signs for Nov 9th
Ballyhoo nj
at this protest? ...are we focusing on any one point about Lyme .... or does
'anything goes' work as far as our posters and signs?
I thought of a great sign the other day... but can't remember it now! :(
of course, if I'd written it down, then I wouldn't remember where I put the
note....
Kathleen
These are not slogans, these are
some of the issues.
ALDF/IDSA is attempting to define the
disease to fit the intended treatment.
ALDF/IDSA are the whores of Managed
Care.
The MD harrassment issue would not
be an issue if certain SUNY persons
did not have bogus test kits to sell.
The ALDF/IDSA members admit they
do not know what we are infected
with, therefore how can they know
what will cure us?
Treatment does not equal cure.
These kinds of abuses threaten all
persons with illnesses; Spinning the
illness to fit the intended financial
outcome.
Lyme has shown us that the practice of
medicine has abandoned the goal of achieving
health improvement and now seeks patents and
commercialization of healthcare methods and
products, and servitude of Managed Care Goals.
25 years of Rheumatology managing an
Infectious Disease has gotten us nothing
but widespread disability.
Denying us treatment that alleviates our
symptoms is a violation of the International
Human Rights Declaration, which the US ratified.
Managed Care is Class Oppression.
che...@aero-vision.com
> Besides showing solidarity... what type of message are we trying to
get across
> at this protest? ...are we focusing on any one point about Lyme ....
or does 'anything goes' work as far as our posters and signs?
> I thought of a great sign the other day... but can't remember it
now! :(
> of course, if I'd written it down, then I wouldn't remember where I
put the
> note....
>
Hi!
Thanks for asking!
Those patients who have been helped directly or indirectly by Dr. B.
should show this on their signs. Pro-Dr. B. posters.
Another approach for signs is how Lyme has affected you or a loved one.
How Lyme is serious and disabling, personal stories, etc.
For this event, we are recommending against anti-OPMC posters. Keep in
mind that this is a "support rally".
=o)
Cheryl
PS Lookin' forward to hearing that sign if you think of it. ;o)
Sent via Deja.com http://www.deja.com/
Before you buy.
sarah...@my-deja.com
Absolute Minimum Mortality:
17 DEAD IN THE YEAR 2000
David Thomas, 18
Christy Lambeth, 19
AND 15 MORE!!!
_______________________________
___________________________________________________________________
Should the signs focus on the political stuff happening>?
Questions for the NY People-in-Charge!!!
Is this like the Hotel Pierre>? Do you want
people to dress really nicely or to wear green>?!
Black!<>?! Costumes>!?>?!>?!>? Let us know*)!)*!
nimue
great) sign.
sarah...@my-deja.com
Too bad I can't use it (really).
As of this morning it is changed to:
Absolute Minimum Mortality:
18 DEAD IN THE YEAR 2000
David Thomas, 18
Christy Lambeth, 19
AND 16 MORE!!!
Kathleen
>
> Too bad I can't use it (really).
> As of this morning it is changed to:
>
> Absolute Minimum Mortality:
> David Thomas, 18
> Christy Lambeth, 19
>
Another one?
sarah...@my-deja.com
kathleen...@snet.net wrote:
> Another one?
>
Yes, Gornell Smith, 71, of Arkansas. I haven't gotten an Obituary yet
or death certificate, but I have ascertained that facts within the
letter from his niece, which arrived this morning, are correct as to
some essentials. I do know how to find some things out here & there- I
don't just acccept something as being true- as awful as that sounds-
with people like McSweegan out there I independently verify what is
given to me.
The List of 18 People WHo Have Died from Lyme Disease in 2000
David Lee Thomas, 18
On May 18, 2000, David Lee Thomas of Tinton Falls, New Jersey, died
after a long battle with Chronic Lyme Disease. David was a member of
the varsity swim team, the Baptist Church of Red Bank and Monmouth High
School. He was 18 years old.
