Hi from NZ
Jane rendall
This group has gone very quiet so it was interesting to be back in touch today. I feel very fortunate when I read your post Deb - I was diagnosed in Nov 2009 and had a lamionplasty in Dec 09 which successfully decompressed things to give me feeling back in my hands and relieve stiffness in upper left arm. So far so good and nothing else has seized up although I had a total right knee replacement in January 12 due to osteo arthritis. The OPLL seems not to be affecting me much so fingers crossed this continues.
I really appreciated being in touch with this group when I was first diagnosed and trying to find out what I had! There are some amazing and strong people out there and I do wish you all the best and hope, as Brian said, that silence is positive.
Warm thoughts to you all
Kiwi Jane
Nancy
Sent from my iPhone
Deb
Kiwi jane, so happy to read your surgery was successful and relieved
your symptoms. I've also been told I will need a knee replacement
eventually but hope to postpone that for as long as possible.
Nancy, I'm going to have to google DISH as that term I'm not familiar
with. Isn't it frustrating to wait and wait for a dx then it may not
even be the correct one? Please post an update once you have the
second opinion.
Thinking positive thoughts for all OPLL patients.
On May 13, 2:18 pm, Nancy <nmcinal...@gmail.com> wrote:
> Welcome to our group! I am interested in hearing how everyone is doing. I am still around. I haven't had surgery for OPLL. In fact the most recent OS says I don't have OPLL and dx it as DISH. I also have a congenital fusion causing severe DDD throughout my spine. He has offered a 3 level ACDF with a plate and screws and he admits that it might not help with my pain and may increase the progression of my adjacent segment disease.The stenosis I have isn't bad enough to make it so I have to have the surgery the surgery right now it's my choice. I am getting another opinion soon. I will write more when I am at a laptop. I am slow thumb typing.
> Nancy
>
> Sent from my iPhone
>
>
>
>
> > This group has gone very quiet so it was interesting to be back in touch today. I feel very fortunate when I read your post Deb - I was diagnosed in Nov 2009 and had a lamionplasty in Dec 09 which successfully decompressed things to give me feeling back in my hands and relieve stiffness in upper left arm. So far so good and nothing else has seized up although I had a total right knee replacement in January 12 due to osteo arthritis. The OPLL seems not to be affecting me much so fingers crossed this continues.
> > I really appreciated being in touch with this group when I was first diagnosed and trying to find out what I had! There are some amazing and strong people out there and I do wish you all the best and hope, as Brian said, that silence is positive.
> > Warm thoughts to you all
>
> - Show quoted text -