Invitation: Lupus awareness walk in Bangalore - 12th May

[Suzanne Sangi]

Dear friends and concerned individuals,

I warmly invite you all to the first ever 'Lupus awareness walk' in Bangalore on 12th May conducted by the Lupus support group in Karnataka in association with Lupus Trust India, close to World Lupus Day which falls on 10th May.

Date: 12th May 2019 (Sunday)

Venue: Queen's Road, Near Cubbon Park (from Cubbon Park Metro station to Government Aquarium and back to the metro station) - on footpath only

Time: 9:30 AM - 10:30 AM  

Link to register: https://goo.gl/forms/1yMnRQELMGo8kmNl1 

I myself am a Lupus patient who has suffered severe organ damages and I hope that, through events like this, more people will be educated about the disease, aiding early diagnosis and better healthcare.

What is Lupus?

Lupus or SLE (Systemic Lupus Erythematosus) is a chronic autoimmune disease that can damage ANY part of the body including skin, lungs, kidneys, liver, heart, brain, joints and blood. It can be life-threatening and lead to disabilities. 1 in 1000 people in India have Lupus, 9 out of 10 are women. It is incurable and has no known cause. Treatment is expensive and needs lifelong medication. Yet there is not enough awareness which often leads to delayed diagnosis and misdiagnosis, causing further damage to organs. 

The Lupus Trust India was established last year by Lupus patients mainly to support patients who live below poverty line (BPL). It facilitates treatment and rehabilitation. The trust is also committed to providing psychological, social and emotional support to individuals and families affected by Lupus. 

I have attached a poster of the walk and also a brochure of Lupus Trust India to help you understand more of what the trust aims to do.

Looking forward to seeing you at the walk!

Thank you.

Warm regards,

Suzanne Sangi

Communications and media support for Lupus Trust India

Phone no: 9901812765

Website: http://www.lupustrustindia.org/

PS: Watch out for media coverage on Bangalore Mirror, Radio Mirchi, Vijay Karnataka, Deccan Herald, Prajavani, The New Indian Express, Asianet News, Health Vision Magazine, Medgate Today Magazine, and News18.

[Kala Ramesh]

Thanks Suzanne,

Wish the walk all the best. I'll be there, if I'm in town. 

Warmly,

Kala

[Sahana Das]

Hi Suzanne,

All the best with this walk and your project. I’m a bit caught up right now, but will come if I can organise my life by then. 

Sahana

Sent from my iPhone

<1553593065215_Lupus Trust__ Brochure.pdf>

<LUPUS WALK POSTER.png>

[Sharon Lopez]

Suzanne!

Lots of love and best wishes!

Sharon

Sent from my iPhone

On 03-May-2019, at 1:00 PM, Arundhati Venkatesh <arundhati...@gmail.com> wrote:

Hi Suzanne,

I will be there. The newly-minted 12-year-old wants to be there too. Hope that is okay?

See you soon,

Arundhati

On Wed, May 1, 2019 at 8:55 PM Suzanne Sangi <suzann...@gmail.com> wrote:

[Suzanne Sangi]

Thank you all so much for your warm wishes! 

@Arundhati Venkatesh yes, most certainly! 

 

Best regards,

Suzanne

On Fri, May 3, 2019 at 2:52 PM Kasta Dip <kast...@gmail.com> wrote:

Thank you Suzanne for this initiative!  I wish I was in Bangalore on that day but I will be walking with you all in my spirit.

All the best!

Kasta

 

Kasta Dip

Director | India Peace Centre

 

C K Naidu Road, Civil Lines, Nagpur – 440 001, Maharashtra, India

Tel: (+91) 712 2556952 | Mobile phone: (+91) 9970157446

Email: ka...@indiapeacecentre.org & kast...@gmail.com

Website: www.indiapeacecentre.org