Experiences with PPC

[nancyb...@gmail.com]

I am surprised that more people have not posted or shared experiences. Wondering why? Because it is so rare?

[sjpmoc...@gmail.com]

I would imagine that is the case. It’s rare and sadly, the life expectancy is not good. My mom lasted 18 months with it.

[Amy Miguel]

I agree.  My mother was diagnosed  nearly 9 years ago .   I could not find one thing on the Internet not one thing .   She got so ill so quickly I really didn’t have a lot of time to invest in research .   I can’t remember now but I think my mom lived almost 10 weeks from the date of her diagnosis.   I hope that you and your loved ones are doing well.

On Mon, Jan 29, 2018 at 12:48 AM <sjpmoc...@gmail.com> wrote:

I would imagine that is the case.  It’s rare and sadly, the life expectancy is not good.  My mom lasted 18 months with it.

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[tnlr...@gmail.com]

I was diagnosed in January of 2017.  Had surgery to debulk and remove my omentum.  March I started chemo once a week for 18 weeks.  Now I am on a hormone blocker.  Dr is thrilled with my progress, but I am waiting for the other shoe to drop.

[sally dupre]

Keep up the faith! My mom was diagnosed with PPC 10 years ago, they found a tumor in her abdomen during another procedure. They removed it, she had chemo, a hysterectomy and more chemo and she has been in remission ever since. 🙏🏻🙏🏻🙏🏻

Sent from my iPhone

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[Deborah Abbott]

I am also wondering why people are not posting more about PPC. I was diagnosed in January. I had 3 rounds of chemo, then surgery where they removed my omentum and all female organs. I just had another round of chemo 2 weeks ago that has caused a dangerous drop in my platelet count. If it keeps happening, I will have to have a platelet transfusion. I'm scheduled for 4 more rounds of chemo, but my oncologist is very pleased with my progress. Fortunately, they caught it before it metastasized.

Debbie Abbott

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[retro...@gmail.com]

Are there no current discussions on here from 2018?

[Linda Rogers]

I wondered myself why nobody wanted to talk about it.

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[evacor...@gmail.com]

I was diagnosed with peritoneal carcinoma in 2014 , I had chemo then debulking surgery in October 1914.After that I continue my chemo every week for a year.My cancer marker went down until I reached the normal range. No chemo for 3 months which make me so happy , I thought it's all gone but after 3 months I had MRI and Ct Scan and its back again.
I started with taxo and avastin. Avastin makes me bleed , throwing up blood all day . My husband brought me to ER then confined for 1 week. Too make it short 2019 is my fifth year , I'm still in chemo doxil liposome once a month with a lot of side effects. My hands and feet was burning too dark , my body start getting dark too.
Any suggestion what should I do for my hands and feets.

[Deborah Abbott]

I am so sorry to hear about your treatment failures. I finished chemo 11 months ago and my CA 125 is still low (Praise goes to God). I did develop peripheral neuropathy in my fingers and feet that has not gone away and it probably won't.

Debbie Abbott

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