Hi Group,
Dale Fitch, here, an academic in social work. I cut my teeth as a social worker 30 years ago on the United Way's "Bluebook," the forerunner for all community resource directories. I moved to academia 15 years ago and do research on human services and technology <http://ssw.missouri.edu/faculty_fitch.html>. I cut my I&R 'digital' teeth on the 2-1-1 implementation in Michigan in the early aughts. That experience and my other research has really guided me to the conceptual side of information system design, ala, soft systems methodologies, etc., focusing on the 'requirements analysis' process. I shudder whenever I hear a project team member utter 'scope creep' because that means requirements were not properly done in the first place. I have found my work in that area makes my eventual database design work flow a lot more smoothly. In principle I am very attracted to the idea of Open Referral; however, I believe at this time we are talking more about directory standards as opposed to actually doing referrals. That's fine as long as we remember the difference between the two.
Regards,
Dale
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Dear Group,
A couple of observations based on today's introductions. But first, just to clarify, while I sometimes speak fondly of 2-1-1, I have never worked for, nor ever received any funding from, any 2-1-1 entity or AIRS in any way, shape or form. Two, my interest in I&R extends back to the early 90s when the federal government had a grant program entitled TOP (Technology Opportunities Program). By the late 90s many communities across the U.S. had "community resource directories" funded by this program. Unfortunately, I know of known that still exist. As such, when 2-1-1 came along, and offered to provide web based information and 'information kiosks' in the mall, it seemed like a new day was dawning. In retrospect, the technologies were very primitive, but they were going in the right direction as their intent was always to make the information publicly available.
From my perspective the technology has rarely been the problem. The 2-1-1 folks (at the national level) knew it would evolve and from my perspective they were fine with that. How that was implemented at the local level I'm sure was a different matter. Instead, I believe the primary problem lies with the accuracy of the data. My information systems research echoes exactly what Jarred said (I know Jarred made the following comment referencing a prior position), "only to find out that a site has closed or a service is no longer offered..." Keeping the underlying data accurate and current is not easy. David's posting highlights the other brutal reality in that someone has to pay to keep that data accurate. Then having that data "stolen" just does not work over the long term as it will always detrimentally impact community relationships.
I understand the beauty of APIs and how they can be a tremendous labor saving device, but if they are scraping data for which other people have had to pay to produce, then I think that goes by another word - theft. I fully appreciate the Creative Commons license (and have used it with some of my own products) and the API Commons <http://apicommons.org/>, but I believe those relationships, motives and behaviors must be very explicit and they must be honored.
Ideally, if we can derive a schema (e.g., schema.org) based upon a robust taxonomy (e.g., AIRS) and if we can get agencies to use this schema on their websites, and if they update that information when changes occurs, then we may go a LONG WAYS toward having a fully automated data update system. Then the API spiders can crawl all they want!
Best,
Dale
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I understand the beauty of APIs and how they can be a tremendous labor saving device, but if they are scraping data for which other people have had to pay to produce, then I think that goes by another word - theft. I fully appreciate the Creative Commons license (and have used it with some of my own products) and the API Commons <http://apicommons.org/>, but I believe those relationships, motives and behaviors must be very explicit and they must be honored.
Hi
My name is Keith, I'm an Information & Referral Database Specialist with an Area Agency on Aging, Aging and Disability Resource Center.
I came into the Health and Human Service Industry by back roads, my qualifications are in Engineering, data, digital, micro processing control, software and hardware design. The reason for saying all that is I am also an immigrant and arriving here I couldn't find work in my field because no-one understood my qualifications, mine are mostly vocational, here they were looking for academic, they had the data, but not the information to make an informed decision about my abilities, and that is the difference we in the Information and Referral business are worried about, you can scream all you want about openness, but information is to data as chocolate is to ice-cream, unless what we are giving is the information the person is looking for, it is a usless collection of data. I&R have been providing this service for a long time, on a local basis, I'm all in favor of combining, we've advocated for it at AIRS for a l ong time, but to get this information costs, and someone has to pay the bill, sure we'll share our information, will you share the cost?
My name is Stephanie Sanchez, I am the Statewide Director for 2-1-1 Colorado.
I work for Mile High United Way.
I have been with the 2-1-1 program for 9 years.
I’ve been stockpiling all the emails and just finished reading one month’s worth of conversations HaHa
Interesting read, and it seems we are still drilling down on terminology, common needs & objectives and debating over perceptions and reality.
