this is my favorite part (though i find the TSA scene a little hard to believe)
"It's so equal to us being a freak to have this condition, especially at the point I had it, that you don't talk about it," Gilman, 70, tells PEOPLE. "You craft your entire life around hiding this."
Her symptoms became so severe, says Gilman, that she was often stopped by TSA agents in airport security lines and accused of hiding something between her legs.
"The first time it happened, I was getting on a flight to Italy. And I just said to the women, 'What you're going to see is going to horrify you,' " she says. "By the time we came out of the room, they were in tears. They were weeping for me."