Miss Christina Marie Lambeth, 19
Her Obituary:"Miss Christina Marie, 'Christy' Lambeth of Winston-Salem
died Thursday, February 10, 2000 after losing the battle to Lyme
disease. She was born July 8, 1980, in Forsyth County. Christy was a
member of Hopewell Moravian Church. She was preceded in death by her
grandfather, Rex Louis Holder Sr. and her grandmothers Rose Marie
Church Holder and Willa Dean Lambeth. Surviving are her mother and
father, A. Dean and Betty Holder Lambeth, and her sister, Courtney
Michelle Lambeth. Funeral services will be held 2 pm Sunday at Hopewell
Moravian Church. Christy will lie inside at the church 30 minutes prior
to service. Burial will follow in Parklawn Memorial Gardens. Memorials
may be made to the Lyme Disease Foundation in her memory. The family
expresses deep appreciation to God, Hopewell Moravian Church, friends
and family that have stood by and supported us through Christy's long,
hard struggle.
June Atkins, 77
JUNE L. ATKINS··A memorial service will be held at a later date for
June L. Anderson Atkins, 77, Oley, who died July 19, 2000 at the
Berkshire Center, 5501 Perkiomen Ave., Exeter Township, where she had
been a patient. ··She was born in Reiffton and was the wife of George
T. Atkins for 45 years. ··Atkins was a graduate of the Reading Hospital
School of Nursing and worked at several hospitals before joining the
U.S. Navy as an RN. She served at various Naval Hospitals both in the
U.S. and overseas and is a Korean War Veteran. She resigned from the
Navy as a Lieutenant USN (RN) to become a homemaker. ··She was vice
president and board member of the Reading Box Co. Inc.
··A member of St. Gabriel’s Episcopal Church, Douglassville, she was a
Sunday school teacher for many years. ··She belonged to many
organizations including the American Legion, Oley Post 878, Historical
Society of Berks County, serving for several years as a Docent. She was
also vice president of Youth Education Valley Forge Chapter of Freedoms
Foundation, for many years. · In addition to her husband, she is
survived by three children, Lance Atkins, Sinking Springs, Jennifer L.
(Atkins) Lehr, Sinking Springs and Brent Atkins, Exeter Township, eight
grandchildren and four sisters. ·Atkins body is being donated to
medical research for study of Vascular Dementia and Lyme Disease from
which she died. ··In lieu of flowers, donations may be made to the
Historical Society of Berks County, 940 Center Ave., Reading, PA 19601
Chantal Semans, mid-50's
Chantal Semans of Big Bear, California passed away on January 11, 2000
due to complications of Lyme disease. She died in full isolation
because she had an antibiotic- resistant non-treatable strain of Lyme.
Kathy Cavert, 51
Passed away Feb. 8, 2000 Kathy Cavert was the founder of the Midwest
Lyme Disease Association and publisher of LymeAide, a publication
devoted to helping victims of Lyme disease. Kathy worked tirelessly
helping thousands of victims with Lyme disease. She received countless
calls from people needing help and she was always there for them
answering their questions and mailing them information. Every caller
received information from deep inside her heart. She cared deeply about
helping people and wanted to further the understanding of the
seriousness of Lyme disease. Kathy Cavert had been suffering from late
Lyme disease for many years. Sunday night she entered the hospital
emergency room fighting severe pain. On Monday, February 7, her
condition declined and she became delirious. She was placed on a
ventilator and then slipped into unconciousness today, February 8.
Kathy Cavert passed away with her fiance, John, at her side. Kathy was
51 years young.
Gayla Diane Keyes, 52
July 18, 1947 - February 25, 2000 Gayla Diane Keyes, age 52, died from
complications of Lyme disease on February 25, 2000, in Mounds View,
Minnesota.
