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Social Services -- Downtime part 3

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Spencer Spindrift

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Sep 9, 2005, 9:09:38 PM9/9/05
to
While I was in hospital my meals on wheels were cancelled, and I'm still
waiting for a review of my homecare.
There is also all day noise nuisance from a deaf old woman's TV
downstairs. All this on top of losing my tenancy and most of my
possessions and being robbed more times than I can remember.

Spencer. Alone in Manchester,


Serena Blanchflower

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Sep 10, 2005, 5:54:42 AM9/10/05
to

Sorry to hear this Spencer. I hope it doesn't take you too long to get
both your housing and your care package back together.

--
Cheers, Serena
Don't go around saying the world owes you a living. The world owes you
nothing. It was here first. (Mark Twain)

Hampshire Friends with ME website: <http://www.hantsmesupport.co.uk>

Hayek

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Sep 10, 2005, 11:26:14 AM9/10/05
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Spencer Spindrift wrote:

How pathetic !

I remember those ads : invite a lonely soul for
christmas.

I read a report on people who did invite "a lonely
soul" : or better "a lonely sociopath".


The lonely sociopath complained about everything,
insulted everyone, did his best to be an utter
nuisance and completely ruined the inviting people's
christmas, which went without a hitch all the years
before.

So I wondered, why are these people lonley in the
first place ? Exactly ! Nobody wants to come near
them, they are obnoxious sociopaths.

It is/was my natural behaviour to help people, and
when I discovered this cure, I would have speeded to
Manchester, to help Spencer, if my financial means
allowed it.

But then he starts insulting you.

I immediately tought of the story about the "lonely
soul" and the Christmas.

So, Spencer, if you want to get cured of your
loneliness, then first cure your sociopath egotism.

I does not depend on age or looks, I know a terrible
handsome guy, and not a single girl (or man, he is
bisexual) wants to stay in his neighbourhood for
more than an hour.

Being kind to you, is like the same story about the
fish and learning to fish. Serena gives you a fish,
I am teaching you how to fish, if you want to listen.

Philo of Alexandria counseled, “Be kind, for
everyone you meet is fighting a great battle.”

I could not work for the last 14 years, due to cfs,
and was left without any income. Luckily I helped
someone twenty years ago, who was then in deepest
trouble. It cost me a lot, but that person,
supported me later in my deepest trouble. I did what
nobody would have done, and got rewarded by what
nobody would have received.

It is not a coincidence that I got cured. I was
intrested in the fate of millions of people, while
nobody else was. That lead me on the trial of
improvement of my own health.

On the other "hand", most of the species over here
are only intrested in one thing : "bite the hand
that cures you".

I am not a religious person, but it is almost as if
some higher force prevents me from curing the
bastards like you.

People who are trustworthy, trust and respect other
people, and are willing to listen to my story, and
get better in a jiffy.


Uwe Hayek.

--
To be controlled in our economic pursuits,
is to be controlled in everything -- F.A.Hayek.

Magna est veritas et praevalebit
(great is truth, and shall prevail)
-- Del Kennedy

Government is not the solution,
government is the problem.
-- Ronald Reagan.

Wie het kleine niet eert, valt op negers.
-- Karin Bloemen

Ik geloof niet meer in Evolutie !
-- Huize Hayek te Heist.

Peterken

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Sep 10, 2005, 11:33:34 AM9/10/05
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"Hayek" <hay...@nospam.xs4all.nl> wrote in message
news:4322fb46$0$11077$e4fe...@news.xs4all.nl...

>
> The lonely sociopath complained about everything,
> insulted everyone, did his best to be an utter
> nuisance and completely ruined the inviting people's
> christmas, which went without a hitch all the years
> before.
> So I wondered, why are these people lonley in the
> first place ? Exactly ! Nobody wants to come near
> them, they are obnoxious sociopaths.
>

hayeks' authobiography ??? :-))


Hayek

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Sep 10, 2005, 12:16:45 PM9/10/05
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Peterken wrote:

Take the amount you hate me now, multiple that by
100, and that is how much you will hate me in the
future, after I take your house and all your
belongings, plus everything you earn for the rest of
your days. Crime does not pay, and libel, slander
and extorsion are crimes. And there is a law stating
that "he who does damage, has to pay for that
damage". And you DID, and still do damage. Rest
assured, the bill will be in the mail, and your
conviction too. And every time you attack me, I
collect more proof.

