another RFI

[Melissa Haendel]

Hi all,

The NIH has put forth this RFI:

http://grants.nih.gov/grants/guide/notice-files/NOT-OD-12-032.html

It is a regarding a related topic as the the OSTP RFI we responded to, but is different in that you can address whichever aspects are most relevant to your expertise or opinion. Here are the topic areas:

• Scope of the challenges/issues

• Research information lifecycle

• Challenges/issues faced by the extramural community

• Tractability with current technology

• Unrealized research benefits

• Feasibility of concrete recommendations for NIH action

• Standards development

• Data standards, reference sets, and algorithms to reduce the storage of redundant data

• Data sharing standards according to data type (e.g., phenotypic, molecular profiling, imaging, raw versus derived, etc.)

• Secondary/future use of data

• Ways to improve efficiency of data access requests (e.g., guidelines for Institutional Review Boards)

• Legal and ethical considerations

• Comprehensive patient consent procedures

• Data accessibility

• Central repository of research data appendices linked to PubMed publications and RePORTER project record

• Models and technical solutions for distributed querying

• Comprehensive investigator authentication procedures

• Incentives for data sharing

• Standards and practices for acknowledging the use of data in publications

• “Academic royalties” for data sharing (e.g., special consideration during grant review)

• Support needs

• Analytical and computational workforce growth

• Funding for tool development, maintenance and support, and algorithm development

Please let me know if any of you think we should be responding and/or are interested in helping.

Cheers,

Melissa

Dr. Melissa Haendel

Assistant Professor
Ontology Development Group

http://www.ohsu.edu/library/

Department of Medical Informatics and Epidemiology
Oregon Health & Science University
hae...@ohsu.edu
skype: melissa.haendel

503-407-5970

[Carla Pealer]

Melissa,

 

Did you all respond to this?

 

Carla

 

---

From: resource-represent...@googlegroups.com [resource-represent...@googlegroups.com] On Behalf Of Melissa Haendel [hae...@ohsu.edu]
Sent: Wednesday, January 25, 2012 6:48 AM
To: resource-represent...@googlegroups.com
Subject: [rrc] another RFI

[Melissa Haendel]

I haven't responded yet, though am likely on a number of responses as one voice of many :-)

I thought there was an OHSU response being coordinated by Robin?

I haven't seen it yet. Should maybe take a look...

Cheers,

Melissa