Sotos Syndroms Support Association
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HikingStick
May 27, 2009, 3:22:55 PM5/27/09
to Sotos Syndrome Families (MN)
My wife and I decided to join the Sotos Syndrome Support Association
(SSSA). We received our new member packet and their most recent
newsletter. We won't be able to attend the annual conference this
year, because we already have something planned for that weekend.
We'd like to attend next year.
When we got our membership packet, I noticed that it listed a few
other Minnesota families that are dealing with Sotos Syndrome. I
wonder if we might be able to get a picnic together in a location that
would be central to all of us.
(SSSA). We received our new member packet and their most recent
newsletter. We won't be able to attend the annual conference this
year, because we already have something planned for that weekend.
We'd like to attend next year.
When we got our membership packet, I noticed that it listed a few
other Minnesota families that are dealing with Sotos Syndrome. I
wonder if we might be able to get a picnic together in a location that
would be central to all of us.
Jenny Moretter
May 27, 2009, 3:25:06 PM5/27/09
to sotos-syndrom...@googlegroups.com
What a great idea!! We live in Shakopee but are more than willing to travel a little ways to meet other families.
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