I do not mind Usenet liberties, but if you post that
I am con-artist on a designated website, and you do
that without any proof, you will suffer the
consequences.

Also, you made the route towards cfs sufferers
getting my cure more difficult, and I do not see how
you are helping the cfs cause.

Justice and Truth will prevail.

Peterken

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Sep 10, 2005, 1:29:49 PM9/10/05
to

"Hayek" <hay...@nospam.xs4all.nl> wrote in message
news:4323071d$0$11067$e4fe...@news.xs4all.nl...

> Peterken wrote:
>
>
> Take the amount you hate me now, multiple that by
> 100, and that is how much you will hate me in the
> future, after I take your house and all your
> belongings, plus everything you earn for the rest of
> your days. Crime does not pay, and libel, slander
> and extorsion are crimes. And there is a law stating
> that "he who does damage, has to pay for that
> damage". And you DID, and still do damage. Rest
> assured, the bill will be in the mail, and your
> conviction too. And every time you attack me, I
> collect more proof.
>
> I do not mind Usenet liberties, but if you post that
> I am con-artist on a designated website, and you do
> that without any proof, you will suffer the
> consequences.
>
> Also, you made the route towards cfs sufferers
> getting my cure more difficult, and I do not see how
> you are helping the cfs cause.
>
> Justice and Truth will prevail.
>
> Uwe Hayek.
>

Well, then I guess you must be a *very* rich man by now given the fact I
just repeat what about everybody else before me stated here and in the dutch
fora for a *very* long time now....
Didn't sue them yet ? Then why wait ??
Not aware of it ? Then re-read all previous answers thoroughly for once.
And no, I'm still not afraid of you, given the simple fact you always
*avoid* the slightest juridic confrontation or investigation by every
means.... even when it takes cloaking in silence.... thus in fact prooving
the value of your "cure by investment" when confronted with suspicion.

My parents always told me:
When it speaks like a dog, walks like a dog, behaves like a dog and looks
like a dog, and continues to do so, then it *is* a dog, there's no doubt
about it.
Just replace "dog" with "con" and you'll get the message I guess....

Hayek

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Sep 10, 2005, 2:11:18 PM9/10/05
to
Peterken wrote:

It so happens that I am not a con, and you crossed a
line that you should not have crossed.

You have no right in calling me a con-artist, and
posting this on a specialised forum.

If I am a con-artist, you should be able to find a
victim. Or have some other proof. You have neither,
because I do not make victims, I help people, and I
refuse to accept money if there is no result.

And I already have a lot of testimonies, so I can
easily prove that my request to invest in a very,
very promising product was completely justified.

If you had read the thread completely, and not just
the bit where I ask to invest money, you would know.

I will prove to the world that my cure works, and
then I will come after you, helped by an army of
testimonies, all people that will hate your guts
because you made them suffer longer than neccesary,
and backed by a government that had to pay billions
too much in benefits for the same reason.

If there is any justice left in this world, you will
pay the bill, for your irresponsable behaviour. I
cited you the laws you infringed, and it seems to
have no effect on you.

Tros television tried the same thing in the
Netherlands, they lost the lawsuit and now have to
pay a very large sum to the victim of their slander.

I urge you to consult a lawyer as soon as possible.
Every day you do not retract your libel and slander,
will cost you very, very much, more than you can
ever afford.


Uwe Hayek.


--
To be controlled in our economic pursuits,
is to be controlled in everything -- F.A.Hayek.

Magna est veritas et praevalebit
(great is truth, and shall prevail)
-- Del Kennedy

Government is not the solution,
government is the problem.
-- Ronald Reagan.

