Fyi

[Diane Smith]

Today I’m 75 with PKD!! Hurray !!!


Sent from my awesome Blue iPhone 13

~Diane

[John & Diane Ellis]

You're an amazing person, Diane! Happy birthday to you! I know you'll have a wonderful meal to celebrate!

Diane Ellis

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[Mark de Buisseret]

Happy birthday

Mark 

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[isdzaan]

Congratulations!  And may this be but the start of a super year for you 😁

[Marianne Pope]

Happy Birthday
Xxxx

Marianne
Www.varca.com

Sent from my iPhone

> On 13 Nov 2022, at 19:08, 'Diane Smith' via PLD Polycystic Liver Disease <polycysticl...@googlegroups.com> wrote:
>
> Today I’m 75 with PKD!! Hurray !!!

>
>
> Sent from my awesome Blue iPhone 13
>
> ~Diane
>

> --
> You received this message because you are subscribed to the Google Groups "PLD Polycystic Liver Disease" group.

> To unsubscribe from this group and stop receiving emails from it, send an email to polycysticliverdi...@googlegroups.com.

[PLDiane]

What does everyone take for blood pressure ? I am only taking Olmesartan 10 mg at 9am and 9pm. I was also taking 

Felodopine but my toes and then my feet swoll up. So the doc stopped Felodopine. 

[Marie Ursitti]

Hi Everyone!   My Aunt is 75 years.  She has PKD and PLD.  She is at the point now where she cant eat much at all and gets out of breath easily.  She has a lot of Large cysts on her liver, large belly crushing everything.  She is otherwise very very healthy. Very fit all her life.  Great liver and kidney function etc.  I want to take her to the Mayo to see Dr. Torres and Dr. Nagorney for a consultation.  I dont know at her age if she is a candidate for a liver resection but need to find out.  

I had my surgery there 13 years ago and am doing well today.  Glad I did it.  I just want to help her.

Thanks - Marie

[MARIE Ursitti]

Hi Everyone!   My Aunt is 75 years.  She has PKD and PLD.  She is at the point now where she cant eat much at all and gets out of breath easily.  She has a lot of Large cysts on her liver, large belly crushing everything.  She is otherwise very very healthy. Very fit all her life.  Great liver and kidney function etc.  I want to take her to the Mayo to see Dr. Torres and Dr. Nagorney for a consultation.  I dont know at her age if she is a candidate for a liver resection but need to find out.  

I had my surgery there 13 years ago and am doing well today.  Glad I did it.  I just want to help her.

Thanks - Marie 

On May 26, 2023, at 2:19 PM, 'Marie Ursitti' via PLD Polycystic Liver Disease <polycysticl...@googlegroups.com> wrote:



[zoe shadesofgreeninc.net]

Hi Marie,

I’m sorry to hear that your aunt is having these troubles. We can relate.

I would call Dr Nagorneys office, tell his nurse he did your resection and tell them about her health in general. She sounds like she’s in great health except for her large organs.

Much Love and prayers🙏

Zoe

Sent from my iPhone

On May 26, 2023, at 11:52 AM, 'MARIE Ursitti' via PLD Polycystic Liver Disease <polycysticl...@googlegroups.com> wrote:



Hi Everyone!   My Aunt is 75 years.  She has PKD and PLD.  She is at the point now where she cant eat much at all and gets out of breath easily.  She has a lot of Large cysts on her liver, large belly crushing everything.  She is otherwise very very healthy. Very fit all her life.  Great liver and kidney function etc.  I want to take her to the Mayo to see Dr. Torres and Dr. Nagorney for a consultation.  I dont know at her age if she is a candidate for a liver resection but need to find out.  

I had my surgery there 13 years ago and am doing well today.  Glad I did it.  I just want to help her.

Thanks - Marie 

On May 26, 2023, at 2:19 PM, 'Marie Ursitti' via PLD Polycystic Liver Disease <polycysticl...@googlegroups.com> wrote:



Hi Everyone!   My Aunt is 75 years.  She has PKD and PLD.  She is at the point now where she cant eat much at all and gets out of breath easily.  She has a lot of Large cysts on her liver, large belly crushing everything.  She is otherwise very very healthy. Very fit all her life.  Great liver and kidney function etc.  I want to take her to the Mayo to see Dr. Torres and Dr. Nagorney for a consultation.  I dont know at her age if she is a candidate for a liver resection but need to find out.  

I had my surgery there 13 years ago and am doing well today.  Glad I did it.  I just want to help her.

Thanks - Marie

On Sunday, November 13, 2022, 02:08:49 PM EST, 'Diane Smith' via PLD Polycystic Liver Disease <polycysticl...@googlegroups.com> wrote:

Today I’m 75 with PKD!! Hurray !!!

Sent from my awesome Blue iPhone 13

~Diane

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[Diane Smith]

Drs Ngirney and Torres may have some ideas on how to nelp her.

Diane

To view this discussion on the web visit https://groups.google.com/d/msgid/polycysticliverdisease/684EB258-49F0-4AE2-AE66-E659AE584FCB%40shadesofgreeninc.net.

[MARIE Ursitti]

Yes I am hoping if she can’t get a resection maybe she can go on Octreotide or other medicine to help shrink her cysts.  Fingers crossed.  😊

On May 26, 2023, at 3:25 PM, 'Diane Smith' via PLD Polycystic Liver Disease <polycysticl...@googlegroups.com> wrote:

Drs Ngirney and Torres may have some ideas on how to nelp her.

To view this discussion on the web visit https://groups.google.com/d/msgid/polycysticliverdisease/2C695E69-CEE3-4E40-A053-FE8FBEC9DFAE%40mac.com.