Re: Site contact: google group?

[Payne Aaron]

Hi John,

Thanks for joining and don't forget to send us pics of the new baby.

I'm 37, married and living in Indianapolis. We have a crazy dog named Misha.

My dad and I both have SJS. Most of our problems are mobility and pulmonary issues. Dad died last September.

Muscle tightness and weakness cause me to have higher CO2 levels. I use a bipap and O2 at night to keep the CO2 down at a more normal level.

I've thrown you a bunch of facts. Please feel free to ask questions and I'll try to answer as best I can.

thanks,
aaron

On Feb 18, 2011, at 2:50 AM, "john rivera" <xfear...@gmail.com> wrote:

>
>
> came across this forum and notice to contact here to be added.
>
> I have SJS, 29 years old and actually just discovered this a few months ago after getting some paperwork from doctors when i was a child from my mom.
>
> I actually have (during childhood at least?) the most unique case/curvature of scoliosis also, on top of SJS, (aka. i really hit the jackpot!)
>
> anyway just wanted to explore the forum and post up
> -John
>
> Request made by IP 12.177.15.78 at 2011/02/18 02:50:04.523 US/Eastern
>