Once a government is committed to the principle of
silencing the voice of opposition, it has only one
way to go, and that is down the path of increasingly
repressive measures, until it becomes a source of
terror to all its citizens and creates a country
where everyone lives in fear.
-- Harry S Truman (1884 - 1972), August 8, 1950

Iain Archer

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Sep 10, 2005, 5:26:57 PM9/10/05
to
Hayek wrote on Sat, 10 Sep 2005

>I will prove to the world that my cure works, and
>then I will come after you, helped by an army of
>testimonies, all people that will hate your guts
>because you made them suffer longer than neccesary,
>and backed by a government that had to pay billions
>too much in benefits for the same reason.

Right, that's it. No Nobel Prize nomination for you.
--
Iain Archer To email, please use Reply-To address

Hayek

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Sep 10, 2005, 5:35:52 PM9/10/05
to
Iain Archer wrote:

> Hayek wrote on Sat, 10 Sep 2005
>
>> I will prove to the world that my cure works,
>> and then I will come after you, helped by an
>> army of testimonies, all people that will hate
>> your guts because you made them suffer longer
>> than neccesary, and backed by a government that
>> had to pay billions too much in benefits for
>> the same reason.
>
>
> Right, that's it. No Nobel Prize nomination for
> you.

Since they gave Gorbatsjev the Nobel peace prize for
lying about Tsjernobyl, and keepin yhe gulags open
for ten more years, I kinda lost my ambition for
obtaining one. I wonder why they did not give one to
the guy who gave softenon to pregnant mothers.... or
did they ?

Spencer Spindrift

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Sep 11, 2005, 5:56:18 PM9/11/05
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"Hayek" <hay...@nospam.xs4all.nl> wrote in message
news:432351ec$0$11066$e4fe...@news.xs4all.nl...

| Iain Archer wrote:
|
| > Hayek wrote on Sat, 10 Sep 2005
| >
| >> I will prove to the world that my cure works,
| >> and then I will come after you, helped by an
| >> army of testimonies, all people that will hate
| >> your guts because you made them suffer longer
| >> than neccesary, and backed by a government that
| >> had to pay billions too much in benefits for
| >> the same reason.
| >
| >
| > Right, that's it. No Nobel Prize nomination for
| > you.
|
| Since they gave Gorbatsjev the Nobel peace prize for
| lying about Tsjernobyl, and keepin yhe gulags open
| for ten more years,

Who?

ŚI kinda lost my ambition for
| obtaining one.


ŚI wonder why they did not give one to


| the guy who gave softenon to pregnant mothers.... or
| did they ?

What?


--
Spencer Manchester UK

There you are, getting on with your life, and Jesus is waiting just
'round the corner with a baseball bat.

http://www.euvolution.com/


Margot

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Sep 11, 2005, 6:59:08 PM9/11/05
to
Spencer Spindrift wrote:
> "Hayek" <hay...@nospam.xs4all.nl> wrote in message
> news:432351ec$0$11066$e4fe...@news.xs4all.nl...
> | Iain Archer wrote:
> |
> | > Hayek wrote on Sat, 10 Sep 2005
> | >
> | >> I will prove to the world that my cure works,
> | >> and then I will come after you, helped by an
> | >> army of testimonies, all people that will hate
> | >> your guts because you made them suffer longer
> | >> than neccesary, and backed by a government that
> | >> had to pay billions too much in benefits for
> | >> the same reason.
> | >
> | >
> | > Right, that's it. No Nobel Prize nomination for
> | > you.
> |
> | Since they gave Gorbatsjev the Nobel peace prize for
> | lying about Tsjernobyl, and keepin yhe gulags open
> | for ten more years,
>
> Who?
>
> ŚI kinda lost my ambition for
> | obtaining one.
>
>
> ŚI wonder why they did not give one to
> | the guy who gave softenon to pregnant mothers.... or
> | did they ?
>
> What?
>
>
Spencer,

Just ignore Hayek - the rest of us do! Remember, this is a UK support
group for people with ME and their carers - you belong in this group and
Hayek does not - he isn't in the UK, doesn't have ME, and doesn't care.
In fact, he's just a wannabe snake-oil salesman. Refrain from feeding
the trolls, and with any luck they will eventually get bored and return
to their lairs.

