Foods to eat and avoid

[noreen...@yahoo.com]

Hi Everyone,

A few months ago I joined this group. I have Caroli disease. So far
I've been lucky. Found a Doctor I love. I'm finding lots of great
information on this site. Thank you for letting me join. I was
wondering if some where there is a list of foods that are helpful to
either eat or avoid. If there isn't a list could you please send me
some information that has been helpful to you with keeping your cysts
from growing.

Thank You in Advance for you help,

Noreen

[Diane]

Hello Noreen,
Glad to have you on this support group. I am reading a book called the China Study about vegan low protein diets. I want to write about this book as soon as I finish reading it. For your immediate answer to your question about diet try:
http://www.pkdiet.com/pages/pld/plddiet.htm

A diet for PLD Polycystic Liver Disease:

[ consider eating no animal protein ]
plant based alkaline diet the best for easing the symptoms of PLD. There are a few modifications added to this:
neutral protein or 0.6 grams/kilogram of body weight or 5% PROTEIN DIET what goes in, comes out.
low salt
avoid nightshades
avoid soy, wheat, flax, butter, cheese, eggs, milk, dairy.

Here is a short list of avoid foods for PLD
http://www.pkdiet.comt/pages/pld/plddiet.htm#avoid

[Jessica Giardino]

Hello All,

Yes, I too would like to thank Diane for this site and listing all the
foods to have and which to avoid. I have one question about oat bran
hot cereal. I don't see it listed on your grains to eat. I either have
this with blueberries on top or organic brown rice hot cereal. It is
17 degrees outside and expected to snow. Do health food stores carry a
hot spelt cereal? I have cooked millet and have enjoyed that. I like
variety in the cereals category for breakfast.
Who is the author of China Study? I would like to read that.
I used to eat corned beef and cabbage. Any yummie recipe for a
substitute for the beef and would go well with cabbage?

Thanks,
Jessica

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[Diane]

For your pleasure consider reading the book 

Born to Run   about the Tarahumara Running Tribe from Mexico.

http://www.amazon.com/gp/product/0307266303/ref=pd_lpo_k2_dp_sr_1?pf_rd_p=304485901&pf_rd_s=lpo-top-stripe-1&pf_rd_t=201&pf_rd_i=0739383728&pf_rd_m=ATVPDKIKX0DER&pf_rd_r=1EF6RWM1FD828C0JZ930

I just bought some chia seed

http://goneraw.com/forum/my-perfect-pre-marathon-breakfast-chia-seeds-what-do-you-eat-breakfastdinner-long-run

http://ladiehlcrr.abmp.com/products/hpdi/proddtls/recipeschia.htm

Here is an interesting blog from the meatless runner:

http://www.nomeatathlete.com/tarahumara-pinole-chia-recipes/

There are some interesting recipes on this site for chia, chia beer and pinole from the book  Born to Run .

Diane

[Diane]

After reading The China Study, I am going for a totally plant based diet with some PKD modifications i.e. avoiding soy, nightshade, wheat, starfruit, etc. I am willing to give up the occasional pat of butter. I have switched to hempseed milk while traveling. Just this morning for breakfast [in a hotel with breakfast provided]
breakfast
hot lemon water [I picked some myer lemons from my sister's tree]
hot oatmeal with raisins, almonds [I brought], sliced banana, hempseed milk
spelt toast [bought]
drizzled with cinnamon and honey

The reason I do not recommend oats or oatmeal is some seem to have a sensitivity to oatmeal and has a super laxative effect. I also read oats are fed to cows just before market to fatten them up. And oats has been a source for one salmonella beef outbreak. Otherwise, if you do not notice this difficulties, then oatmeal is fine.

Spelt has pressed flakes available through Bob's Redmill, Arrowhead Mills Spelt Flakes, Eden Spelt Flakes.
I buy the grains of spelt and chop them in a food processor, soak overnight, then cook the following morning. To me they resemble eating a warm bowl of chopped nuts. This taste is totally different from eating spelt flakes which is similar to oatmeal. I happen to have a grain grinder and grain flaker making machine.

I also read in the China Study something confirmed what I have experienced and that is that wheat products are higher in phytic acids than any other grain. Acids in grains, especially phytates can increase PKD symptoms of bloating.

Diane

On Jan 22, 2010, at 5:57 AM, Jessica Giardino wrote:

[Jessica Giardino]

Diane,
I ordered the book The China Study. It sounds interesting.
I have a friend,Kathy, who doesn't have PLD but she is having a rough
time getting rid of yeast in her body. She is in pain everyday from
fibromyalgia. What dietary advice could I offer her? She eats animal
protein and salads and no sugar or breads or anything with yeast but
still has yeast. I recommended probiotic acidophilis and she says she
takes that. I thought you may have a few ideas to share or if anyone
on this site would like to share something that has helped them.
Appreciatively,
Jessica

[Diane]

Can your friend see a urologist? They sometimes prescribe some alkalizing medications to help her remain alkaline. I have been told in an alkaline environment, yeast will not over grow.

She continues to eat meat? This is acidic producing.

Diane

[Diane]

Dear Noreen,

I have just updated the avoid food list at

http://www.polycysticliverdisease.com/html/pld_diet.html

If you happen to own a mac, running safari, you click on the reader at the top of URL

http://www.polycysticliverdisease.com/html/pld_diet.html

and read this page without distractions.

The new avoid foods 

http://www.polycysticliverdisease.com/pdf/avoidfoodPLD.pdf

If any have any comments, additions or subtractions, let me know.

How about the color scheme? Is it easy to read?

~Diane