There *is* a scientifically valid test for all stages of Lyme
Mort Zuckerman
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Subject: There *is* a scientifically valid test for all stages of Lyme
Date: Nov 11, 2009 8:56 AM
ARTICLE BELOW BY SOME SAD SACK
MOTHER OVER HER DAUGHTER'S ILLNESS
===================================
It's US Patent 5, 618, 533.
This test, developed in 1991 by
Yale, meets the FDA rules for
http://patft.uspto.gov/netacgi/nph-Parser?Sect1=PTO1&Sect2=HITOFF&d=PALL&p=1&u=%2Fnetahtml%2FPTO%2Fsrchnum.htm&r=1&f=G&l=50&s1=5,618,533.PN.&OS=PN/5,618,533&RS=PN/5,618,533
a valid method. Now, the first
problem with it is that probably at
least half of all the sick people in
this country have the other Relapsing
Fevers and would need a multiple
recombinant band 41 (flagellin) test from
several of at least the major perps:
http://www.ncbi.nlm.nih.gov/Taxonomy/Browser/wwwtax.cgi?id=138
And the second major problem is that
once people's immune systems are
wrecked from chronic exposure to
the shed Osps:
http://www.actionlyme.org/Pam3Cys_Version15.htm
Then you have to test for everything
else (Epstein-Barr, Cytomegalovirus,
this new Mouse Leukemia virus, mycoplasma
etc). *And* you have to worry about
that chronic Lyme (and it is a permanent
infection, as demonstrated by the new
Johns' Hopkins grant)
http://www.actionlyme.org/BRAIN_PERMANENT.htm
victims becoming the new Typhoid Marys
as regards Tuberculosis:
http://www.actionlyme.org/FUNGAL_VACCINES.htm
http://www.actionlyme.org/Pam3Cys_Version15.htm
So, it's a huge problem, entirely created
by Yale, since they also own the patent
for LYMErix, and this is the reason
Steere went to Germany to falsify the
diagnostic standard:
http://www.actionlyme.org/CRYMEDISEASE_CHP3_B.htm
Who else Steere was working for (Kaiser
and the other BigIns)? Well, that's
for the Justice Department to figger out.
Oh, that's the final problem.
No Justice.
http://www.actionlyme.org/USDOJ_COMPLAINT_RICO.htm
Who knew?
Not me. I am not a lawyer.
I just figgered a fact was a fact.
Now the whole country's relearning
what FACT means, the hard way.
Thanks to the USDOJ.
Kathleen M. Dickson
http://www.relapsingfever.org
============================================
http://www.thewrap.com/blog-entry/lyme-disease-sufferers-under-our-skin-essential-9930
November 10, 2009, 5:02PM CST
By: Joanna Kerns (as told to Steve Pond)
For Lyme Disease Sufferers, 'Under Our Skin' is Essential
(“Under Our Skin” screens Wednesday night at the Arclight Sherman Oaks
as part of theWrap Screenning Series. Kerns will join director Andy
Abrahams Wilson for a Q&A after the screeing.)
My daughter Ashley is 31. She’s an attorney. She went to law school.
She passed the bar. She made the Law Review. She was published.
And now she has trouble reading a page in a book. She can’t drive, and
three months ago she had to quit her job because she couldn’t stay
awake, and was in so much pain she couldn’t function.
That is what Lyme disease does. It’s a silent killer, a real disease
that can ruin you life. And until the medical community opens up and
starts looking at it in a different way, it will continue to plague
us.
I’ve been reluctant to talk about this until now, because my daughter
is the one who’s sick, not me. But when I saw Andy (Abraham S.
Wilson)’s film “Under Our Skin,” I thought, oh my God, this film needs
to get a lot of attention, because that’s the only way things are
going to change.
Ashley’s story started when she was about 12 years old. From that age
on, she suffered from intense joint pain that would migrate from joint
to joint for no reason. She also had debilitating fatigue, and
insomnia; when she did sleep, it wasn’t refreshing sleep. She was able
to overcome it at times, but she would always have flare-ups.
From everything I read, I initially thought it was Lyme disease, and
we had her tested many times. But she was being tested with the ELISA
test, which we now know is a substandard test that only shows the Lyme
spirochete in the early stages of exposure.
Also, the medical community in California didn’t want to even
entertain the idea of Lyme. Ashley ran into every conceivable
diagnosis. Doctors told us that she was overweight, that she had a
little bit of hyper-mobility, that it was all in her head.
Right: it’s all in her head. You get sick, you give up a job you’d
worked hard to get and where you earn a good living, you can’t think,
and people are telling you it’s all in your head? On top of the pain
and fatigue that she already felt, that caused her anguish and
heartache and depression.
We didn’t get a proper diagnosis until recently, when I met a woman
who had gone to India for treatment of chronic Lyme disease. Through
her, I got to a doctor who gave Ashley a test that is looked down upon
by the traditional medical community, and she tested strongly positive
for Lyme.
She’s probably had it for 18 years, and she’s very, very ill right
now. The only thing that’s been proven to cure Lyme is long-term
antibiotics, but Ashley is so weak that they haven’t even started her
on the antibiotics. She’s been doing a very strong homeopathic regimen
to boost her immune system first, and then she’ll probably be on an IV
and have to shoot antibiotics on a daily basis. And the thing is, we
don’t know what will happen with insurance. So far, so much of this is
outside of what insurance will pay for.
Unfortunately, I don’t think it’s changing on the health-care front.
My doctor in Santa Barbara says he’s diagnosed three patients in the
last six months with Lyme disease, but there’s a whole group of
doctors out there who say the same thing: it doesn’t exist, there’s no
such thing as late-stage Lyme. It’s a very political disease, and the
only way it’s going to change is if a film like ‘”Under Our Skin” gets
out there.
In my profession, I also see that this is an issue actors don’t want
to talk about. If you’re a working actor and you have Lyme disease,
you’re scared that the insurers who work on movies and TV shows won’t
insure you. I think Parker Posey recently had to pull out of an off-
Broadway show because she’d been diagnosed with Lyme, but she’s one of
the few people who’s been open about it. And that needs to change.
So many people have stories like this, and I hear more of them every
time we screen the movie. We’re in such trouble with health care in
this country, because the profit margins that all these medical
institutions demand are just getting in the way of people getting
better. And until the medical community opens up and looks at things
in a different way, and provides money for research, things won’t
change.
Why is there such resistance to going down this road? I don’t know.
All I know is that we’re going to do everything I can to get Ashley
better. And that means supporting important works like Andy’s film,
going wherever we have to go, and seeing whoever we have to see.
Source URL: http://www.thewrap.com/blog-entry/lyme-disease-sufferers-under-our-skin-essential-9930
Links:
[1] http://www.thewrap.com/blog/joanna-kerns
[2] http://www.jemsekspecialty.com/shownews.php?id=13
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