Hope you get your housing & care problems resolved soon.

Best wishes,

Margot

Janie Thomson

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Sep 12, 2005, 6:00:36 AM9/12/05
to

"Margot" <margotl...@eurobell.co.uk> wrote in message
news:4324b6c0$0$97116$ed26...@ptn-nntp-reader03.plus.net...

> Just ignore Hayek - the rest of us do!

Amen to that.

> Remember, this is a UK support group for people with ME and their carers -
> you belong in this group and Hayek does not - he isn't in the UK, doesn't
> have ME, and doesn't care. In fact, he's just a wannabe snake-oil
> salesman. Refrain from feeding the trolls, and with any luck they will
> eventually get bored and return to their lairs.
>
> Hope you get your housing & care problems resolved soon.

and Amen to that.

> Best wishes,
>
> Margot

Goodness, Margot, you're a real blast from the past - how are you?


--
Janie
http://www.janiethomson.co.uk
janie at janiethomson dot co dot uk


Serena Blanchflower

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Sep 12, 2005, 7:40:45 AM9/12/05
to
On Sun, 11 Sep 2005 23:59:08 +0100, Margot wrote:

> Just ignore Hayek - the rest of us do! Remember, this is a UK support
> group for people with ME and their carers - you belong in this group and
> Hayek does not - he isn't in the UK, doesn't have ME, and doesn't care.
> In fact, he's just a wannabe snake-oil salesman. Refrain from feeding
> the trolls, and with any luck they will eventually get bored and return
> to their lairs.

Well said Margot!

--
Cheers, Serena
Nothing right in my left brain. Nothing left in my right brain (anon)

Peterken

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Sep 12, 2005, 8:46:50 AM9/12/05
to

"Hayek" <hay...@nospam.xs4all.nl> wrote in message
news:432321f8$0$11079$e4fe...@news.xs4all.nl...


woefff woefff growl woefff :-D


Spencer Spindrift

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Sep 12, 2005, 11:09:56 AM9/12/05
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"Peterken" <pete...@hotmail.com> wrote in message
news:_MeVe.192129$3_1.10...@phobos.telenet-ops.be...

|
| "Hayek" <hay...@nospam.xs4all.nl> wrote in message
| news:432321f8$0$11079$e4fe...@news.xs4all.nl...
| > Peterken wrote:
| >
| >> "Hayek" <hay...@nospam.xs4all.nl> wrote in message
| >> news:4323071d$0$11067$e4fe...@news.xs4all.nl...

Men of stone fear nothing except tears
that seep into cracks
and break them.


Spencer Spindrift

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Sep 12, 2005, 11:35:10 AM9/12/05
to

"Serena Blanchflower" <nos...@blanchflower.me.uk> wrote in message
news:1m5veh55ewg1n$.9k7r31urbo73.dlg@40tude.net...

| On Sun, 11 Sep 2005 23:59:08 +0100, Margot wrote:
|
| > Just ignore Hayek - the rest of us do! Remember, this is a UK
support
| > group for people with ME and their carers - you belong in this group
and
| > Hayek does not - he isn't in the UK, doesn't have ME, and doesn't
care.
| > In fact, he's just a wannabe snake-oil salesman. Refrain from
feeding
| > the trolls, and with any luck they will eventually get bored and
return
| > to their lairs.
|
| Well said Margot!
|
| --
| Cheers, Serena
| Nothing right in my left brain. Nothing left in my right brain (anon)

Why do our tears not fill oceans?


Margot

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Sep 16, 2005, 5:01:05 PM9/16/05
to
Janie Thomson wrote:
>
>
> Goodness, Margot, you're a real blast from the past - how are you?
>
>
Hi Janie - and everyone else!

I drop in here to read occasionally, but I only post about once a year -
when something really annoys me (like Hayek!).

