PLD Research Opportunity for UK Residents (20-451)

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Leanne Freeman

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Jan 19, 2021, 2:53:34 PM1/19/21
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Dear Admin,

 

I am working on behalf of a market research company to recruit participants for a market research study on Polycystic Liver Disease.  

 

As you know, there is very little research into PLD and this is an opportunity for people who have the disease to have their voices heard.  Please find attached a flyer containing more detail about the research.  I would be very grateful if interested parties please contact me so that I can share more information about the research and next steps. 

 

 

Best Regards,

Leanne

 

 

cidimage002.png@01D67569.92461290

 

Leanne Freeman

Project Manager

Evolve-Fieldwork Ltd.

leanne....@evolve-fieldwork.com

Skype: leanne.freeman

http://www.evolve-fieldwork.com/

 

 

 

Mark de Buisseret

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Jan 19, 2021, 3:27:34 PM1/19/21
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There doesnt seem to be an attachment.

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Lucia Chamrazova

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Jan 19, 2021, 11:06:45 PM1/19/21
to mdebuis via PLD Polycystic Liver Disease
HI Leanne,

I have PKD and PLD as well with liver enlarged to 11kg .

,PLease let me know how can I help.

Kind regards,
Lucia 


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Leanne

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Jan 20, 2021, 1:22:38 PM1/20/21
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Hi there,

Apologies, I don't seem able to add an attachment.  The details are in this email and I can of course answer any questions you may have if you would like to contact me directly:

Just to highlight that the research is only open to residents of the United Kingdom.

TELEPHONE INTERVIEW STUDY ABOUT EXPERIENCES AMONG ADULTS WITH POLYCYSTIC LIVER DISEASE

Evolve Fieldwork Limited a market research company in the UK, and The Brod Group, a science-based health outcomes research group, is looking for participants to help us better understand the experiences of adults with polycystic liver disease.

We are looking for:

  • Adults who have been diagnosed with polycystic liver disease who are at least 18 years old

You will be asked to:

  • Participate in a 1-hour telephone interview to talk about your experiences with polycystic liver disease

OR

  • Complete a brief questionnaire about your experiences related to polycystic liver disease, followed by an interview where you will be asked about your experience completing the questionnaire (for example, did you understand the questions, were they relevant to your experience, etc.)
  • Your interview and questionnaire responses will not be kept or shared with healthcare provider. What you say during the interview will only be used to better understand the experiences of adult patients with polycystic liver disease
  • You will receive a payment of £80 for participating
Please do reply if you are interested in hearing more about the research and next steps.

Thanks very much!
Leanne Freeman
Evolve Fieldwork Ltd

samgood...@googlemail.com

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Jan 20, 2021, 1:31:03 PM1/20/21
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I have PLD, I am 52 and live in Leeds
Sam Goodall 


Sent from my iPhone

On 20 Jan 2021, at 18:22, Leanne <leannep...@gmail.com> wrote:



Diane

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Jan 20, 2021, 1:41:05 PM1/20/21
to Polycystic Liver Disease Google
Dear Sam, 
This site tells all about PLD

This site contains much information about PLD"
On the right is the word 


Consider exploring topics from across the top or click the More button on the right choosing PLD symptoms, PLD treatment, PLD research. Words in brown are links. This site contains details on cystic organ disease. If you cannot find what you are looking for, contact us, try the search engine or the language translator located at the bottom.


at the bottom of this page is a search





Welcome to this group. You will find much information from the members.
If you would like to be in touch of others from Leeds, please write.

~Diane


Marianne Pope

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Jan 21, 2021, 10:27:56 AM1/21/21
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Hi Leanne

I am 63 and have PLD and also PKD slightly, I have had it for 13 years.

Thank you


Marianne Pope



Leanne

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Feb 3, 2021, 7:23:37 AM2/3/21
to PLD Polycystic Liver Disease
Hi All,

Thank you to the members of the group who have participated in the research - we really appreciate it!

We have a number of interview slots still available and would welcome anyone with PLD who is interested and living in the UK, to please contact me.

Thanking you in advance.

Leanne Freeman

Project Manager

Evolve-Fieldwork Ltd.

leanne....@evolve-fieldwork.com

Skype: leanne.freeman

http://www.evolve-fieldwork.com/


Rachel Jones

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Feb 3, 2021, 2:12:05 PM2/3/21
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Hello,
I am female, 52 and live in Gloucestershire and would be interested in participating in the interview process. 
Regards
Rachel Harper

From: polycysticl...@googlegroups.com <polycysticl...@googlegroups.com> on behalf of Leanne <leannep...@gmail.com>
Sent: Wednesday, February 3, 2021 12:23 pm
To: PLD Polycystic Liver Disease
Subject: Re: [PolycysticLiverDisease] PLD Research Opportunity for UK Residents (20-451)
 

celia tsirpis

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Feb 4, 2021, 3:41:45 AM2/4/21
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Hi Leanne 

Thank you for getting in touch.

I would very much like to take part as it has been a long frustration of mine that very little research has been carried out on PLD or is it very well known publicly.

I’m 49 from London and also have PKD.

hope to hear from you.

Kindest regards
Best

Celia

Sent from my iPhone

On 3 Feb 2021, at 12:23, Leanne <leannep...@gmail.com> wrote:

Hi All,

Mark de Buisseret

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Feb 5, 2021, 4:47:33 PM2/5/21
to polycysticl...@googlegroups.com

Not enough research is being done for both diseases in the UK especially given the effects particularly with PKD as it spreads between organs and treatment cost being high and long.

Mark

Leanne Freeman

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Feb 8, 2021, 4:19:33 AM2/8/21
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Hi Mark,

 

You are right – there does not seem to be a lot of research in this area. 

 

Could I interest you in participating in our research?  You can contact me directly on Leanne....@evolve-fieldwork.com if you’d like more information.

 

Regards,

Leanne

 

From: 'Mark de Buisseret' via PLD Polycystic Liver Disease <polycysticl...@googlegroups.com>
Reply to: "polycysticl...@googlegroups.com" <polycysticl...@googlegroups.com>
Date: Friday, 5 February 2021 at 21:47
To: "polycysticl...@googlegroups.com" <polycysticl...@googlegroups.com>
Subject: Re: [PolycysticLiverDisease] PLD Research Opportunity for UK Residents (20-451)

 

Not enough research is being done for both diseases in the UK especially given the effects particularly with PKD as it spreads between organs and treatment cost being high and long.

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