Follow up your post of : Sat, 3 Mar 2012 21:33:28 -0800

[Henry Campbell]

David:

Hi:  Somehow this message from you got lost on my radar. It seems the group didn't 

recognize my e-mail, so nothing happened until Sammy sent me a message (see below).

Sammy is really interested in getting up to date on your situation, and so am I.  

My history:

I was diagnosed with prostate cancer May of 2002, had a Lupron shot (July 2002)that

 shut off my testosterone and it never came back. (a very miserable year of low testosterone 

44 hot flashes a day, mental confusion, cognitive powers gone). I had IMRT (radiation treatment) 

October 2004. I started using Androgel supplementation September  2004 and have been on 

it ever since.(took me out of the Lupron FOG) I am presently trying fast androgen cycling 

(30 days high => 2,000 followed by15 days without T =< 160) and the last 3 months on 

the "Rick Simpson" canabiss treatment.(no side effects) I will be getting a blood test 

July 1st 2013 to see how things are going. My PSA had gotten up to 190 before I started 

the canabiss.

So for the last 10 years or so I have been working at it. So far no discomfort at all. My 

running has slowed quite a bit. I have quit racing but will start again in January after

my 80th Birthday.  So far all is good !!

David: I may have been remiss in not addressing you as Doctor but I do recognize you as a

senior statesman for our group. You being 89 years old - I'm just a kid.

Hope all is OK with you and everyone else in these groups.  Sammy it's good to 

hear from you 

Henry

--- In prostatic-dise...@yahoogroups.com, Sam <georgiasamwilbury@...> wrote:

>

> Hi Henry. I was hoping you could provide a clue as to the origin of this

> message you seem to have passed on to CHB. Or have I got something wrong?

> I'd be interested in following this guy's progress. Such a long time

> survivor and still going strong it seems - looking for his next dose of T

> after this EBRT ??  After 20 cycles of IHT something going wrong ??

> Clarification appreciated. Sam

> 

> 

> 

> 

> On Thu, Mar 22, 2012 at 9:44 PM, Sam <georgiasamtheman@...> wrote:

> 

> > **

> >

> >

> > CHB: Today's Topics:

> >

> >   1. Fwd: Persistent cognitive issues after ADT  Henry Campbell

> >      (David P. Michener)

> >

> >

> > ------------------------------

> > ----------------------------------------

> >

> > Message: 1

> > Date: Sat, 3 Mar 2012 21:33:28 -0800

> > From: "David P. Michener" <bermich@...>

> > Subject: [CHB] Fwd: Persistent cognitive issues after ADT  Henry

> >        Campbell

> > To: chb@...

> > Message-ID: <FE0CBA94-4E28-41A9-9ED5-95EB1DE46F7F@...>

> > Content-Type: text/plain;       charset=us-ascii

> >

> >

> >

> > Begin forwarded message:

> >

> > > From: David P. Michener <michener80@...>

> > > Date: March 3, 2012 4:24:54 PM PST

> > > To: chb@...

> > > Subject: Persistent cognitive issues after ADT Henry Campbell

> > >

> > > Your history on the CHB mailing has some similarities to my twenty year

> > experience.

> > > I was diagnosed in May '92 with an 87 PSA and Gleason 2+4.  Was on

> > Lupron and Flutamide for a year and then had an orchiectomy because

> > intermittent hormone blockade hadn't received much exposure yet. After two

> > years of undetectable PSA's I became increasingly distressed at the signs

> > of hormone lack (certainly including cognitive decline).  With the

> > assistance of a Kaiser oncologist I began a search for appropriate

> > replacement.  Finally hit on Testosterone Enanthate 200 mg/mo IM  and for

> > the past 13 years have been simulating intermittent blockade by taking

> > monthly shots until the PSA reaches 10 and D/C until PSA gets to 1 then

> > begin again.  After twenty cycles last October the PSA failed to fall when

> > the testosterone was d/c'd suggesting a loss of hormone dependence.

> > > Saw Dr. Mark Scholz in LA whose color doppler ultra sound located the

> > active cancer.  Bone scans and MRI's didn't reveal any gross metastases so

> > I've begun a 76 Gr course of IMRT in Rohnert Park nearby.

> > > I sure hate doing without testosterone and felt much better when the

> > replacement reached a more normal range (generally 200-500 during the

> > months on shots.

> > > Have not found anyone who can say why any one form of testosterone

> > should be more satisfactory as a replacement but the long acting Enanthate

> > IM has worked well for me and a monthly IM shot is a lot more convenient

> > than daily gel or patches (and probably a lot cheaper).

> > > The idea of testosterone replacement is much more acceptable now even in

> > the presence of ca than it was twenty years ago (Morgentaler, Leibowitz,

> > Scholz, Myers, Strum)  I am now 89 and certainly want to consider getting

> > back on replacement (intermittent or continuous) once radiation is

> > completed.  Being castrate is very unpleasant !

> >

> >

> >

> > ------------------------------

> >

> >  

> >

>

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