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Jul 18, 2024, 1:13:34 AM7/18/24
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Importance: Caregiver burden may result from providing care for patients with chronic illness. It can occur in any of the 43.5 million individuals providing support to midlife and older adults. Caregiver burden is frequently overlooked by clinicians.

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Objectives: To outline the epidemiology of caregiver burden; to provide strategies to diagnose, assess, and intervene for caregiver burden in clinical practice; and to evaluate evidence on interventions intended to avert or mitigate caregiver burden and related caregiver distress.

Evidence: Cohort studies examining the relation between demographic and social risk factors and adverse outcomes of caregiver burden were reviewed. Review of recent meta-analyses to summarize the effectiveness of caregiver burden interventions were identified by searching Ovid MEDLINE, AgeLine, and the Cochrane Library.

Results: Risk factors for caregiver burden include female sex, low educational attainment, residence with the care recipient, higher number of hours spent caregiving, depression, social isolation, financial stress, and lack of choice in being a caregiver. Practical assessment strategies for caregiver burden exist to evaluate caregivers, their care recipients, and the care recipient's overall caregiving needs. A variety of psychosocial and pharmacological interventions have shown mild to modest efficacy in mitigating caregiver burden and associated manifestations of caregiver distress in high-quality meta-analyses. Psychosocial interventions include support groups or psychoeducational interventions for caregivers of dementia patients (effect size, 0.09-0.23). Pharmacologic interventions include use of anticholinergics or antipsychotic medications for dementia or dementia-related behaviors in the care recipient (effect size, 0.18-0.27). Many studies showed improvements in caregiver burden-associated symptoms (eg, mood, coping, self-efficacy) even when caregiver burden itself was minimally improved.

Conclusions and relevance: Physicians have a responsibility to recognize caregiver burden. Caregiver assessment and intervention should be tailored to the individual circumstances and contexts in which caregiver burden occurs.

In 1990, non-communicable diseases (NCDs) contributed to less than half of overall global health loss. But since 1990, the health loss has shifted toward a growing burden from NCDs and away from communicable, maternal, neonatal, and nutritional (CMNN) diseases.

The Child Nutrition Reporting Burden Analysis Study was commissioned by the USDA Food and Nutrition Service (FNS) in response to a legislative requirement of House Report 114-531. The study examined challenges faced by state agencies (SAs) and school food authorities (SFAs) related to child nutrition (CN) program administrative and reporting requirements and identifying those that contribute most to the workload for SAs and SFAs that operate CN programs. The overarching objective of the study was to develop a set of considerations for FNS for reducing SA and SFA administrative and reporting burden related to school meals programs.

OBRHI engages as a trusted partner with stakeholders across the health system to understand, measure, and identify opportunities to reduce unnecessary burden and increase efficiencies to improve access to quality, affordable, equitable healthcare. OBRHI engages with the public through diverse channels to seek insights, and ensures those perspectives are reflected in CMS policy and operations. OBRHI curates these insights to drive action across the healthcare enterprise.

CMS recently released a summary of the results from its Make Your Voice Heard Request for Information. CMS received more than 900 individual submissions which included over 4,000 comments, and gained valuable public insight on topics like accessing healthcare and related challenges and the experience of providers delivering healthcare. The shared burdens, thoughtful recommendations, and welcomed insight received from stakeholders will serve to inform our work and better support the populations we serve. Thank you to everyone who took the time to send in their comments. You can find more information on the RFI results by clicking here.

CMS is finalizing changes that will simplify and streamline the current regulations, increasing provider flexibility and reducing excessively burdensome regulations. This will allow providers to focus on providing high-quality healthcare to their patients, while maintaining robust health and safety standards for patients.

