Marion Elliot
unread,Jan 25, 2015, 5:15:53 PM1/25/15Sign in to reply to author
Sign in to forward
You do not have permission to delete messages in this group
Either email addresses are anonymous for this group or you need the view member email addresses permission to view the original message
to resonant-rese...@googlegroups.com
Hello, ladies
Some of you know that I have been suffering from a cough since July, and pleurisy etc since November. Since the end of November, I have had antibiotics, X-rays and CT scans.
Last week we finally had some definitive information about what the cause is.
We went to the lung specialist this week after having a biopsy done on a couple of lymph nodes in the lung last week.
At the same time, I had a mammogram, which was fine.
A few days ago, they cancelled my next biopsy, so we knew going in that they had found identifiable cancer cells.
All in all, the news about the (~3.5 cm x 3.8 cm) mass in the lung is not great.
The mass is a primary lesion, meaning it originated in the lung.
I have stage IIIA non-small-cell lung cancer. The #7 lymph node was positive; the #11 was clear.
Because the mass is right up against the mediastinum (the central connective tissue in the chest, where the trachea and esophagus go through), it is inoperable. RATS!!
They have not yet determined if it is adenocarcinoma or epidermoid (squamous cell) carcinoma.
Next step - checking for metastases.
The three CTs are next Friday at Saint Jerome - cranium, abdomen and pelvis.
They are trying to get me into Cité de la Santé in Laval, to get a PET scan faster than at the Maisonneuve-Rosemont on Feb 18.
I will not see the oncologist until all the remaining scans are done.
Then I will be treated nearby at Saint-Agathe Hospital, though Oncologie and with follow-up at Pneumologie.
Dr Cornoyer said there is a 25% five-year survival rate.
The standard treatment will depend on the type of cancer and whether there are lesions elsewhere in the body.
Most likely recommendations - a combination of chemo and radiation.
I think you know my thoughts about those approaches. We will be having some interesting conversations with the doctors as I decide what treatment plans I am willing to follow.
In the meantime, I have made drastic changes to my regimen. i am taking all the recommended foods and supplements.
Next up - castor oil packs, coffee enemas …
Unfortunately, I have absolutely no appetite. I was losing a pound every two days, until a friend gave us some Immunocal, which is an amazing product that reverses or slows protein loss. Now i am down to losing a pound or two a week. Don’t know how long that will last!
I am having quite a lot of pain, probably from pleurisy (since beginning November, when I first went to the doc).
It turns out morphine and codeine are not my friends (absolute cramp and spasm in the gut - wanted to die right now); Celebrex and the NSAIDs are not available because of my allergy to ASA … The only thing I can take are castor oil packs (first tonight), osteopathy, and Tylenol.
I may be speaking with the oncologist about medical marijuana!
The hospitals have been great, but I am looking forward to getting the whole story, and making a plan.
Sandy and I will have to make some choices about how we want to live. There are no assurances at this point and I truly value living well over living long!
But I will be very put out if I don’t have the chance to get a book or two written and more women inspired to live well in their Power Years!
I have spoken to Heidi about entering treatment with her. The others of you, I may count of=n for moral support at times!
My energy is fleeting and my mental focus is minimal. And when the Tylenol wears off, I pace the kitchen floor like a silly person!
Sleep is a distant memory, but I am confident we get the pain handled this week.
In general, we are not telling the general public all these details.
We are saying just that I have lung cancer, won’t be having surgery, and that I don’t yet know how we will address it.
Big hugs,
Marion