Re: [External] [PolycysticLiverDisease] Abridged summary of polycysticliverdisease@googlegroups.com - 6 updates in 1 topic

[Ivers, Karen]

Thank you for letting us know about Diane.  Hers was the first group I found having to do with this disease.  She was how I got connected with Dr. Torres and the Mayo Clinic. She touched and impacted many lives. May she rest in peace and be blessed for all the kindness and support she brought to others.

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From: polycysticl...@googlegroups.com <polycysticl...@googlegroups.com>
Sent: Sunday, November 3, 2024 11:51:59 AM
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Subject: [External] [PolycysticLiverDisease] Abridged summary of polycysticl...@googlegroups.com - 6 updates in 1 topic

 

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• Hi All - 6 Updates

Hi All

Marie Ursitti <saman...@verizon.net>: Nov 03 06:18AM Hi All - I don't know how many follow this group anymore or if it is still running.  If you are, please let me know.  Not sure if any of you heard, but Diane Smith the  founder of this group, ...more

zoe shadesofgreeninc.net <z...@shadesofgreeninc.net>: Nov 03 06:58AM Marie, we’ve spoken, but wanted to let you know I received this. You summed up everything I wanted to say. I’m sorry for the loss we all fell for the woman who saved so many. ...more

isdzaan <isd...@gmx.net>: Nov 03 04:33AM -0300 Hi Marie and all of you,   Thank you so much for sending this notification, sad though it is.  The only comfort is that she went peacefully, after all the battles she fought.   I, too, am one who ...more

Tanya Wilson <tany...@gmail.com>: Nov 03 12:55AM -0700 Thank you, Marie.   I too found Diane's website after my doctors said there was nothing they could do. I got so much help thanks to all her hard work and grace for sharing it with so many searching ...more

Mark de Buisseret <mde...@aol.com>: Nov 03 09:12AM Hi Od like to send my condolences and hope the group carries on like Diane would want. My health has taken a downward turn since suffering COVID in 2021. My walking has gone particularly bad and my ...more

Susan Hurley-Glowa <shurle...@gmail.com>: Nov 03 06:26AM -0600 Thank you for this message about Diane's passing. I also sought out and benefited from her work as I learned about PLD. Luckily for me, I have the gene but it has never progressed past multiple small ...more

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[Neus]

Thanks Marie for letting us know. 

I am really sad for her. Diane's kindness and these groups have always been of great help and support to me. I have PKD and PLD and finally had to go for a liver transplant almost two years ago.

I wish to continue being part of this group and hope to recover access to PKDDiet web page that I check regularly and does not work anymore. 

Thanks for your help

Neus Assens 

El dg., 3 de nov. 2024, 19:52, <polycysticl...@googlegroups.com> va escriure: