Anyone had this???

[tessie]

My daughter w/ CVID. Yesterday the top two veins in her left hand
turned thick and blackish looking. I thought that she had used a black
crayon on her skin to outline them. This morning they are still black
but not 'fat' like they were yesterday. She did recieve ig's in this
same hand 3 1/2 weeks ago. Any thoughts would be helpful. I haven't a
clue as what to think.
Thanks so much,
Stefanie

[Pattie Curran]

Joseph has gotten this-- usually when they blow a vein by going right
through with the needle..... not sure if it is the same thing that you are
talking about.

Peace be with you,
Pattie
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[tessie]

That's the weird thing. She hasn't had any veins accessed in 3 1/2
weeks. Also it just came back just an hour or so ago. I called the IV
nurse, at first she thought it might be brusing. But decided it wasn't
that since it came, went away and now has come back. The nurse hasn't
seen or heard anything like it before. But said to watch it for red
streaks. Kinda freaks me out. If it's still there when I pick her up
from school, I'm gonna try to get a pic of it to show the Doctor on
Thursday. That's our next IVIG.
Thanks,
Stefanie

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[Jordan Leventhal]

Yes, I thought of a blown vein too, but 3.5 weeks after infusion seems
really late for a blown vein to be showing up.

-jordan

[Terri Cerda]

Hi Stefani,

Not sure if you found the answer to this question, but...... I start my IVIG
in my hands. I have also started one in my foot. One of the veins in my
hand and another in my ankle, above the foot vein I used, got big lumps
about 3 weeks after my IV. I thought it was clots. I had the infusions
nurses at UCLA look at it and they said the the veins scleroses and shut
down in one area, blocking blood flow above and below the stenoses area.
They said it would heal eventually, but could take months. I have a thick
layer of skin over the vein, but I would bet if my skin were thin and you
could see the veins well, it would look dark in the vein.......like vericose
veins, the blood has no where to go. It is unoxygenated blood that was on
it's way back to the heart and appears dark when it is not moving, as in a
stenosed vein. It sounds like this could be what has happened to your
daughters hand. I would definately ask a nurse who is used to IVIG
infusions. IVIG can be hard on veins globally....meaning not just where the
IV was.......but in places even more remote from the infusion site. Often,
it requires giving veins a break to heal to avoid just this sort of problem.

Good luck!

Terri Cerda

----- Original Message -----
From: "tessie" <tess...@aol.com>
To: "Primary Immune Deficiency" <primary...@googlegroups.com>
Sent: Tuesday, April 22, 2008 5:30 AM
Subject: PID Anyone had this???

>

[Mark Leventhal]

Is anyone from the group going to be in Chicago this coming weekend?

[Terri Cerda]

I am supposed to go.....I found out really late in the game and cannot swing
it at this point. They made a hotel reservation for me, but I emailed
yesterday telling them that I cannot make it.....I found out just a bit too
late and I just got back from DC. I am a bit sad as I met many people in DC
that I would like to say hello to, but I have not even gotten my airline
tickets.

Terri