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May is CF Awareness Month which is the perfect time to introduce our new CF Care Newsletter! This monthly newsletter will give you the latest CF news, journal articles, and discussion in one email.
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Coming Full Circle: Reflections and Inspirations from a Cystic Fibrosis Patient Scientist Panel
Alexandra “Xan” C. H. Nowakowski, PhD, MPH, Gabriella “Ella” Balasa, BS, Miriam F. Figueira, PhD, Francis “Tré” J. LaRosa, III, BS, and James M. J. Lawlor, MS
A collaboration with patients and the research community to provide insights into the patient experience. This publication details the roles in bridging the gaps between patients and the research community. Read more
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Cystic Fibrosis-Related Liver Disease is an Independent Risk Factor For Mortality And Increased Health Care Resource Utilization In Hospitalized Pediatric Patients With Cystic Fibrosis
Aravind Thavamani MD,Krishna Kishore Umapathi MD, Katherine Kutney MD, Thomas J Sferra MD, Senthilkumar Sankararaman MD
A study including more than 94,000 CF-related hospitalizations found that CF-related liver disease, which is trending to higher prevalence, is associated with twice the risk of inpatient mortality. Read more
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CME/CE Resource
Does Race Impact CF Diagnosis and Care?
Jennifer Taylor-Cousar, MD, MSCS and Kamyron Jordan, MD, PhD
BIPOC (Black, Indigenous, people of color): why is an accurate diagnosis of cystic fibrosis so often missed — or delayed, or misdiagnosed — in these groups? Why do people with CF from historically marginalized communities show an increased prevalence of Pseudomonas infection, more frequent pulmonary exacerbations, and higher mortality rates? Read more
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COPD Exacerbations
Drs. Brad Drummond and Allison Lambert
Podcast episode discussing COPD exacerbations. Learn more
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Show your support during CF Awareness Month!
Here are some resources from the CF Foundation.
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