Everett 'Ed' Francis Ives, 53
OBITUARY: IVES Everett "Ed" Francis Ives, 53, formerly of Richmond,
died after a long battle with Lyme disease on July 29, 2000 in Vero
Beach, Fla. Born in Troy, N.Y., he was a caring son to Lucy and the
late Everett Ives; devoted husband and best friend to Sophie Stanley
Ives; brother to Diana Ives Virano and her husband, Vince; loving
father and stepfather to Rhonda Ives, Lottie Ives Zoeckler and her
husband, Dennis, Cornelius Stanley and his wife, Leanne, Phoebe Stanley
Alexander and her husband, Craig, the late George Stanley, Arthur
Stanley and his wife, Emma, Henry Stanley and his wife, Bella and
Samuel Stanley and his wife, Janice; 24 grandchildren and 10 great-
grandchildren. A long-time businessman in Richmond, his acumen made him
one of the area's most successful paving contractors. Mr. Ives lived by
his own rules - known for his wit and "love of life," maintained
his "joie de vive" throughout five years of illness. Always memorable
and larger than life, he will be greatly missed by all that knew and
loved him. His remains rest at the Bliley Funeral Home's Chippenham
Chapel, 6900 Hull Street Rd., where the family will receive friends 6
to 8 p.m. Tuesday and Wednesday, and where funeral services will be
held 11 a.m. Thursday. Interment Roselawn Memory Gardens.
Carl Kissinger
Mr. Carl Kissinger of the Searcy, Arkansas area passed away this past
weekend from complications of Lyme disease which had entered his
nervous system. August 26-27>? 2000. More soon.
Lynette McKinney, 64
Died Friday, March 3, 2000, at St. Francis Hospital, Poughkeepsie.
Mrs. McKinney was born in Washington, DC, the daughter of Charles and
Dorothy Peters. She studied painting and ceramics and received a B.S.
in design from the University of Michigan. After working as an exhibits
artist in the Smithsonian Institute in Washington, DC, she studied
ceramics under Maja Grotel... and was awarded the degree of Master of
Fine Arts (MFA) by Cranbrook Academy of Art. Her family knew her best
as a loving and supportive wife, mother, and grandmother. She leaves
her husband of 40 years, John McKinney; two daughters: Heather Lynette
McKinney Rodiger (Sudbury,Massachusetts; and her husband William
Rodiger) and Dr. Katherine Lynette McKinney (Fountainville,
Pennsylvania; and her husband Brian Gery); two grandsons: Jonathan
Rodiger and James Rodiger; and a brother, Frank Peters (Potomac,
Maryland). She particularly enjoyed the family being together, sharing
love and joyous times. Mrs. McKinney was very active in the community.
She served as an elder at the First Presbyterian Church of
Poughkeepsie; taught Sunday School and the communicants' class for many
years. She loved to arrange flowers to beautify the church. She was
active in Tres Dias, a Christian renewal movement, serving on the
national board of directors. She served her Lord on over 20 Tres Dias
teams as leader of the weekend, as music director and in most other
capacities. She was active in a bible study group and in Christian
support groups. She served on the board of the Grace Smith House, a
shelter for battered women. She brought a child from the Childrens Home
into her home at Christmas.
She worked as an artist, teaching at Dutchess Community College for
over 25 years. Always interested in learning new techniques and
processes, she returned to postgraduate work, this time in metal-
working at SUNY New Paltz. Then, using her understanding as an artist
in silver and gold, she created the gold and silversmithing program at
Dutchess Community College. Her students knew her best for the way she
supported and encouraged them as people. At Dutchess Community College
she served as Chair of the Instructional Staff Council (ISC), a member
of the DCC President’s Advisory Council and of the Executive Committee,
Professional Staff Organization (PSO). Her principal creativity was in
clay and metal. As a ceramic artist, her interests were in producing
sensitive and graceful functional forms in clay. As a silversmith
artist, she was most interested in producing works of cloisonne. Other
artistic interests were a wall hanging commissioned by the First
Presbyterian Church, numerous banners, photography, weaving, drawing,
and painting. As an artist she was most enthusiastic when creating
forms in clay. She enjoyed producing chalices for communion services.
She had her own Internet web site at http://www.McKinneyCreations.com.
In the last few years, she enjoyed sailing with her husband on her
sailboat down the Hudson River from the Poughkeepsie Yacht Club around
Manhattan and out to Stonington, CT. She enjoyed living on her sailboat
during the summer at their mooring in Stonington Harbor.
