Mepron for Lyme? CoQ10 bad for Lyme?Ambien?

A.J.

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May 5, 2000, 3:00:00 AM5/5/00

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Yesterday I went to the doctor and was put on Mepron and Zithromax. I
am getting the prescription today. I know about the Zith but I am not
that familiar with the Mepron. Anybody had any luck with it? It's in
liquid form - how bad does it taste.

When I looked Mepron up on the internet, the description mentioned
that it was similar in structure to ubiquinone, which is Co-Enzyme
Q10. Before I even spoke to the doctor and he decided to try me out
on the Mepron, I talked to the very nice nurse practioner in his
office. She asked me about what supplements I take, and said she was
glad to hear that I wasn't taking CoQ10 because it allows the Lyme
bacteria to protect itself from antibiotics, or something like that.
She said my vitamins C and E and other supplements were fine. Anyone
ever hear this about CoQ10? I thought it curious that I should be
warned away from CoQ10, and 15 minutes later put on a med that
resembles CoQ10 in structure. Anyone have a good explanation for
this? I would love to hear it.

I'm also going to take Ambien for sleep, although probably not on a
daily basis, just as needed. Anyone had any experience with Ambien?
TIA.

Amy in CT

RMAgricola

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May 5, 2000, 3:00:00 AM5/5/00

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Mepron and Zithromax combination are usually prescribed for Babesiosis.

Martha A.

A.J.

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May 5, 2000, 3:00:00 AM5/5/00

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It got hot today and I am feeling lousy and brainfogged and forgot to
say that I tested negative for Babesiosis. However, my doctor has
been talking to another LLMD( i think a guy from Pennsylvania) who
claims that Mepron is helping Lyme patients even without Babesiosis.
He thought I should give it a try, and that was why I was wondering if
anyone else had found that Mepron helped their Lyme symptom, or heard
anything about these findings.

Amy in CT

Kidsmom

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May 5, 2000, 3:00:00 AM5/5/00

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Amy,

My son is on Mepron and Ziht. It is bright yellow and he says it
tastes slimey. Not his favorite thing in the world. The tests for
Babesia are only about 50% accurate -like LYme testing. This is
again one of those things you go by the symptoms not the tests.

Our LLMD had put my son on CoQ10 originally and also had me put
in my notes that if he ever took Mempron to be sure and cut out
the CoQ10. I don't know what the reasoning is, but the two are
not to be taken together. It sounded like the CoQ10 would be
alright if you weren't taking Mepron though.

We are trying to figure out a way of getting it down. Right now
it is looking like a VERY long 3 weeks!
Rae

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KJRU

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May 6, 2000, 3:00:00 AM5/6/00

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Amy,
I tested negative for babesiosis, but had so many of the symptoms that my
doctor put me on Mepron and Zithro. It helped a lot and then after a couple
months back on orals for lyme, the fevers returned and I did another round of
Mepron/zith.
I had always thought the fevers were part of the Lyme but they got so bad and
were around the clock along with terrible chills and all over aching.
As far as the doctor who said it helped Lyme too, I don't know about that. I
would be more likely to think the ones it is helping have babesiosis but just
didn't test positive.
The Mepron is ugly! It taste terrible and is a lovely bright school bus yellow!
Hang in there with it. It has helped me and I hope it helps you.

~kj~
sometimes success is just a matter of hanging on

KJRU

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May 6, 2000, 3:00:00 AM5/6/00

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I forgot to mention the ambien, I take it for sleep too. I really like it
because I have no hangover feeling the next day like I do with others. It
doesn't keep me asleep as long or as sound but is helpful in falling asleep
which is hard for me to do.

Monica Frate

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May 7, 2000, 3:00:00 AM5/7/00

to A.J.

what about CoQ10? i take 200 mgs. a day and its the bestthing i take! i
have a huge problem wit my teeth in this lyme mess also, and somehow
coq10 also keeps my mouth intact!
coq10is great for me
-Monica

funnyb

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May 7, 2000, 3:00:00 AM5/7/00

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CoQ10 is supposed to help people with fibromyalgia. I read that
it was not to be used when you have
Babesiosis, because it feeds the Babesia, but I never heard it
could be bad for Lyme disease. I take it too,
but I noticed that it only makes a difference (I feel better)
when I am in the second part of my cycle. I have
no clue for this... Any idea anybody?

Sylvie

xxxx

A.J.

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May 7, 2000, 3:00:00 AM5/7/00

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Hmmm. I wasn't told that CoQ10 was bad for babesiosis, only Lyme. No
one else seems to have heard this. In fact, a number of people seem
to be taking CoQ10. I don't know what to make of the warning I was
given. I go back to the doctors in just under 3 weeks from now. When
I do I will ask about CoQ10 and see if I can get this warning
clarified. Anything I learn I will share on this group.

