I've been playing catch up on some old email and I found one from
CLEONet that is very useful.
It describes in clear cut terms what you need to know if you're on ODSP
and will soon be eligible for OAS, etc. It had some interesting
surprises in there. Like, ODSP only stops if you are no longer income
eligible. It then tells you how you could become income eligible (mainly
for the extended health care benefits) if you think you're at risk that
you won't be.
Here is the link:
http://www.cleonet.ca/resource_files/1320774574ODSP&Aging.pdf
If some people are using a screen reader and these PDF files are not
accessible, please let me know. It will be easy to do a copy and paste
into an email so everyone can read it.
justice4odsp
My mistake was fighting to get off medication. When I did that, I no
longer qualified for the extended health care benefits when I was
working full time. The wheelchair repairs and medical supplies didn't
add up to enough. I was told I could get CCAC to pay for the catheter
supplies, so I was cut off. Thankfully I had a good employee plan.
The policies just literally don't make sense. They are designed to
encourage one to stay as helpless as possible. The more progress you
make to adapt to your disability, the more funding and services you lose.
justice4odsp
It's really lucky you were able to work long enough to put money aside
like that. I worked full-time for 18 months and I also worked a few
part-time jobs for the maximum hours they would give me; 15 hours per
week and no benefits.
When I was working at $12.06 per hour, I wasn't able to put much aside
because all the other costs went up an insane amount. I knew things
would go up and I accepted it, but I didn't realize I would loose
several hours of attendant care and there would be so little left over.
It made me realize that I wasn't as bad off as I thought I was on ODSP
because I live in subsidized housing.
I was working for $22,500 per year (a gold mine in my eyes) and my
subsidize rent plus hydro totalled $588. I was working for more than
minimum wage. What do others do? When you consider that, according the
Canadian Mortgage and Housing Corporation web site, the market rent for
a one bedroom apartment in Kingston is $804 now and we have the lowest
vacancy rate in the province, I want to know, how do people survive?
You don't see them sleeping on the streets like you do in Toronto; the
odd one, yes, but not nearly the same numbers. Maybe we have a lot of
shelters. I really don't know. I know a good number of shelters aren't,
at least weren't, wheelchair accessible, but I don't know what the case
is now.
Another thing I learned while working, was that the other employees were
saying they couldn't take on that job and afford to survive if they
didn't have a spouse, kid, parent or whomever, was running the errands,
cooking the meals, and helping them out. Hmmm. I don't have any of
that and I actually lost service to help me with disability related
things, and yet I managed. Does this mean they expect to much, or does
it mean that I am super human? I rather suspect they were expecting too
much (in comparison to what we, on social assistance, are used to). I
don't think they were expecting too much realistic wise because with
more help, they were better able to keep the stress level down. I had to
quit when a simple thing like a 60-day Access Bus strike forced me to
cut my sleep down to 4 hours per night so I would have time to get
everything done and be able to motor the 11 kms to work by power
wheelchair the next day.
I guess having so little employment experience is the price you pay if
you develop a disability at the age of 15 and because of it, are too
incapacitated to work. I am better able to work using a wheelchair,
than I ever was, on the psychiatric drugs. They slowed my head down too
much and the side-effects were incredible. I hope the newer drugs have a
lot less than the drugs like Haldol, Stellazine, Chlorpromazine, and a
few others had. Those drugs used to incapacitate me. For this reason, I
have a high level of compassion and understanding of those who have this
invisible disability and are being judged so severely in today's society.
As for what will happen when I become a senior, it worries me to think
about my eligibility to get extended health care benefits because, when
I took on the full-time job, I was told I didn't qualify because my
expenses aren't high enough. I no longer take medications at all and I
pay on average, $113 for medical supplies and $180 for wheelchair
repairs and upkeep (annual cost/12 months). I see the dentist every 8
months, as is allowed on ODSP, and I get my eyes tested when I need to,
even though I qualify for an annual test instead of a test every 2
years. If ODSP is not in the picture, I will have to come up with the
25% that is not covered by the ADP program. To replace the batteries at
a cost of $550 every few years will also be a big hit because on a low
income, it's not easy to put it aside. There's too many days when an
emergency comes up and you find you need to spend that 'mad money.'
Thankfully I've got a few years to go before I'll seriously have to
worry about it, but it does concern me.
It's for this reason that I keep applying for government jobs. If I get
one, I'll only have to work a few years before I'll be set with a good
pension plan. The applications are in and I keep renewing and updating
my status so they know I'm still interested. I just wish I'd get a bite
or, better yet, an acknowledgment that they're even bothering to look at
me. I have so little work history and so little ability to be flexible,
they're probably just passing me by. They'll know roughly how old I am
by what's written on my resume, unfortunately.
justice4odsp