Stay away from Teratoma Support Foundation

11 views

Skip to first unread message

una....@att.net

unread,

Sep 21, 2007, 1:23:50 AM9/21/07

to teratoma-fre...@groups.google.com

On the English language Wikipedia, some users who claim to represent Teratoma Support Foundation and tera...@yahoogroups.com are now attacking me.

On http://health.groups.yahoo.com/group/teratomas/ they claim to "protect the integrity and privacy of our existing members as best we can", yet on Wikipedia they have repeatedly claimed that I was a member. So much for integrity and privacy! Maybe the key word is "existing", so they are free to attack their ex-members. By their public actions, these Teratoma Support Foundation people show a total lack of respect for their members.

Don't believe it? See for yourself. Below are URLs and direct quotes posted by these people on Wikipedia.

Una

http://en.wikipedia.org/w/index.php?title=User_talk:Hirohisat&oldid=158761564#Teratoma_Page, posted by user
Roxxee:
"this dispute is more about Una Smith's bad experience on a support group run by the owners of that website than with any material on the website itself"

http://en.wikipedia.org/w/index.php?title=User:Tcstart75&oldid=156808832,
posted by user Tcstart75:
"Una-- what is the problem? Are you afraid that people will not go to your site? Why do you feel the need to remove our link? We are not Spam and as a former member you know that."

[I am a very active Wikipedia editor and I remove a lot of link spam, but I am not the only editor who has removed their link and explained to them that in Wikipedia it is link spam.]

http://en.wikipedia.org/w/index.php?title=User:Tcstart75&oldid=156812364,
posted by user Tcstart75:
"Your previous behavior had you banned from Yahoo Groups. If our site is inappropriate, then yours is too."

["banned from Yahoo Groups" is a lie.]

http://en.wikipedia.org/w/index.php?title=User:Tcstart75&oldid=157811486,
posted by an anonymous user at IP address 193.200.150.45:
"Una, it's painfully obvious that this is the result of some personal vendetta you have against the Teratoma Support Foundation."

Tiffan...@gmail.com

unread,

Oct 22, 2007, 1:41:23 PM10/22/07

to Teratoma Free Discussion

Una-

I don't know you, but it's a shame you would purposely keep parents
from getting the information they need. I was one of the founding
members of the Teratoma Support Group. I'm too busy with 3 kids now
to be active in it like I once was, but the people there are a wealth
of information and very supportive. I only wish it had been around 11
years ago when I was dealing with this.