Much of Lynette McKinney is summed up in her philosophy of art and
creativity:
"My philosophy of creativity is that God is moving each of us by the
beauty and power of his creation to feel love and wholeness. We respond
to that in different ways. Some people respond with beautiful music,
inspirational writing, or high drama. My response is to create
expressions translating that feeling of beauty, power, love, and
wholeness into clay and metal forms. I want to create beauty in a world
that has the potential for so many things that are not beautiful. I
find excitement in clay as the form develops on the wheel and continues
with the challenge of glazing to create color and texture that
completes the form. In metal, I seek to create beauty by resolving the
contradiction of softness of line with the rigidity of the
material."Calling hours are 4:00 PM to 7:00 PM, Tuesday, March 7, 2000,
at Schoonmaker Funeral Home, 72 S. Hamilton St., Poughkeepsie. The
funeral service will be at 11:00 AM, Wednesday, March 8, 2000, at the
First Presbyterian Church, 100 Cannon St., Poughkeepsie.
The family requests that donations be made in lieu of flowers to The
Grace Smith House, c/o 20 Slate Hill Drive, Poughkeepsie, NY 12603-
5537, or to the Lyme Disease Foundation, Inc., One Financial Plaza 18th
Floor, Hartford, CT 06103
Angela Amato, 53
After many years of illness, Angela Amato died from complications of
Lyme disease on January 26, 2000. She leaves a daughter, Elaine, who
misses her very much.
Beverly Stanton, 53
Donna Thursday, 2/17/00, 4:21 PM These are some of the most difficult
words I've ever had to write. I had known Bev Stanton (a/k/a Country
Girl) for such a short time in comparison to many of my friends, yet I
considered her one of my dearest. As an "OOO" member, we would chat for
hours on end and I mean HOURS. Also, as everyone knows, she offered a
wealth of useful information regarding lyme not only to OOO members but
to everyone in the MGH lyme chat room which is where I originally met
her not even a year ago. It seems much much longer considering how
close we became. I still have many many e-mails from her offering me
all sorts of useful information; in the complex world of lyme disease,
she seemed to have an answer for everything. How horribly ironic that
even this woman could not conquer this God forsaken disease. She was
such a dear personal friend of mine and always gave me a shoulder to
cry on, a friendly ear and certainly lots of laughs. She always knew
the right thing to say, simply amazing, and always always lifted my
spirits and made me feel like I was such a special friend to her. She
never judged me yet she would give me her honest opinion on anything
and everything which helped me to make some very difficult decisions.
She was a true friend to me, irreplaceable,and I could really use her
advice right now on a lot of things and I can't believe I can't reach
out to her anymore. Yet her friendship touched me so deeply though that
somehow I believe she will continue to guide me. We often talked about
angels, I believe she is one of my angels now and one to many others
also. I love you Bev and I miss you very very much but I must believe
you are with God now and still watching over us. Thank you Bev, thank
you forever. Love OOO Dsc
Owen Klepper
CORNELL MAGAZINE ONLINE CLASS NOTES MARCH-APRIL 2000
Owen Klepper lost the battle to cancer and Lyme disease. Owen was a
marketing communications specialist. He will be remembered.
Rena McNulty
Beloved Wife, Mother, Grandmother Rena McNulty, of Pittsburgh, beloved
wife of Michael F. McNulty, on Monday, April 3, 2000. She is survived
by her husband; three daughters; and four grandchildren. A Memorial
Mass will be celebrated at a later date. In lieu of flowers, memorial
contributions may be made to the Lyme Disease Foundation.
Dr. William 'Bill' Nichols
IN MEMORIAM Bill Nichols was a good man, a true friend, and a fine
scientist. He had suffered from Lyme disease for twelve years before
taking his own life on April 12, 2000. Bill was desperately ill from
the complications of the disease, which was in his spinal column and
his brain. For the past two years, he had to struggle to get out of
bed, often became disoriented, and was unable to drive a car. He was
also losing his eyesight and his ability to walk. Unable to continue
with his research, Bill found that he no longer had the energy to
concentrate, and was terrified of losing his faculties. He suffered
from terrible headaches, debilitating tremors, skin lesions, and cough
and eyesight problems, which kept recurring despite the massive doses
of antibiotics being administered to him. But he struggled bravely, and
was kind and gentle to the end, always trying to help others in any way
he could. It is with deep pain and sorrow that I write these words for
a very special friend who will live in our hearts forever. Roger and
Marilynn Girsmore
Arroyo Grande, California -- From Spotlight On Lyme, Vol. 5, No. 4
July/August 2000 Issue, p. 10
Paul Fjare
Camping Magazine, Jan 2000 v73 i1 p6 Obituary Fjare Succumbs to
Complications from Lyme Disease Paul Fjare, a life member of the
American Camping Association, died of complications of Lyme disease. He
worked in camp consulting and camp design for nearly thirty years and
was a former member of the National Standards Board.
