age ranges for teen and adult levels
John Williams
All,
Just wanted to let you know my thinking as I’m setting up the age-based inclusion and exclusion criteria for the standardization samples. To remain consistent across the instrument, we should use the same setting-based rules from SPM-P and SPM for the SPM-2 Preschool and Child forms, specifically:
· Preschool:
o 2 year-olds are included as long as there is someone who knows the child well enough to complete the School form.
o 5 year-olds are included as long as they have not started full-day kindergarten.
· Child:
o 5 year-olds are included when they are enrolled in full-day kindergarten.
o 6th graders (i.e., 11-12 year-olds) are included only when 6th grade is part of an elementary school, not a middle school.
And then we can apply the same setting-based model to the Teen and Adult forms
· Teen:
o 12-year olds are included only if they are no longer in elementary school.
o Those over 18 are included only if they are still in high school (if no longer in school use Adult form)
· Adult:
o Those 18 and under are included only if they are no longer in high school (if still in school use Teen form)
This way of collecting the data is consistent with SPM in general, which highlights the importance of school setting as a marker of form-level appropriateness, and it also comports with other major assessment instruments. Another benefit is that we won’t have to set strict age ranges for Teen and Adult until after we collect the data; rather we can let the school setting help us establish what the final age ranges of the forms should be.
Let me know if you have any additional thoughts about this.
Just a reminder that tomorrow is my last day in the office, and I will be back Tuesday the 3rd.
John
From: John Williams
Sent: Wednesday, December 21, 2016 9:35 AM
To: spm-2-proje...@googlegroups.com
Subject: Re: clinical data comments
Thanks, everyone, for all your hard work these past few months. We're ready for data collection now, thanks to all this focused attention.
Have a great holiday, everyone!
John C. Williams, PhD
Licensed Clinical Psychologist
Project Director at WPS
-- sent via mobile device
On Dec 21, 2016, at 9:07 AM, Ateachabout via SPM-2 Project Workspace <spm-2-proje...@googlegroups.com> wrote:
Hi John,
Thank you for responding.
Our next meeting as authors is scheduled for Monday January 9.
We can discuss then how " to capture a broader population of caregivers" , perhaps via early intervention providers.
I'd like to take this opportunity to wish you and your team at WPS a wonderful Holiday!
Thank you for all your caring with this amazing project!
Cheers,
Diana
Diana A Henry, MS, OTR/L, FAOTA
Now working on
SPM for Infants & Toddlers
SPM for Teens
SPM for Adults
www.ateachabout.com
623.521.3646
Facebook: Henry Occupational Therapy
In a message dated 12/20/2016 5:03:23 P.M. US Mountain Standard Time, jwil...@wpspublish.com writes:
Thanks, all for your comments. Here are some additional thoughts and replies:
1. Low birthweight for gestational age: Thanks for the clarification. I was wondering which category you were thinking of. We can ask about all three: LBW (<2500g), SGA (>2SD below mean), and PB (<37 weeks).
2. Non-comorbid sensory group: Based on what you’ve described, this group may not materialize. If it were just a matter of infrequency we might catch a small group with effort and luck, but if their presence is obscured by a reimbursable diagnosis (essentially defining non-comorbidity out of existence) we won’t be able to identify them.
3. Adult sample size and age range: The SP had about 750 cases for the adult sample (ages 18-97), so why don’t we try for 900-1000 cases. We’ll have to define the age ranges for the Teen and Adult forms. We could keep the Teen form at 12-21, to account for students who were still in high school after age 18. Likewise, we might start the Adult form lower than 18, to account for minors living as adults (i.e., emancipated, not in school, etc) . We would just have to clearly state the criteria for choosing one form over the other, similar to what we do for 5-year-olds based on whether they are in kindergarten or not.
4. Standardization setting for I-T: I’m glad you mentioned this (in another email). Yes, SPM-P was standardized in homes (the Home form) and daycares (the School form) because the forms are setting-specific. The I-T Caregiver form, however, is not setting specific, so we can do both with the same form. As I recall, your goal for the clinical use of the I-T forms together is to generate sensory scores for the infant and the caregiver so that both could be considered during intervention, so we do need to capture a broader population of caregivers.