Amy in CT

Mercuryspice

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May 17, 2000, 3:00:00 AM5/17/00

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amy,
was the drs name dr bach?
let me know
mercur...@aol.com

brite...@hotmail.com

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May 18, 2000, 3:00:00 AM5/18/00

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Mepron and zith are typically prescribed for babs or suspected co-
infection. The mepron is yucky neon yellow and the taste is ... well
what liquid med does taste good? Looks like they could improve the
taste given the cost at $600.00 a bottle.
The treatment is usually 21 days on, 7 off with a possible repeat. I
did this 3 times. I saw some improvement in some symptoms. You will
SWEAT a lot. Mepron is similar to a drug used to treat mylaria.
Hopefully 1 course will do you and you will see positive results.
You'll feel pretty wiped out from about 5 or 6 days into it for a
couple of weeks. And I promise, you will sweat - mostly in your
sleep. Good luck.

In article <TCITOeIodF8w1W...@4ax.com>,

A.J. <live...@snet.net> wrote:
> Yesterday I went to the doctor and was put on Mepron and Zithromax. I
> am getting the prescription today. I know about the Zith but I am not
> that familiar with the Mepron. Anybody had any luck with it? It's in
> liquid form - how bad does it taste.
>
> When I looked Mepron up on the internet, the description mentioned
> that it was similar in structure to ubiquinone, which is Co-Enzyme
> Q10. Before I even spoke to the doctor and he decided to try me out
> on the Mepron, I talked to the very nice nurse practioner in his
> office. She asked me about what supplements I take, and said she was
> glad to hear that I wasn't taking CoQ10 because it allows the Lyme
> bacteria to protect itself from antibiotics, or something like that.
> She said my vitamins C and E and other supplements were fine. Anyone
> ever hear this about CoQ10? I thought it curious that I should be
> warned away from CoQ10, and 15 minutes later put on a med that
> resembles CoQ10 in structure. Anyone have a good explanation for
> this? I would love to hear it.
>
> I'm also going to take Ambien for sleep, although probably not on a
> daily basis, just as needed. Anyone had any experience with Ambien?
> TIA.
>
> Amy in CT
>

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Before you buy.

Pittfarm

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May 18, 2000, 3:00:00 AM5/18/00

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My husband had Lyme and his LLMD put him on COQ-10! I've never heard of what
you are talking about....

Wendy

A.J.

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May 18, 2000, 3:00:00 AM5/18/00

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When I go to the doctor's next week I'm going to ask what the thinking
behind forbidding CoQ10 to Lyme patients is. No one else has heard of
this, so I don't understand it either. Any new info I get I will
post.

Amy in CT

A.J.

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May 18, 2000, 3:00:00 AM5/18/00

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On Thu, 18 May 2000 05:31:37 GMT, brite...@hotmail.com wrote:

>
>
>Mepron and zith are typically prescribed for babs or suspected co-
>infection. The mepron is yucky neon yellow and the taste is ... well
>what liquid med does taste good? Looks like they could improve the
>taste given the cost at $600.00 a bottle.
>The treatment is usually 21 days on, 7 off with a possible repeat. I
>did this 3 times. I saw some improvement in some symptoms. You will
>SWEAT a lot. Mepron is similar to a drug used to treat mylaria.
>Hopefully 1 course will do you and you will see positive results.
>You'll feel pretty wiped out from about 5 or 6 days into it for a
>couple of weeks. And I promise, you will sweat - mostly in your
>sleep. Good luck.

Thanks,

I've been taking the Mepron/Zith for 15 days now. I am not sweating
any more than usual. I have been waking up feeling hot, even in a
fairly cool room. I do feel even more tired and achy than usual, and
I'm also having some strange itching spells, but I can't tell yet
whether this is a herx or just a bad flareup. My neck is feeling
really stiff and pressured lately, although it never feels right.

The Mepron is really disgusting. To me it tastes like bubble gum +
Pepto Bismol. I think whoever thought up adding fake candy flavoring
to medicine (at least for adults) should be tarred and feathered. As
far as I am concerned, it just makes the taste worse. I'd rather have
the med straight up. I don't expect medicine to taste good, so why try
to fool me?

Amy in CT

Kidsmom

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May 19, 2000, 3:00:00 AM5/19/00

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My son has come up with a couple good hints to get the Mepron
down. First is to keep it refridgerated. It doesn't taste half as
bad when it is cold. He also puts it in a cleaned syring
(5ml=1tsp) and gets it to the back of his tounge. It doesn't get
a chance to hit your taste buds this way.
of course, shaking it up well enough is the first key.

A.J.

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May 19, 2000, 3:00:00 AM5/19/00

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The syringe would probably be more trouble than it's worth for me, but
keeping the Mepron refrigerated is an excellent idea. I'm going to do
that right away. Thanks.

Amy in CT

RMAgricola

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May 19, 2000, 3:00:00 AM5/19/00

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Dear Amy,

Cold Mepron is really not bad. Much better than warm Mepron. The thing a
syringe is good for is measuring. I know people who used a kitchen spoon and
did not have enough Mepron to last 21 days.

Martha A.

A.J.

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May 19, 2000, 3:00:00 AM5/19/00

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I'm getting a little concerned about running out myself. I've been
using a measuring spoon, not regular flatware, but still.... The
problem is, I don't have a syringe. I guess the pharmacy would have
it. I like pills *so* much better than liquid.

Amy in CT

Jems White

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Nov 23, 2023, 1:46:09 PM11/23/23

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health care

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Dec 20, 2023, 12:13:56 PM12/20/23

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