Usher Life

usher-life@googlegroups.com

Description

Forum for discussing day-to-day life for patients and families with Usher syndrome. The topics may be simple (ie, got any good gift ideas for a kid with Usher) or complex and emotional (ie, how do I tell my daughter she has Usher syndrome).

Language

English (United States)

Privacy

Anyone on the web
can see group
Group members
can view members
Anyone on the web
can view conversations
Anyone on the web
can post and will be held for moderation
Anyone on the web
can join group