age of nine (the school insisted that he should start
grade one). After only two weeks in grade one: the school insisted
that we withdraw him from school altogether: THEY WERE UNABLE TO TEACH
HIM/ TO ADDRESS HIS READING AND WRITING DISABLILITY.They told me to
find him a private teacher (pensioner) to teach him one to one (see
Diana Joubert -North West Province: support group CONTACT: a teacher
to teach your child individually can cost upto R15 000-00 a month and
this does not guarantee that such a teacher will be able to deal with
the learning barriers that prevails with WS children.
After LEAVING school, Johan's child specialist advised us to return
him to grade R, however, this did not work: her returned to this class
at the end of February 2003 and could not become part of the "younger"
new group - he has graduated from grade R the previous year, doing
well but I knew he was not ready for grade one: in the end the
school's decision for him to move on to grade one in 2003 eventually
meant that he had to withdraw from school, formal teaching, after
only two weeks in grade one. Our educational system has failed his
needs: the Eastern Cape does not have resources to deal with
specialised teaching.
I started teaching/stimulating Johan at home from 2004: Today he can
write, read, type his own emails (four sentences at a time) and even
send his own sms's. Any one who would like to send a few lines to him
(large print) are welcome to "chat" to him at ngn...@net4u.co.za. He
loves checking emails: tel him something of your child's day and your
own - emotionally his between five and eight years.
Tuesday two captains from the Flying Squad came to pick Johan up for
WORK: they went on patrol: visiting some of his special friends at
work, then visited his colleagues at the Flying Squad and then went
"racing" at the race track. Johan had such a wonderful day, he keeps
on smiling!!
Johan is suffering from athirits, he cannot walk early rnornings and
have to rely on crutches. He is now suffering from an allergic
reaction to his medication. He has to take so many pills each day.
I would like hear from you all. LOVE OUR SPECIAL CHILDREN.
Magda
On Jan 23, 9:50 pm, "Wanita van Zyl" <wanit...@kingsleymail.co.za>
wrote:
> ------------------------------------------------------------------------------
>
> - Show quoted text -
Magda Coetzee, mom of Johan (WS 14 years)
Glad you have decided to keep Henry in Grade R again for this year.
The longer he can stay there, the better: Johan went to grade one in
2003 at the age of nine (the school insisted that he should start
grade one). After only two weeks in grade one: the school insisted
that we withdraw him from school altogether: THEY WERE UNABLE TO TEACH
HIM/ TO ADDRESS HIS READING AND WRITING DISABLILITY.They told me to
find him a private teacher (pensioner) to teach him one to one (see
Diana Joubert -North West Province: support group CONTACT: a teacher
to teach your child individually can cost upto R15 000-00 a month and
this does not guarantee that such a teacher will be able to deal with
the learning barriers that prevails with WS children.
After LEAVING school, Johan's child specialist advised us to return
him to grade R, however, this did not work: her returned to this class
at the end of February 2003 and could not become part of the "younger"
new group - he has graduated from grade R the previous year, doing
well but I knew he was not ready for grade one: in the end the
school's decision for him to move on to grade one in 2003 eventually
meant that he had to withdraw from school, formal teaching, after
only two weeks in grade one. Our educational system has failed his
needs: the Eastern Cape does not have resources to deal with
specialised teaching.
I started teaching/stimulating Johan at home from 2004: Today he can
write, read, type his own emails (four sentences at a time) and even
send his own sms's. Any one who would like to send a few lines to him
(large print) are welcome to "chat" to him at ngn...@net4u.co.za. He
loves checking emails: tel him something of your child's day and your
own - emotionally his between five and eight years.
Tuesday two captains from the Flying Squad came to pick Johan up for
WORK: they went on patrol: visiting some of his special friends at
work, then visited his colleagues at the Flying Squad and then went
"racing" at the race track. Johan had such a wonderful day, he keeps
on smiling!!
Johan is suffering from athirits, he cannot walk early rnornings and
have to rely on crutches. He is now suffering from an allergic
reaction to his medication. He has to take so many pills each day.
I would like hear from you all. LOVE OUR SPECIAL CHILDREN.
Magda
On Jan 23, 9:50 pm, "Wanita van Zyl" <wanit...@kingsleymail.co.za>
wrote:
>
> No virus found in this incoming message.
> Checked by AVG Free Edition.
> Version: 7.5.516 / Virus Database: 269.19.8/1236 - Release Date: 2008/01/21 08:23 PM- Hide quoted text -
> No virus found in this incoming message.
> Checked by AVG Free Edition.
>
> - Show quoted text -
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