I agree with the challenges, not sure yet where I land on my choice of solution, so at present, I am a “lurker”.
I will close with one “perception vs reality”. Roads and libraries are not free. We all pay for them with our tax dollars. And I guess in many ways, that’s the heart of this project/topic, sustainability for the work we each do.
Stephanie Sanchez, CIRS
2-1-1 Statewide Director, Colorado
Mile High United Way
stephani...@unitedwaydenver.org
Check out the NEW Mile High United Way website at:
http://www.unitedwaydenver.org
From: OpenRe...@googlegroups.com [mailto:OpenRe...@googlegroups.com] On Behalf Of Greg Bloom
Sent: Monday, April 07, 2014 2:29 PM
To: openre...@googlegroups.com
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Hi Everyone,
I’ve been the Information and Referral Coordinator at 2-1-1 Big Bend in Tallahassee, FL for about three and a half years. I oversee two Resource Specialists who help maintain our program data. We use IRis 4.0. I also maintain our Intranet and Internet websites and am involved in a number of different community collaborations on behalf of the agency. My degrees are in communications and information technology. Prior to joining 2-1-1 I worked for a consulting firm mainly in the education data field (Reading First, No Child Left Behind, student assessment data, etc.). Before that I was a website/database manager for state government. I’m mainly interested in finding out more about the project, offering the perspective of a data manager for a small to mid-sized 2-1-1, and learning what I can to improve the field.
Thanks for allowing me to participate and I look forward to engaging in a robust discussion with all of you.
Jim
Jim Christie, MS, CRS
Hi all,
I am VP for Strategy and Head of West Coast Ops for Single Stop, a national organization spun out of the Robin Hood Foundation in New York City.
We work with partners across the country to provide coordinated access to benefits and services (both traditional state and federal benefits and community-based resources like food pantries, legal services, etc).
Since 07 we’ve developed partnerships in about a dozen states and touched almost a million students and families across the country connecting them with resources in excess of $2.5 billion….with more than 42 million American’s living at or below FPL and more than 50% of community college students dropping out b/c they can’t afford to stay we think the opportunity is significantly greater.
Very glad to be looped in and look forward to being part of the conversation!
Best,
Nate Falkner
Vice President of Strategy and Interim Regional Director, West Coast
Single Stop USA
369 Pine Street, Suite 503
San Francisco, CA 94104
P: 415.391.7170
C: 646.919.6064
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From: OpenRe...@googlegroups.com [mailto:OpenRe...@googlegroups.com] On Behalf Of Jim Christie
Sent: Wednesday, April 16, 2014 10:13 AM
To: OpenRe...@googlegroups.com
Cc: openre...@googlegroups.com; bl...@codeforamerica.org
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I’m very excited to be participating in the Open Referral project. As some of you may know, I have been promoting integration in I&R for quite some time. From my long experience in the software industry, it is has always been clear to me that the technology is critical in I&R.
I have been involved with most of the integration work in I&R thus far. However, the industry still has a long way to go. AIRS has been driving the process, and I have supported the organization as much I have been able. I started a consulting practice in 2008 and have strived to deliver strong solutions to clients across the I&R space and beyond.
So far, progress has been intermittent and there is no definite path to completion. I have always believed that in order for timely progress to be made with integration, the initiative would need a large “dose” of leadership.
With the introduction of the Open Referral initiative entrance in I&R, the reality of integration has become tangible. I think that some of the work I have completed toward the initiative can be put to use for this group's purposes. For example, I custom-built a Saleforce.com information-management system for Help Me Grow that generated considerable buzz in the network. I was invited to demonstrate the effectiveness of the system in front of several Help Me Grow executives, and the platform was well received. I believe this kind of success can be re-created for all of I&R.
My observations regarding the I&R environment are shaped from years experience performing integration in the software industry. I worked at NetSuite for more than three years managing their SaaS integration strategy. Additionally, I have completed 200 enterprise-level and non-profit Salesforce implementations.
In light of this experience, I have given considerable thought to how integration in I&R might play out and what the path to success would be. I believe that the first steps would be to identify use-cases for integration within I&R, and have already begun work to identify these. Afterward, there are numerous paths to success worth discussing.
Now that integration in I&R has become imminent rather than eventual, I wish to support the initiative as much as possible. Look forward to collaborating with you all!
