Groups
Groups
Sign in
Groups
Groups
Schwartz-Jampel Syndrome
Conversations
About
Send feedback
Help
Group path
Schwartz-Jampel Syndrome
1–30 of 33
Mark all as read
Report group
0 selected
Georgia DeLong
, …
Ana Viveiros
9
4/2/14
I also have SJS
Welcome Georgia and Thank you. Sent from my iPhone On 2014-04-02, at 12:17 AM, Georgia DeLong <
unread,
I also have SJS
Welcome Georgia and Thank you. Sent from my iPhone On 2014-04-02, at 12:17 AM, Georgia DeLong <
4/2/14
Debra Campbell
,
jeane...@aol.com
3
6/9/13
Re: [SJS] link from april Brandenburg
Hi.. Welcome... I have an 8 year old son Jack with SJS... Mis Diagnosed with cerebral palsy at 2...
unread,
Re: [SJS] link from april Brandenburg
Hi.. Welcome... I have an 8 year old son Jack with SJS... Mis Diagnosed with cerebral palsy at 2...
6/9/13
Payne Aaron
, …
Debra Campbell
4
12/26/12
Merry Christmas!
Merry Christmas, love and good health to all!!! Most recent picture of Jack... (With me and Abby)
unread,
Merry Christmas!
Merry Christmas, love and good health to all!!! Most recent picture of Jack... (With me and Abby)
12/26/12
riveraXVX
, …
debraca...@verizon.net
7
2/21/11
new member...introduction
Dear John, Welcome to our group...Congratulations on your baby daughter!!!! How absolutely wonderful!
unread,
new member...introduction
Dear John, Welcome to our group...Congratulations on your baby daughter!!!! How absolutely wonderful!
2/21/11
Payne Aaron
2/20/11
Re: Site contact: google group?
Hi John, Thanks for joining and don't forget to send us pics of the new baby. I'm 37, married
unread,
Re: Site contact: google group?
Hi John, Thanks for joining and don't forget to send us pics of the new baby. I'm 37, married
2/20/11
joy
, …
Mdnew...@aol.com
6
10/30/10
Update on Chase
Debbie, It was very nice to hear from you. It has taken me a while to pursue the SJS, because I had
unread,
Update on Chase
Debbie, It was very nice to hear from you. It has taken me a while to pursue the SJS, because I had
10/30/10
Tammy Urioste
,
Aaron Payne
2
6/21/10
Hi everyone, Thanks Tammy for your note. Doug and Roberta are really nice people. They have been to
unread,
Hi everyone, Thanks Tammy for your note. Doug and Roberta are really nice people. They have been to
6/21/10
debraca...@verizon.net
,
Tammy Urioste
3
2/25/10
Re: RE: [SJS] Digest for schwartz-jampel-syndrome@googlegroups.com - 1 Message in 1 Topic
Hi Debbie, My e-mail is tammyu...@hotmail.com Any info you have will be great. Thank you so much!!
unread,
Re: RE: [SJS] Digest for schwartz-jampel-syndrome@googlegroups.com - 1 Message in 1 Topic
Hi Debbie, My e-mail is tammyu...@hotmail.com Any info you have will be great. Thank you so much!!
2/25/10
debraca...@verizon.net
, …
Tammy Urioste
4
2/25/10
Re: RE: [SJS] Digest for schwartz-jampel-syndrome@googlegroups.com - 1 Message in 1 Topic
Hi Debbie, I was wondering if you can tell me more about the acupuncture Jack receives. Is it a
unread,
Re: RE: [SJS] Digest for schwartz-jampel-syndrome@googlegroups.com - 1 Message in 1 Topic
Hi Debbie, I was wondering if you can tell me more about the acupuncture Jack receives. Is it a
2/25/10
Tammy Urioste
,
Payne Aaron
2
2/16/10
Medications
Hi Tammy, I take Dilantin. It helps but it tires me out a bit. I also found some success with
unread,
Medications
Hi Tammy, I take Dilantin. It helps but it tires me out a bit. I also found some success with
2/16/10
april Brandenburg
, …
debraca...@verizon.net
6
2/3/10
Re: [SJS] Digest for schwartz-jampel-syndrome@googlegroups.com - 1 Message in 1 Topic
Hi Aaron, Could you update Jack's photo on the map??? ( Jack Campbell - Freehold, NJ) I have
unread,
Re: [SJS] Digest for schwartz-jampel-syndrome@googlegroups.com - 1 Message in 1 Topic
Hi Aaron, Could you update Jack's photo on the map??? ( Jack Campbell - Freehold, NJ) I have
2/3/10
magda
,
Tammy Urioste
2
2/3/10
facebook
Hi there, Yes I just started one. I am under Tammy Abeyta Urioste. Tammy Urioste > Date: Tue, 2
unread,
facebook
Hi there, Yes I just started one. I am under Tammy Abeyta Urioste. Tammy Urioste > Date: Tue, 2
2/3/10
Payne Aaron
1/28/10
new members
Welcome new members! thanks, aaron
unread,
new members
Welcome new members! thanks, aaron
1/28/10
debraca...@verizon.net
, …
Elizabeth G.
7
1/4/10
Virus
Wow, those are really great suggestions. I really appreciate it. Happy New Year. Debbie Jan 3, 2010
unread,
Virus
Wow, those are really great suggestions. I really appreciate it. Happy New Year. Debbie Jan 3, 2010
1/4/10
Elizabeth G.