I seem to have reached a plateau with my ME - not getting any better,
but as long as I strictly control my sleep and activity, not getting any
worse.

Old friends have gradually drifted away over the years - they couldn't
cope with me not being able to do "spontaneous" and also having often to
cancel anything planned well in advance because of sudden onset of an
unexpected symptom. And they all wanted to "help" at first - but not
with the things I actually needed help with :-( - and I forget how many
"miracle cures" have been recommended over the years - does anyone
seriously think that a daily can of Red Bull will cure ME?

So now I have found a new group of friends. We have lots in common - we
sit around moaning about our aches and pains, we wistfully reminisce
about the good old days when we were able to have a day out
uninterrupted by an afternoon rest, we laugh when one of us has a
"senior moment" because of the brainfog...yes, we have lots in common,
except age - I'm 43, and the rest of them are 75+!

Margot - YAP (Young-Age Pensioner)

Hayek

unread,
Sep 17, 2005, 4:55:02 AM9/17/05
to


Margot wrote:

> Janie Thomson wrote:
>
>>
>>
>> Goodness, Margot, you're a real blast from the
>> past - how are you?
>>
>>
> Hi Janie - and everyone else!
>
> I drop in here to read occasionally, but I only
> post about once a year - when something really
> annoys me (like Hayek!).

Are you completely out of your head ?

I have A CURE. A C-U-R-E !

A man I met the last week of August, had both his
ankles broken some ten years ago.

It looked as he was wearing permanent socks : his
lower legs were brown-black as completely bruised,
covered in tromboses.

He could hardly walk. His liver was in bad shape.

After a few days on the cure his walking noticeably
improved.
I was as if "the socks" on his legs started dropping,
his lower legs became white again from top to bottom.

Parts of his feet that were black-bruised before,
whitened, and looked healthy again, and this after ten
years of black and blueness!

He regained some control over the motion of his feet,
and he walks and moves almost like a normal person again.

And then a few fays ago, he says that from sleeping
twelve hours and more, and feeling tired all the time,
he now barely sleeps five, and took a day trip to
another town, because he had energy galore, and wanted
to meet his old friends.

His constant diarrhea (IBS ?) disappeared, he got a
blood test end of august after nine days on the cure,
and his bad liver values, bilirubin (4x higher than
normal), went to 2x to 1.7 times of the normal range,
a definite and visible improvement.


His girlfriend, had some sort of narcolepsy, she dozed
off when you talked to her. She cleaned the house on
adrenalin, and then was so nackered she could not do
anything anymore. Given the succes of her man, she
decided to give it a try, and now does not fall asleep
anymore whilst talking. She feels so energetic, that
she wakes up in the morning and goes swimming in the
sea. She is really euforious now truly believes it
works. She has the energy again to cope with raising
her two difficult teenagers, from a former marriage.

Add another two successes to the already long list.

I got 10 Euros from them.

The mans father, just made a lot of money by a good
real estate transaction, but is reluctant to give
pocket money to his son, because he drinks it all.

So he shows his legs to his father, and says that he
needs money to continue this wonder-cure, father gives
him some 100 euro's, and he drinks it all.

And then comes your insult, my "annoying" posts.

My best friend and cure user, witnessed a discussion
with some "sceptics" this morning, and asked : "Why do
you keep doing it, I would not have your patience, let
them rot !".


> I seem to have reached a plateau with my ME - not
> getting any better, but as long as I strictly
> control my sleep and activity, not getting any
> worse.


> Old friends have gradually drifted away over the
> years - they couldn't cope with me not being able
> to do "spontaneous" and also having often to cancel
> anything planned well in advance because of sudden
> onset of an unexpected symptom. And they all
> wanted to "help" at first - but not with the things
> I actually needed help with :-( - and I forget how
> many "miracle cures" have been recommended over the
> years - does anyone seriously think that a daily
> can of Red Bull will cure ME?