Regards,
Aaron
Aaron G. Blackledge
Lead Strategist
GeauxPoint
Hi folks -
As our work together gradually gets started, I want us all to take some time to introduce ourselves. Declan and Devin have already done so, and I hope to see everyone on this list eventually follow suit. (I know some of y’all may just be trying to lurk… be prepared to get noodged!)
We all want to know:
A bit about who you are.
Your experience with referral information systems, and what brought you to join this group.
A potential 'use case' of community resource data that you hope this work can make possible.
AND please share at least one or two of the following:
What are some resources you can bring to the table?
What needs do you have, with which others might be able to help?
What questions do you want us to try to answer?
Okay, I’ll go first!
Hello everyone,
I'm Jack Madans. Officially, I manage government partnerships at Code for America. But - like many of you - I wear a few hats around CfA, including overall responsibility for our participation in Open Referral.
Before I jump in, I want to say how heartened I have been by the posts to this thread. I'm humbled by the I&R veterans, librarians, standards experts, technologists, entrepreneurs, information architects, organizers, and academics tuning into this work. Even more exciting is that most you work at the intersection of two or more of these worlds.
Apart from the end user help seekers themselves, CfA is doing this work for people like Jennifer M and Carol Wood: dedicated public servants whose institutions are strained for the time and budget for trying new approaches.
I caught the Code for America bug early on when we launched our first Fellowship class in 2011 - through our Fellowships, we embed programmers, designers, and data folk in local government and support them in working on civic challenges identified by those governments. Since 2011, fellowship teams have deployed to nearly 35 municipalities, we've organized a 2000-person strong Brigade of volunteers, created an accelerator program to bring more tech entrepreneurs to gov tech, and started a professional development and peer network for government staff. It's our goal to bring these resources - and this community - to bear to help make it easier to help people in need find critical services.
As the Open Referral backstory explains, last year a group of Code for America Fellows had a breakthrough in creating Ohana, an open API for San Mateo County Human Service Agency’s previously closed database of social services. We see Open Referral as an opportunity to build on that momentum, working with a network that spans the I&R ecosystem to develop a new standard that can help all kinds of efforts to make this data easier to collect, share, and re-use.
I think our broad network of civic hackers and local government innovators is in a way an ideal environment in which to grapple with this work. One important note to make here is that Code for America is the hub of a broad network of active idealists who often chart their own path forward; there are many things that happen in a Code for America context which our actual organization may not bear any direct responsibility for. That said, we model behavioural from HQ. So with that in mind, I think it’s important to outline the principles that I enumerated to our staff, to the Ohana team, and to Greg directly, as we agreed to co-sponsor this effort. Here are those principles:
If you've gotten this far, I appreciate it :)
I look forward to demonstrating that Code for America and our network can be a strong, supportive ally in this effort, as this initiative already demonstrates some of our best characteristics — a bias towards action, with steadfast support to those who take risks in the name of improving our civic infrastructure.
Team BRIDGE
Barry Roeder
Judith Mayer
Last year I had the pleasure of participating in a Nonprofit Technology Network (NTEN) organized year-long “Community of Impact” peer learning group, where we looked at the challenges and opportunities of org-to-org data sharing. What I realized through that and my experiences elsewhere (and documented in our report, “Collected Voices: Data-Informed Nonprofits”), is that relationships based on mutual understanding and trust are key in moving past and many of the barriers expressed by others here. That is likely what will be needed most for this very worthy project to move forward in an inclusive and widely adopted way. I look forward to learning from you all, and contributing to the process when and where I can!
I am very interested in the interaction between 311 and 211. I have had to help define "disambiguation" business process for many of my clients where their human services offerings intersect with the local 211/Help Line I&R services.
I can offer the group the various perspectives and hot button issues for 311 industry.
I look forward to bring an active participant.
James.
Hi allI'm Daniel Lucero, Resource Manager at 2-1-1 Santa Clara County.I manage the 500+ agencies in our database (always updating/adding), continually running reports for cities/counties/agencies, call center improvements etc. Previously with another nonprofit as a resource specialist giving out referrals so I've been on both sides which has only helped me learn about the needs (and unmet needs) in the community. Here to learn more about this exciting project and offer any insight I've picked up through the years of doing information and referral.Daniel Lucero, CIRS-AUnited Way Silicon Valley
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Charles S. Koppelman-Milstein | Developer
We all want to know:
A bit about who you are.
Your experience with referral information systems, and what brought you to join this group.
