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HELLO ALL FELOW PWME

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Spencer Spindrift

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Oct 4, 2010, 4:26:49 AM10/4/10
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I've had severe ME for 20 years but my doc. wont believe me, Am in UK

Spencer Spindrift

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Oct 14, 2010, 11:25:49 PM10/14/10
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On Oct 4, 9:26 am, Spencer Spindrift <spencerspindr...@btinternet.com>
wrote:

> I've had severe ME for 20 years but my doc. wont believe me, Am in UK

According to Facebook ME pages XMRV is one ov 4 viruses that cause ME.
I have long suspected HHV6a variant b, which my fiend named Herpes
Complex, and an enterovirus.

Spencer Spindrift [ FB nym Spencer Primate ]

Spencer Spindrift

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Apr 18, 2015, 5:54:50 PM4/18/15
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On Monday, 4 October 2010 09:26:49 UTC+1, Spencer Spindrift wrote:
> I've had severe ME for 20 years but my doc. wont believe me, Am in UK

I am treated as being mentaly ill, which is very annoying as any psychiatrist would certify me as sane.

I have a "delusion" that I have an illness which officially doesn't exist :: i.e. ME/cfs. Actually I went to a private doctor to have the diagnosis confirmed [ not in my medical notes apparently ]

I believe it's viral; XMRV or HHV6 variant b. -- I have a degree in Human Biology so I'm qualified.

I've also done 30 yrs. postgrad research into ME/cfs so on that subject I'm better informed than the doctors who don't treat me !

Spencer Spindrift

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May 9, 2015, 1:36:51 AM5/9/15
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On Monday, 4 October 2010 09:26:49 UTC+1, Spencer Spindrift wrote:
> I've had severe ME for 20 years but my doc. wont believe me, Am in UK

https://www.youtube.com/watch?v=kMb92gK4oyQ&feature=youtu.be
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