Dear Incubakers,
The bake sale is already this week:
Thursday, September 28th.Marta and Sarah (in copy) are organizing this sale raising money for research on a rare Noma disease!
Fill in the Incubakers schedule / calendar if you want to contribute with cake or coffee!
https://docs.google.com/spreadsheets/d/1-x3tqtX2ORA9JWZ0I2Xx6vAP2jBoMaICxWCao4p-M00/edit#gid=2009281645Noma is a terrible disease that should not exist anymore. Determined by socioeconomic factors rather than biological ones, it affects mainly malnourished children.
It starts with a simple gingivitis that, when left untreated, evolves to a gangrene that destroys the skin and bones of the face in only 2 weeks or less. Despite being treatable with antibiotics, the lack of knowledge and the poor economic situation of the children that it affects leads to a 90% fatality rate. The few who survive are left with scars for life, condemned to stigma and isolation.
The devastation of the disease is not matched by academic research. Fewer than 250 scientific articles have been published since the 1800s, leading to large knowledge gaps still remaining such as incidence or the exact etiology.
Noma Echoes is a research project that aims to shed light on noma in Mozambique, where cases have been identified by local informants, but where the last case officially declared dates from 2009. We aim to publish a case series of noma survivors, that serves as a leep to further research in Mozambique. We will visit healthcare units in the Zambezia Province, looking for noma survivors, and assessing the knowledge and practices around noma of health practitioners.
Noma is also neglected by donors and foundations, that's why Noma Echoes is financed by small donations like this bake sale.
Have a good day!
-- Anastasia Krasko, PhD student
Immunology Lab
Department of Experimental and Health Sciences (CEXS-UPF)
Parc de Recerca Biomèdica de Barcelona (PRBB)
Carrer Dr Aiguader, 88
08003 Barcelona, Spain
Tel: 34933160822
Fax: 34933160901