Refsum Friends

Contact owners and managers

refsum-friends@googlegroups.com

Description

This private group is for people who have Refsum Disease, their families, and friends to share all things Refsum. Please always respect all members ideas and views. We will also use this group to communicate Global DARE activities. DARE website: https://www.defeatadultrefsumeverywhere.org

Language

English

Privacy

Anyone on the web

can see group

Group members

can view members

Group members

can view conversations

Group members

can post

Anyone on the web

can ask to join group