SCT babies and sleeping

[Pologirl]

It is good to see some activity on this group.

The Children's Hospital of Philadelphia has a new "recruiting" page
with a success story about a 7-pound SCT baby with a 3-pound, mostly
external teratoma (10 pounds in all). One of the issues for this baby
was the medical recommendation that all babies be put down to sleep
only on their back, to reduce the risk of sudden infant death syndrome
(SIDS). This baby cried and screamed and did not sleep unless the
parents held her.

We struggled with a similar problem. My SCT baby would sleep well
only on her stomach, before the surgery, after the surgery, and even
now, 3 years later. It is just how she sleeps best. While she was in
the neonatal intensive care unit (NICU) the nurses allowed her to
sleep on her stomach as long as she was hooked up to all the
monitors. Later, they allowed sleeping on her side, well propped. We
were supposed to keep her off her stomach but within days of coming
home she was able to roll from her side onto her stomach. We also did
a lot of reading about SIDS and infant sleep in general, and concluded
that poor sleep raised greater health risks than the risk of SIDS. We
settled on using a very firm mattress and putting a thick sheep fleece
under the bottom sheet. My SCT baby liked to be face down on the edge
of the fleece, with her head on the mattress.

Pehaps this will be helpful to other SCT babies and their families.

Pologirl

[cc]

my baby is the same, he wasput on his front to sleep in hospital and
now will sleep no other way i try not to worry the rules are always
changing on this subject anyway.
this site has been really helpfull im so clad i came agross it, i just
hope you saying its been quiet mean all babies are well.