John
From: Ateachabout via SPM-2 Project Workspace [mailto:spm-2-proje...@googlegroups.com]
Sent: Monday, December 19, 2016 9:36 AM
To: spm-2-proje...@googlegroups.com
Subject: Re: clinical data comments
Hi John,
We finally had a chance to discuss your comments re the clinical data.
See our responses below in black
Thanks,Diana with Cheryl and Heather.
In a message dated 12/7/2016 6:12:01 P.M. US Mountain Standard Time, jwil...@wpspublish.com writes:
Hi again,
Thanks for your patience on my reply to this email. I have a short break while I wait for the Teen editorial work to happen, so I wanted to get back to you on the issue of clinical data groups.
Let me start with a little background and then move on to reply to each of your numbered comments/questions.
Clinical data collection for us is primarily opportunistic – although we will be “on the lookout” for certain groups, the final samples are determined largely by what we were able to find. What this means in practice is that we tend to get the most common disorders found in clinical settings. For the SPM-2 in particular, this means that we will probably wind up with a sizable “heterogeneous” clinical sample, along with a substantial ASD sample. We rely on our authors to identify potential data collectors with access to any special populations.
Here are my replies to your comments
1. Regarding the different clinical groups for different age ranges:
a. We will use you “add” and “keep” lists as specific check-boxes on the form so that data collectors can identify those cases directly. We will also have an “Other disorder, please specify” option.
b. Can you elaborate on what “low birthweight for gestational age” means?
LBW infants were defined as those weighing <2500 grams at birth, PB infants as those born before 37 weeks of gestation and SGA as those with a birth weight for gestational age more than 2 standard deviations (SD's) below the mean according to the Swedish fetal growth curve.
Is this what you were asking?
2. We also think that non-comorbid SI cases are going to be very difficult to find under the best of circumstances.
a. If we apply very strict criteria to the evaluator we may limit the cases even more. In either case, we may have to live with a very small sample.
Yes, very difficult …also because insurance coverage usually requires other diagnoses.
b. As I mentioned above, we usually rely on authors to provide us contacts for special groups, but that may not help much in this case as non-comorbidity really isn’t a population in itself that you could go out and look for (unless you know folks who specialize in this).Yes, there are many clinics across the USA who use SI treatment. However if they take insurance, they will often have a secondary diagnoses. Or sometimes (as in Cheryl’s clinic in California) they don’t use the SI diagnoses at all, because if SI is in the diagnosis the kids won’t be covered.
c. We might just make it a check-box like “This individual has an identifiable sensory processing or sensory-integration [disorder?] with no comorbid conditions.” Perhaps you all can think of the exact language you think would be most useful here.
Language you are using above is fine. Using sensory processing disorder is fine too.
However you may not find many cases where this will fit.d. For every clinical case, we ask about the origin of the diagnosis, and we rate the validity of the diagnosis based on the what we know about how it was generated and what corroborating information we are given, and then we decide how to use the data. For example, from strongest to weakest:
What do we do about diagnoses that don’t have a tool, such as FAS that is diagnosed by an MD?i. Includes standard scores on relevant measures (SIPT, Connors, ADOS, etc) administered concurrently with the research form.
ii. Includes standard scores on relevant measures (SIPT, Connors, ADOS, etc) administered within a specific period of time.
iii. Is based on relevant measures, without scores, administered within a specific period of time.
iv. Is based on the expertise or credentials of the assessor (OT, SP, etc.), without assessment information, diagnosed within a specific period of time.
Could you please add MD (doctor) here too?v. An administrative or historical diagnosis. This type of diagnosis would not be used for a specific clinical group study, but could be used for a heterogeneous clinical group if we were able to understand from the data collector how it was generated, but most likely it would just become a standardization case.
3. For teens and adults, we would look for clinics or institutions that serve those age populations. Like 2.d.v above, we would rate a self-reported diagnosis based on the validity and recency of the data the participant reported. You may know more about the size and accessibility of adult sensory disorder populations than we do. I will have to come up with some standardization sample targets for this group, which I will base mainly on the Sensory Profile adult studies relative to the other age groups (which I based on SPM, SPM-P, and SP).