John W. McGrath, 75
Accountant; avid sportsman; former Chatham resident
FORT MYERS, Fla. - John William McGrath, 75, a longtime resident of
Chatham, died Jan. 22, 2000 in Florida. He was the husband of Barbara
F. McGrath for 52 years.
Born in Boston, Mr. McGrath was raised in Sharon, Mass., and served as
a corporal in the Marine Corps during World War II. After graduating
fourth in his class at the Business College, he moved to Chatham and
owned a successful tax accounting practice for more than 30 years as
well as serving the town as the veterans agent and assistant to the
selectmen. An avid sportsman, he played ice hockey and won trophies in
powerboat racing and golf. His golf awards included Eastwood Ho!
Country Club, Landings Men's Golf Association championship,
Fiddlesticks Country Club, Hawaiian Airlines Open, and one of his
proudest awards, winning the 1980 Tony Lema Memorial Golf Tournament.
Surviving besides his wife are a son, John W. McGrath Jr. of Chatham;
four daughters, Stephanie McGrath of Colorado, Paula Newell of Vermont,
Tracy Lenz of Florida and Nadine Terrio of Chatham; and 10
grandchildren. A memorial service will be held at 11 a.m. Saturday at
Holy Redeemer Catholic Church, 77 Highland Ave., Chatham. Memorial
donations may be made to the Crohns & Colitis Foundation, CCFA, 386
Park Ave., South, 17th Floor, New York, NY 10016; or to the Lyme
Disease Foundation, LDF, One Financial Plaza, 18th Floor, Hartford, CT
06103.
Larry Dolan, 56
LARRY DOLAN Was barber and official with state Game Commission
FRANKLIN -- Larry E. Dolan, 56, RD 1, Utica, died Wednesday, Sept. 13,
2000, at Franklin. He was born at Meadville Sept. 29, 1943, son of the
late Willard F. Dolan Sr. and Geraldine M. Deeter Dolan. He graduated
from Rocky Grove High School in 1961, then earned his degree from the
Erie Barber School. He served in the U.S. Army during the Vietnam War.
He was a self-employed barber with the Dolan and Weaver Barber Shop and
also worked as a game farm manager for the Pennsylvania Game
Commission, retiring in 1991. He was a Protestant and a member of the
Franklin Jaycees and Cochranton Lodge 790, F.&A.M. He enjoyed sailing,
golf and tennis. Survivors include a son, Curtis E. Dolan and his wife,
Kimberlee, of Hicksville, Ohio; a daughter, Christina Lee and her
husband, Adam, of Edinboro; a brother, Willard F. Dolan Jr. of Utica;
and three grandchildren, Joshua and Jordan Dolan and Cory Lee. Friends
may call at the Robert W. Gardinier Funeral Home, Franklin, Saturday
from 2 to 4 and 7 to 9 p.m. A service will be held there Sunday at 1:30
p.m. Burial will be at Peters Cemetery. Memorials may be made to the
Lyme Disease Foundation in care of the Robert W. Gardinier Funeral
Home, 1315 Chestnut St., Franklin, PA 16323.
Gornell Smith, 71
I would like to add my Uncle's name to the memorial: Gornell Smith. He
lived in Tichnor, Arkansas and was 71 years old. He died October 9,
2000. Over the past few weeks prior to his death, my aunt had removed
11 ticks from his body. He was doctor shy so a little bit of the flu
bug was not going to get him to run to a doctor. They had sent away his
blood work up and the day we were burying him was the day the results
were expected. If only we had known about this before hand. When I came
back from his funeral I went on the net, I had never heard of Lyme
Disease killing anyone before. It's sad when even the doctors have no
clue. I am happy that somewhere, somehow we can make people aware of
the fact that Lyme disease causes fatalities. Thank You. His niece,
Debbie Houston from Joliet, Illinois