A potential 'use case' of community resource data that you hope this work can make possible.
AND please share at least one or two of the following:
What are some resources you can bring to the table?
What needs do you have, with which others might be able to help?
What questions do you want us to try to answer?
Okay, I’ll go first!
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Hi! I'm Jordan Lyons. I have my Masters in Public Administration from the University of Montana, and my professional background is in nonprofits.
I work for Missoula Aging Services, an Aging & Disability Resource Center. We provide I&R/A, and currently use Iris from Bowman Systems. We are looking to upgrade our database and improve performance in several ways:
1. Increasing client access to resources online
2. Switching from our system of “keywords” to taxonomy
3. Sharing CRM-type information between many different departments (such as Meals on Wheels, Senior Corps, and agency donors)
4. Making it easier for community groups to keep their own information up-to-date
5. Possibly partnering with groups such as our local 211, hospitals, and/or combining with our state’s database (http://www.montana-adrc.com/)
I look forward to learning together with all of you. Thanks!
Hello group,
I’m David Portnoy. As Entrepreneur-in-Residence* for HHS (U.S. Department of Health & Human Services), I launched a program called Demand-Driven Open Data (DDOD).
Background
DDOD can be described as “Lean Startup for open data”. It consists of a technology platform and methodology that serve as a framework for governments and nonprofits to execute on their open data initiatives. The methodologies take into account real world resource constraints, prioritize work based on actual demand, and measure the value of the data assets delivered. The technology platform consists of tools that catalog data assets, maintain a searchable and semantic knowledge base of use cases, support collaborative online discussions, and automatically measure value delivered and data quality. The DDOD framework quantifies its metrics in terms of three core deliverables: knowledge base, data assets and technical capability. You can find more details in the Introduction for Data Owners deck and the DDOD website for HHS (http://ddod.healthdata.gov).
DDOD has been operating at HHS since late 2014 and has already produced the many quantifiable accomplishments. (Incidentally, I believe a couple of members of this group, including Purple Binder, have been able to leverage DDOD already for their needs.) The next phase of DDOD is to scale it government-wide, beyond its HHS pilot. To that end, a recent workshop at a Data Cabinet meeting held by the White House OSTP (Office of Science and Technology Policy) group may be of interest: The Lean Startup Approach to Open Data.
Data Standards
The reason I’ve been asked to participate in this workgroup is due to my work on DDOD related use cases leading to contributions to data standards. The most prominent are the standards for Provider Network Directories and Drug Formularies that went into effect fall of 2015: http://ddod.healthdata.gov/wiki/Interoperability:_Provider_network_directories. Not only did DDOD result in a convening of an industry workgroup to provide input to regulators of health insurance exchanges, but it went on to leverage the momentum of the new regulations to work with Google in launching a corresponding standard for Schema.org: HealthInsurancePlan, HealthPlanCostSharingSpecification, HealthPlanFormulary, HealthPlanNetwork.
Another area of standardization has been around how to effectively and consistently convey data dictionaries for open data for both machine and human readability. This is an area where the current open data platforms are still at embryonic stages compared to the master data management practices of the commercial world.
Open Referral
I’m a long time fan of the vision behind Open Referral, so it’s about time I joined the group – although I confess that I have to rely on others to point me in the right direction, as I’m not very familiar with this domain. My involvement with Open Referral so far has been to provide strategic input for getting traction and critical mass of adoption and some preliminary review in terms of data interchange best practices and technical implementation. (See Feedback on HSDS folder.) We were discussing the possibility of creating pilot implementations in one of HHS-related service areas:
VA services API and potentially other info about VA clinics (although technically not HHS)
There’s an entry on the DDOD knowledge base describing the concepts and benefits behind the standard: http://ddod.healthdata.gov/wiki/Interoperability:_Directories_of_health,_human_and_social_services. Once we have a pilot identified, I may be able to assist further in implementing it as a DDOD use case.
_____
* The Entrepreneur-in-Residence position is a fellowship where the government brings in experts from industry to launch new initiatives. In real life, I’m health tech CTO, big data architect and mentor for startups.
I became a member of this community shortly after International Data Day, the first day to the start of Data Week. I attended NYC School of Data Conference where I learned about recent initiatives and resources, and Greg Bloom's name and initiatives were referred to specifically.
My work and effort is centered on data. Whether it is my formal day job as an analyst, an open data advocate and entreprenuer, my core focus is to show and apply the benefits of data.