Octreotide

[Tanya Wilson]

I just found out the Octeotide has an oral medication MYCAPSSA. 

 I had previously been on Sandostatin 40mg injections for over 6 years and decided to take a break to see if there was a change. After 6 months, I felt no change and my cysts were staying stable. The second 6 months was when I noticed my cysts growing, much more bloating, and flare up pain that lasted a week or two at a time. (If I had cyst pain while on injections the seemed to go away after a day.)

I asked my Dr. to put me back on Sandostatin and then I discovered the oral medication, MYCAPSSA So my question is has anyone tried the oral vs. injections and any other feedback on any other medications. 

Thanks,

Tanya Wilson 

[Diane Smith]

I have never tried this

Diane 

Sent from my awesome Blue iPhone 13

~Diane

On Oct 13, 2022, at 7:17 PM, Tanya Wilson <tany...@gmail.com> wrote:

I just found out the Octeotide has an oral medication MYCAPSSA. 

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[Mark de Buisseret]

What?

Sent from Mark de Buisseret
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[Vanessa Evangelista]

I haven’t either but interested!

Sent from my iPhone

On Oct 14, 2022, at 5:06 PM, 'Diane Smith' via PLD Polycystic Liver Disease <polycysticl...@googlegroups.com> wrote:

I have never tried this

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