This final rule will also reduce the frequency of certain required activities and, where appropriate, revise timelines for certain requirements for providers and suppliers. It will remove obsolete, duplicative, or unnecessary requirements. These finalized revisions balance patient safety and quality, while also providing broad regulatory relief for providers and suppliers. The final rule would reduce burden for participating providers and suppliers in the following ways:

We are updating requirements for certain higher-risk dialysis facilities from the 2000 edition of the fire safety code to the 2012 edition of the fire safety code. This change aligns with state requirements and with the requirements for all other facility types. It also removes an existing obsolete requirement for facilities to comply with the 2000 edition of the fire safety code. There is no additional burden for these facilities as all states have adopted the 2012 edition of the NFPA 101 and 99. CMS is finalizing this rule as proposed. Specifically, CMS is finalizing as proposed the adoption of the 2012 editions of the NFPA 101 and 99 for dialysis facilities that do not provide one or more exits to the outside at grade level from the treatment area level.

To improve the customer experience across DHS services and products, we must decrease the burden they place on the public. We can identify and validate changes together to promote better experiences and more confidence in our agency by conducting human-centered research to understand the goals, needs, and challenges of our customers.

Believe it or not, both the Burden Reduction Initiative and the Paperwork Reduction Act create space for DHS CX practitioners to talk to customers to gather feedback on our services and products. And it makes good sense, as data from customer research and feedback can be used improve DHS services and products and reduce the same public burdens the PRA seeks to regulate.

The DHS Burden Reduction Initiative has set a goal of reducing the public burden associated with accessing DHS services by 20 million hours by May 2023. In support of this goal, DHS Customer Experience (CX) practitioners help Components better understand the goals, needs, and behaviors of their customers. By building more equitable and accessible experiences for our customers, DHS is reducing burden on the public.

DHS interacts with millions of customers every year through digital, in-person, and often combined digital and in-person experiences. As our customers try to access DHS services and products, they often encounter burdensome processes, websites, forms, outdated tools, logins, and brands that add up to a confusing, frustrating, inequitable, or inaccessible customer experience. The DHS Burden Reduction Initiative, the Executive Order on Transforming Customer Experience and Service Delivery to Rebuild Trust in Government, and several equity-building initiatives work together to deliver better experiences and build trust in government.

The Office of Information and Regulatory Affairs (OIRA) in the Office of Management and Budget (OMB) provides guidance in this April 13, 2022 memo to help Federal agencies identify and reduce burdens associated with applying for and maintaining eligibility for public benefits programs, with a particular focus on members of under served and marginalized communities.

In the 21st Century Cures Act, Congress identified the importance of easing regulatory and administrative burdens associated with the use of electronic health records (EHRs) and health information technology. Specifically, Congress directed the Department of Health and Human Services (HHS) to establish a goal, develop a strategy, and provide recommendations to reduce EHR-related burdens that affect care delivery.

The burden of influenza on the United States can vary widely from season to season and is affected by a number of factors including the characteristics of circulating viruses, the timing of the season, population immunity to circulating viruses, how well influenza vaccines are working, and how many people have gotten vaccinated. While the impact of influenza varies from season to season, it places a substantial burden on the health of people in the United States each year.

CDC uses a mathematical model to estimate the numbers of influenza illnesses, medical visits, hospitalizations, and deaths in the United States, (1-4) as well as, the impact of influenza vaccination on these numbers. The methods used to calculate the burden of influenza have been described previously (1-2). More recently, the same model was adopted to estimate influenza-associated deaths in the United States. This methodology has been used to retroactively calculate influenza burden, including deaths, going back to 2010.

CDC estimates the burden of flu and the impact of annual flu vaccination in the U.S using a model that estimates the numbers of flu illnesses, medical visits and hospitalization prevented by vaccination.

The burden of flu disease in the United States can vary widely and is determined by a number of factors including the characteristics of circulating viruses, the timing of the season, how well the vaccine is working to protect against illness, and how many people got vaccinated. While the effects of flu varies, it places a substantial burden on the health of people in the United States each year.

One of the goals of the PRA is for the federal government to consider and account for the impact on the public when asking for information. This impact is called burden, and includes the value of both the time and the effort required to fulfill a collection along with the financial cost.

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