We assume you will have larger sample groups than what they used in the Sensory Profile.
We were proud to have them larger in the SPM.
Let me know what you think of all that, and whether you have any further suggestions or comments for us.
John
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Ateac...@aol.com
Now working on
SPM for Infants & Toddlers
SPM for Teens
SPM for Adults
www.ateachabout.com
John Williams
Sorry, I just spotted a typo: in the Preschool section, I meant to say “2 year-olds in daycare.” That’s how it’s given in SPM-P.
John
Ateac...@aol.com
Glennon, Tara J. Prof.
And to the best team ever, I hope that you all have a joyous holiday and a restful vacation!
Tara
Tara J. Glennon, EdD, OTR/L, FAOTA
Professor of Occupational Therapy
Quinnipiac University
275 Mt. Carmel Ave | MNH-362L | Hamden, CT 06518
tara.g...@quinnipiac.edu | 203-582-8293
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From: spm-2-proje...@googlegroups.com <spm-2-proje...@googlegroups.com> on behalf of John Williams <jwil...@wpspublish.com>
Sent: Thursday, December 22, 2016 4:50 PM
To: spm-2-proje...@googlegroups.com
Subject: RE: age ranges for teen and adult levels
Thanks, everyone, for all your hard work these past few months. We're ready for data collection now, thanks to all this focused attention.
Have a great holiday, everyone!
John C. Williams, PhD
Licensed Clinical Psychologist
Project Director at WPS
-- sent via mobile device
Hi John,
Thank you for responding.
Our next meeting as authors is scheduled for Monday January 9.
We can discuss then how " to capture a broader population of caregivers" , perhaps via early intervention providers.
I'd like to take this opportunity to wish you and your team at WPS a wonderful Holiday!
Thank you for all your caring with this amazing project!
Cheers,
Diana
Diana A Henry, MS, OTR/L, FAOTA
Now working on
SPM for Infants & Toddlers
SPM for Teens
SPM for Adults
Thanks, all for your comments. Here are some additional thoughts and replies:
1. Low birthweight for gestational age: Thanks for the clarification. I was wondering which category you were thinking of. We can ask about all three: LBW (<2500g), SGA (>2SD below mean), and PB (<37 weeks).
2. Non-comorbid sensory group: Based on what you’ve described, this group may not materialize. If it were just a matter of infrequency we might catch a small group with effort and luck, but if their presence is obscured by a reimbursable diagnosis (essentially defining non-comorbidity out of existence) we won’t be able to identify them.
3. Adult sample size and age range: The SP had about 750 cases for the adult sample (ages 18-97), so why don’t we try for 900-1000 cases. We’ll have to define the age ranges for the Teen and Adult forms. We could keep the Teen form at 12-21, to account for students who were still in high school after age 18. Likewise, we might start the Adult form lower than 18, to account for minors living as adults (i.e., emancipated, not in school, etc) . We would just have to clearly state the criteria for choosing one form over the other, similar to what we do for 5-year-olds based on whether they are in kindergarten or not.
4. Standardization setting for I-T: I’m glad you mentioned this (in another email). Yes, SPM-P was standardized in homes (the Home form) and daycares (the School form) because the forms are setting-specific. The I-T Caregiver form, however, is not setting specific, so we can do both with the same form. As I recall, your goal for the clinical use of the I-T forms together is to generate sensory scores for the infant and the caregiver so that both could be considered during intervention, so we do need to capture a broader population of caregivers.
John
From: Ateachabout via SPM-2 Project Workspace [mailto:spm-2-proje...@googlegroups.com]
Sent: Monday, December 19, 2016 9:36 AM
To: spm-2-proje...@googlegroups.com<mailto:spm-2-proje...@googlegroups.com>
Subject: Re: clinical data comments
Hi John,
We finally had a chance to discuss your comments re the clinical data.
See our responses below in black
Thanks,
Diana with Cheryl and Heather.
To post to this group, send email to spm-2-proje...@googlegroups.com<mailto:spm-2-proje...@googlegroups.com>.
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Heather Kuhaneck
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