1/3/10
Happy New Year!
Just wanted to wish all of you and your families a Happy New Year. I can't believe how fast 2009
unread,
Happy New Year!
Just wanted to wish all of you and your families a Happy New Year. I can't believe how fast 2009
1/3/10
magda
,
Payne Aaron
2
12/14/09
Fenitoina
Hi Magda, I'm assuming you mean the english phenytoin or Dilantin for fenitoina. I've taken
unread,
Fenitoina
Hi Magda, I'm assuming you mean the english phenytoin or Dilantin for fenitoina. I've taken
12/14/09
Aaron Payne
, …
acke...@sbcglobal.net
3
11/22/09
SJS in the news
Hi Debbie: Our five year old son also has SJS. We have not had any symptoms as you have described.
unread,
SJS in the news
Hi Debbie: Our five year old son also has SJS. We have not had any symptoms as you have described.
11/22/09
Jill
,
dany ocio
2
7/30/09
response to Dany
Gracias: El respirador cuando sea mayor creo que no lo necesitara de continuo, solo cuando necesite
unread,
response to Dany
Gracias: El respirador cuando sea mayor creo que no lo necesitara de continuo, solo cuando necesite
7/30/09
Jill
, …
acke...@sbcglobal.net
4
7/30/09
Hoping for suggestions
this is great information. I will pass it along. Insurance takes care of in-home nursing care for 2
unread,
Hoping for suggestions
this is great information. I will pass it along. Insurance takes care of in-home nursing care for 2
7/30/09
Tammy Urioste
, …
dany ocio
7
7/22/09
Translation/ traduccion! Si, estoy de acuerdo con Aaron. Nadar ayudara definitivamente a sus temores
unread,
Translation/ traduccion! Si, estoy de acuerdo con Aaron. Nadar ayudara definitivamente a sus temores
7/22/09
Payne Aaron
, …
dany ocio
13
6/1/09
Spanish translator
Thanks Daniel! aaron On Jun 1, 2009, at 2:15 PM, dany ocio wrote: > sorry,yes > She said me:
unread,
Spanish translator
Thanks Daniel! aaron On Jun 1, 2009, at 2:15 PM, dany ocio wrote: > sorry,yes > She said me:
6/1/09
Elizabeth G.
,
Payne Aaron
2
5/31/09
Re: a good handbook of library ejournal list with stanford jhu university!!
Elizabeth, Yes. thanks, aaron On May 31, 2009, at 12:13 PM, Elizabeth G. wrote: > > Is this
unread,
Re: a good handbook of library ejournal list with stanford jhu university!!
Elizabeth, Yes. thanks, aaron On May 31, 2009, at 12:13 PM, Elizabeth G. wrote: > > Is this
5/31/09
Elizabeth G.
, …
Payne Aaron
17
5/18/09
I really want to know...
Welcome Aryeh's dad! aaron On May 18, 2009, at 1:37 PM, acke...@sbcglobal.net wrote: > My son
unread,
I really want to know...
Welcome Aryeh's dad! aaron On May 18, 2009, at 1:37 PM, acke...@sbcglobal.net wrote: > My son
5/18/09
joy
, …
Tammy Urioste
9
5/16/09
schwartz jampel
Hi Joy, Nice to hear from you. Nathan was on Tegretol when he was younger too. It worked well but he
unread,
schwartz jampel
Hi Joy, Nice to hear from you. Nathan was on Tegretol when he was younger too. It worked well but he
5/16/09
tammyu...@hotmail.com
, …
Payne Aaron
16
5/15/09
Botox
Hi, This is Tammy, Nathan's mom. We spoke a little a few years back, but we lost touch. No I don
unread,
Botox
Hi, This is Tammy, Nathan's mom. We spoke a little a few years back, but we lost touch. No I don
5/15/09
Kalma Catering
5/15/09
pictures ( fotos)
TEO AND ME. KISS FOR ALL PEOPLE!
unread,
pictures ( fotos)
TEO AND ME. KISS FOR ALL PEOPLE!
5/15/09
Elizabeth G.
, …
magda
12
5/15/09
About Me
i like TULIPANES!!!!( FLOWERS) On 5 mayo, 20:21, Liz Guidry <lizgui...@yahoo.com> wrote: >
unread,
About Me
i like TULIPANES!!!!( FLOWERS) On 5 mayo, 20:21, Liz Guidry <lizgui...@yahoo.com> wrote: >
5/15/09
Payne Aaron
, …
Desirae Rausch
3
5/11/09
thought for the day
I'm right there with you. My mom taught me that I was capable of doing anything I set my mind to.
unread,
thought for the day
I'm right there with you. My mom taught me that I was capable of doing anything I set my mind to.
5/11/09
Elizabeth G.
, …
Tammy Urioste
3
5/10/09
Happy Mothers Day!
I wanted to also wish all the mothers a Happy Mothers Day! Ha ha, Aaron, your mom is such a character
unread,
Happy Mothers Day!
I wanted to also wish all the mothers a Happy Mothers Day! Ha ha, Aaron, your mom is such a character
5/10/09
Aaron Payne
5/8/09
eMedicine SJS Article
The article gives a general medical description of SJS. http://emedicine.medscape.com/article/1172013
unread,
eMedicine SJS Article
The article gives a general medical description of SJS. http://emedicine.medscape.com/article/1172013
5/8/09