Re: [scintillating-scotoma:434] Digest for scintillating-scotoma@googlegroups.com - 2 updates in 1 topic

[Dana Bauer]

I found that a Butterbur extract called "Petadolex" very helpful. My SS decreased from about six per month to one or two. It has to be Petadlex. Regular Butterbur did nothing for me. I read Petadolex is made from plants grown in Germany. Anyway, it might be worth a try. I stared with three per day, but find that two per day is enough

On Fri, Jul 9, 2021 at 11:42 PM <scintillat...@googlegroups.com> wrote:

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• [scintillating-scotoma:420] Re: Scintillating scotomas of increasing frequency - see a doctor about it? - 2 Updates

[scintillating-scotoma:420] Re: Scintillating scotomas of increasing frequency - see a doctor about it?

Phluffhead <che...@gmail.com>: Jul 09 09:26AM -0700 Adding my story here as well, having some very similar experiences. I have had a scotoma 1-2 times a year since about age of 12, tried hydration which seemed to reduce them. I would sometimes get a post headache and sometimes nothing. Sometimes they would include a brief period of a numb arm or one side of my face during the scotoma, the visual scotoma lasts about 30-45 mins, and I could also have confusion and difficulty speaking. But now that i am almost 50 they have ramped up significantly, in the last two weeks I have had 8 scotomas, two on one day even. I really have no idea what is causing it and neither do my eye or family doctor, they just suggest to keep trying things to rule them out and see what if anything can help. Hyrdation, blood sugar management, magnesium, fish oil, Ive tried them all.One doctor advised I immediately take 3-4 advil when I feel the scotoma coming on. I have no idea if that helps or not- but it likely helps the delayed headache severity. Recently I have had a sore neck and am not sure if its the scotomas causing it or possibly the stiff neck causing the scotomas. Has anyone found these could be caused by a physical issue with your upper neck? I recently read about migraines can be triggered by this.   On Friday, July 2, 2021 at 5:39:51 AM UTC-5 chris-uk wrote:

Andrew Hewitt <raga...@gmail.com>: Jul 10 02:37AM +0900 While I don't have ss much anymore it was my experience that my upper neck, in the back at the base of my skull would always feel tight and constricted whenever I was going through an ss episode or migraines. So yea, for me it comes with the territory. My ss always came after strenuous exercise/sports and if I could point to anything that I think contributed to them slowing down and then going away it would be just getting more sleep, drinking more water and avoiding sugary caffeinated drinks. It's just a guess though. However if I go on a bender and don't sleep much for a few days I definitely start to feel headache-y and will even have an ss episode but not followed by a migraine. In the past I would always get a terrible migraine after the ss subsides.   - Andrew

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