> So now I have found a new group of friends. We have
> lots in common - we sit around moaning about our
> aches and pains, we wistfully reminisce about the
> good old days when we were able to have a day out
> uninterrupted by an afternoon rest, we laugh when
> one of us has a "senior moment" because of the
> brainfog...yes, we have lots in common, except age
> - I'm 43, and the rest of them are 75+!
>
> Margot - YAP (Young-Age Pensioner)

Oh, I see : you want to keep Yapping.

I took the liberty of e-mailing you this mans lab
tests, look at the liver values (bilirubin).

IanW

unread,
Sep 17, 2005, 6:00:28 AM9/17/05
to
"Hayek" <hay...@nospam.xs4all.nl> wrote in message
news:432bd9e2$0$11061$e4fe...@news.xs4all.nl...

> Are you completely out of your head ?
>
> I have A CURE. A C-U-R-E !

[..]

> My best friend and cure user, witnessed a discussion
> with some "sceptics" this morning, and asked : "Why do
> you keep doing it, I would not have your patience, let
> them rot !".

I think lots of people on here wonder why you keep doing it, because you're
not actually offering** the cure to anyone, you just keep talking about how
wonderful it allegedly is.

** I'm not counting going over to Belgium, to meet a stranger, to take an
unknown product, for a siginficant amount of money as a serious offer.

I sent you another email on the 11th, after you explained on here that you
hadn't replied to my previous one because of your stolen wifi card, but you
never responded to that either. So much for that "miracle curing of.." that
you offered.

I'd suggest that you either make the product available over here on
reasonable terms, or you're just wasting your time, and antagonising the
very people that you're trying to sell your cure to seems somewhat
counterproductive.

Ian


Hayek

unread,
Sep 17, 2005, 7:32:02 AM9/17/05
to

IanW wrote:
> "Hayek" <hay...@nospam.xs4all.nl> wrote in message
> news:432bd9e2$0$11061$e4fe...@news.xs4all.nl...
>
>
>> Are you completely out of your head ?
>>
>> I have A CURE. A C-U-R-E !
>
>
> [..]
>
>
>> My best friend and cure user, witnessed a
>> discussion with some "sceptics" this morning, and
>> asked : "Why do you keep doing it, I would not
>> have your patience, let them rot !".
>
>
> I think lots of people on here wonder why you keep
> doing it, because you're not actually offering**
> the cure to anyone,

I do offer it, but nobody is intrested.

> you just keep talking about how wonderful it
> allegedly is.

It is "not just talk" : I report events that really
happened.

> ** I'm not counting going over to Belgium, to meet
> a stranger, to take an unknown product, for a
> siginficant amount of money as a serious offer.

I accept that.

> I sent you another email on the 11th, after you
> explained on here that you hadn't replied to my
> previous one because of your stolen wifi card, but
> you never responded to that either. So much for
> that "miracle curing of.." that you offered.

It is in my draft box since the 11th. I could not get
things practically and financially organized. I need
different packaging materials, and was not sure when I
was going to have any money to buy them. I hit rock
bottom for food 3 times this weeks, I have some cats
and a 77 year old lady to take care about, this is
Belgium, she has no pension or benefits whatsoever,
and I have no benefits whatsoever, add to that I have
to pay a ludicrous amount of rent, because some three
month ago I just could not afford the 4 months upfront
for a normal rent. (1 month rent + 3 months guarantee).

I was busy surviving, and could not promise when I
would be able to practically sent things. Last month,
I had the luck to sell a few "samples", but since the
12th of august, no sale whatsoever.

And what should I do ? Run to an investor or sponsor
and say :"look, I got ONE guy who is INTRESTED, and
MAY pay 50 WHOLE POUNDS for curing his CFS, so borrow
me some money, so I can get things organized ?

Sorry, first things first, you choose your own priority.


> I'd suggest that you either make the product
> available over here on reasonable terms, or you're
> just wasting your time, and antagonising the very
> people that you're trying to sell your cure to
> seems somewhat counterproductive.

It do not consider that my fault.

This is a real life situation, with a real life cure,
with real life participants.

