Does Lanreotide affect bone density?

36 views
Skip to first unread message

Anne Morgan

unread,
Dec 13, 2020, 7:54:37 PM12/13/20
to PLD Polycystic Liver Disease
I live in Australia (Adelaide) and have been taking Somatuline 120mg Autogel (Lanreotide) for 5 years to help with PLD.  My liver volume is currently 4551ml.

I have just started having rib fractions (without incident). I am about to have some scans to determine if the cause is due to the large liver.  I also have osteopenia.

Does anyone know if Lanreotide can cause low bone density?  And are there any papers on this subject? 

Many thanks
Anne

Mark de Buisseret

unread,
Dec 13, 2020, 8:02:26 PM12/13/20
to polycysticl...@googlegroups.com

Hi

Im not on that drug so I dont know without research but PKD and PLD can lead to vitamin d deficiency can cause renal osteodystrophy which is like osteoperosis. It affects bone  density severely.

Mark


--
You received this message because you are subscribed to the Google Groups "PLD Polycystic Liver Disease" group.
To unsubscribe from this group and stop receiving emails from it, send an email to polycysticliverdi...@googlegroups.com.
To view this discussion on the web visit https://groups.google.com/d/msgid/polycysticliverdisease/89b38699-4cf2-45fe-a01c-7a8ad5aa1f00n%40googlegroups.com.

Diane

unread,
Dec 13, 2020, 10:09:09 PM12/13/20
to Polycystic Liver Disease Google
Octreotide
www.pkdiet.com/pld_lanreotide.php
Some aorticles:
Side Effects

I too have osteopenia, I tried a drug to decrease this. Then I went on a Holiday from the drug. I now take 4 micrograms of estrogen suppository twice a week, It is a very small dose and has been studied for about 20 years,


Good luck


~Diane

On Dec 13, 2020, at 2:54 PM, Anne Morgan <nikm...@gmail.com> wrote:

I live in Aus!
Anne

Anne Morgan

unread,
Dec 14, 2020, 12:58:32 AM12/14/20
to PLD Polycystic Liver Disease

Thanks ver much Mark and Diana :)

Kathryn Hayes

unread,
Jan 5, 2021, 4:27:54 PM1/5/21
to PLD Polycystic Liver Disease
I've been on pasereotide for 3 years and Somatuluine Lanreotide for going on 4 years without any issues that I know about bone density
Seems to help the growth of the liver

Diane

unread,
Jan 5, 2021, 4:48:01 PM1/5/21
to Polycystic Liver Disease Google
Wow this is great news! My dic won’t allow me to take it I’mm 73years old.

Be sure to keep getting liver function tests,



~Diane

--
You received this message because you are subscribed to the Google Groups "PLD Polycystic Liver Disease" group.
To unsubscribe from this group and stop receiving emails from it, send an email to polycysticliverdi...@googlegroups.com.
Reply all
Reply to author
Forward
0 new messages