Rare Diseases PAG

Agenda for the Singapore meeting regards Ratna On Wednesday, September 19, 2018 at 8:16:29 PM UTC+5:

Thanks for sharing! On Thu, 30 Aug 2018 21:13 IAPG, <ratnad...@gmail.com> wrote: In the

Kindly let me know the schedule of classes in Delhi please. Sent from Mail for Windows 10 From: rare-

The event can be joined online. Please register. We need to send a unified voice to India for greater

Patient Solidarity day is celebrated every year to show solidarity amongst patients and patient

https://www.financialexpress.com/opinion/a-patient-centric-ayushman-bharat-there-is-no-provision-for-

For anyone interested ratna -------- Original Message -------- Subject: SBI Youth For India

Thanks for invite me for very important LSD seminar , we merdindia one member from delhi definitely

The Delhi High Court yesterday held that excluding people with genetic disorders from obtaining

Dear Patient Advocate, The Congress is our flagship event where we bring together our global

Good morning Ratna. We are are organizing an international conference on Muscular Dystrophy. Have put

TFS! On 30 Jan 2018 10:37 am, "IAPG" <ratnad...@gmail.com> wrote: Dear All, Dr.

Thanks for the information. Kirtida Oza Sjogren's India On 30 Jan 2018 10:31 am, "IAPG"

World Congress for Neuro Rehabilitation (WCNR ) meets every two years where World experts gather to

Oh this is good! Thanks for sharing. How are you? Regards, Anuradha Khanna Pentapalli Hopasholic | As

link: https://www.sphinxonline.com/SurveyServer/s/EURORDIS75/DataPS_ext_interface/questionnaire.htm

Very inspiring! Respect for all those patients and caregivers who dare to share their stories and

Congratulation! Together let us make our country inclusive in all ways! Best wishes and wishing all

Dear All, Patient solidarity day is celebrated every year on the first Saturday of December around a

Team IAPG and all,Many thanks for appreciating my efforts which motivates me in going forward,

That's great!!! Thank you for helping patients voice their concerns and raise awareness.

The list is of ORPHA NET and is exhaustive, Please respond to the Rare diseases Barometer On

Thanks for sharing this milestone. Wishing more and more rare/life altering diseases get their due

Dear Members, India needs more research to tackle the demands of RDs both for diagnostics as well as

IAPG (Indian Alliance of Patient Groups) and Lady Hardinge Medical College are jointly organising a

https://drive.google.com/file/d/0B6TvrJRH0HLTbl9HejBlTExPWGc/view?usp=sharing On Tuesday, July 4,

RARE DISEASES: A NATIONAL PUBLIC HEALTH PRIORITY The patient movement in India for Rare Diseases is