I see people with ALS mobilising charity and collect
30.000 Euros for a cure in China, to get a bogus cure
from a chinese doctor.

On the other hand : I cannot possibly sustain a
"bussiness" that maybe will provide me 50 pounds in 9
months. That is a practical impossibility.

My wifi card costed more than that.

Spencer Spindrift

unread,
Sep 17, 2005, 10:15:30 AM9/17/05
to
Oh FFS hayek Fcuk off!

"Hayek" <hay...@nospam.xs4all.nl> wrote in message news:
| IanW wrote:
| > "Hayek" <hay...@nospam.xs4all.nl> wrote in message

| >> Are you completely out of your head ?

| >> I have A CURE. A C-U-R-E !

| > I think lots of people on here wonder why you keep

Hayek

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Sep 17, 2005, 12:59:14 PM9/17/05
to

Spencer Spindrift wrote:
> Oh FFS hayek Fcuk off!

Let it be.

UH.

Will Gortoa

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Sep 18, 2005, 6:32:55 AM9/18/05
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Hayek <hay...@nospam.xs4all.nl> writes

...and writes and writes and writes and writes and writes and writes
and...hurls a few rattles from his pram and then says he's
leaving...disappears for a month...returns...and writes and writes and
writes and writes...

You choose to hang around in here like a bad smell, when clearly we're
all fools. Have you not taken your own medication? I would've thought it
might cure you of us immediately. Bizarre.

This is a 'support' group - intended to do exactly what it says on the
tin. I've not been here for a good few years, but it saddens me to see
it so thin of regulars. It was an extraordinary, often vibrant community
in the previous millennium. I dare say it was probably the dysentery of
your ilk that may've stifled the 'support community'.

Shame. Like a moth to the flame...

Stay away from the light, Hayek, stay away from the light...

--
Will 'Or Is It' Gortoa

[IMPORTANT! Replace nospam with ollis for personal replies. THANKS. :)]

Will Gortoa

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Sep 18, 2005, 6:46:18 AM9/18/05
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While sat in the waiting room; Margot <margotl...@eurobell.co.uk>
writes

>Janie Thomson wrote:

>> Goodness, Margot, you're a real blast from the past - how are you?
>>
>Hi Janie - and everyone else!

:)

>I drop in here to read occasionally, but I only post about once a year
>- when something really annoys me (like Hayek!).

: 7

>I seem to have reached a plateau with my ME - not getting any better,
>but as long as I strictly control my sleep and activity, not getting
>any worse.

That's where I am, too, Margot. The frustration lingers underneath, the
knowledge that I have to maintain the regime/boundaries, but I'm working
[12 hours/week] in an extremely rewarding job, which I would never have
done had it not been for the, ahem, curse... So, I try and dwell on the
more positive aspects of our shared state. :)

My heart truly goes out to the people that I've seen post in here the
past few months, who are unfortunate enough not to have reached our,
almost blissful in comparison, stasis.

>Old friends have gradually drifted away over the years - they couldn't
>cope with me not being able to do "spontaneous" and also having often
>to cancel anything planned well in advance because of sudden onset of
>an unexpected symptom. And they all wanted to "help" at first - but not
>with the things I actually needed help with :-( - and I forget how many
>"miracle cures" have been recommended over the years

Did I just write that paragraph? ;)

> - does anyone seriously think that a daily can of Red Bull will cure
>ME?

Hayek. Albeit he probably decants it into another bottle first. : P

>So now I have found a new group of friends. We have lots in common - we
>sit around moaning about our aches and pains, we wistfully reminisce
>about the good old days when we were able to have a day out
>uninterrupted by an afternoon rest, we laugh when one of us has a
>"senior moment" because of the brainfog...yes, we have lots in common,
>except age - I'm 43, and the rest of them are 75+!

LOL! I wondered where you were heading with that paragraph, at first.
Me, I'm a danger seeker, though... I hang out with people 11-18...
Psychologically, the fact that they can make me feel decrepit is
probably less apparent than with your 'friends'. ;)

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