Re: [SJS] Digest for schwartz-jampel-syndrome@googlegroups.com - 1 Message in 1 Topic

[april Brandenburg]

Thank you I'm just glad to not feel like the only one anymore. --- On Thu, 1/28/10, schwartz-jampel-...@googlegroups.com <schwartz-jampel-...@googlegroups.com> wrote: From: schwartz-jampel-...@googlegroups.com <schwartz-jampel-...@googlegroups.com> Subject: [SJS] Digest for schwartz-jam...@googlegroups.com - 1 Message in 1 Topic To: "Digest Recipients" <schwartz-jampel...@googlegroups.com> Date: Thursday, January 28, 2010, 10:15 PM   Today's Topic Summary Group: http://groups.google.com/group/schwartz-jampel-syndrome/topics new members [1 Update]  Topic: new members Payne Aaron <aaron....@gmail.com> Jan 28 06:03AM -0500 ^   Welcome new members!   thanks, aaron   -- You received this message because you are subscribed to the Google Groups "Schwartz-Jampel Syndrome" group.   Visit the SJS Groups Webpage at http://groups.google.com/group/schwartz-jampel-syndrome?hl=en   To post to this group, send email to schwartz-jam...@googlegroups.com   To unsubscribe from this group, send email to schwartz-jampel-sy...@googlegroups.com

[debraca...@verizon.net]

Hi April,

 

Welcome, I am Jack's mom...he is a smart, beautiful, wonderful 5 year old.  We are currently navigating our way and preparing for kindergarten...I don't know how much information i'll be able to give...we are learning every day...but will be happy to give you any support i can.

 

Debbie Campbell

Feb 1, 2010 08:39:29 PM, schwartz-jam...@googlegroups.com wrote:

Thank you I'm just glad to not feel like the only one anymore.

--- On Thu, 1/28/10, schwartz-jampel-...@googlegroups.com wrote:

From: schwartz-jampel-...@googlegroups.com Subject: [SJS] Digest for schwartz-jam...@googlegroups.com - 1 Message in 1 Topic To: "Digest Recipients" Date: Thursday, January 28, 2010, 10:15 PM

Today's Topic Summary Group: http://groups.google.com/group/schwartz-jampel-syndrome/topics new members [1 Update]  Topic: new members

Payne Aaron Jan 28 06:03AM -0500 ^

Welcome new members!   thanks, aaron

-- You received this message because you are subscribed to the Google Groups "Schwartz-Jampel Syndrome" group.   Visit the SJS Groups Webpage at http://groups.google.com/group/schwartz-jampel-syndrome?hl=en   To post to this group, send email to schwartz-jam...@googlegroups.com   To unsubscribe from this group, send email to schwartz-jampel-sy...@googlegroups.com

[Tammy Urioste]

Hi Everyone,
 I was wondering if anyone has tried any natural remedies such as vitamins, or herbs that are helpful?  I was reading a lot about Arnica, and MSM.  They both come in creams and also pill form.  They appear safe with no negative side effects.  Just a thougnt, I am always looking for anything that might be helpful for Nathan. 

---

Tammy Urioste

 

 

 

---

Date: Tue, 2 Feb 2010 08:34:02 -0600
From: debraca...@verizon.net
To: schwartz-jam...@googlegroups.com
Subject: Re: Re: [SJS] Digest for schwartz-jam...@googlegroups.com - 1 Message in 1 Topic

---

Hotmail: Trusted email with powerful SPAM protection. Sign up now.

[Kalma Catering]

Hi Abril! you speak spanish??¿

2010/2/2 april Brandenburg <tylers_...@yahoo.com>

[Payne Aaron]

Hi April,

If you haven't seen it already seen it check out the SJS map at http://maps.google.com/maps/ms?hl=en&ie=UTF8&msa=0&msid=111736247805060931574.0004692f155c0f4a9d2e6&ll=3.513421,-84.375&spn=153.311197,298.828125&z=1&source=embed
. If you are comfortable with it send me an image and the general
area where you live (state or country is fine with me.)

thanks,
aaron

On Feb 1, 2010, at 9:38 PM, april Brandenburg wrote:

> Thank you I'm just glad to not feel like the only one anymore.
>

> --- On Thu, 1/28/10, schwartz-jampel-syndrome
> +nor...@googlegroups.com <schwartz-jampel-...@googlegroups.com

[debraca...@verizon.net]

Hi Aaron,

 

Could you update Jack's photo on the map???  ( Jack Campbell - Freehold, NJ) I have attached a much more recent one.

 

Thank you,

Debbie Campbell

Feb 3, 2010 12:16:21 PM, schwartz-jam...@googlegroups.com wrote:

Hi April,

If you haven't seen it already seen it check out the SJS map at http://maps.google.com/maps/ms?hl=en&ie=UTF8&msa=0&msid=111736247805060931574.0004692f155c0f4a9d2e6&ll=3.513421,-84.375&spn=153.311197,298.828125&z=1&source=embed
. If you are comfortable with it send me an image and the general
area where you live (state or country is fine with me.)

thanks,
aaron



On Feb 1, 2010, at 9:38 PM, april Brandenburg wrote:

> Thank you I'm just glad to not feel like the only one anymore.
>
> --- On Thu, 1/28/10, schwartz-jampel-syndrome

> +nor...@googlegroups.com > > wrote:

>
> From: schwartz-jampel-...@googlegroups.com > >
> Subject: [SJS] Digest for schwartz-jam...@googlegroups.com
> - 1 Message in 1 Topic
> To: "Digest Recipients" > >

> Date: Thursday, January 28, 2010, 10:15 PM
>
> Today's Topic Summary
> Group: http://groups.google.com/group/schwartz-jampel-syndrome/topics
>
> • new members [1 Update]
> Topic: new members

> Payne Aaron Jan 28 06:03AM -0500 ^