Re: [NLMSF] Digest for nlmsf@googlegroups.com - 2 Messages in 1 Topic

[Mahoney, Dorien R]

Have had 3 lung surgeries, last one Dec 2010 and no cancer since.  They've come a long way w lung surgery - I remember some pain, but the worst pain was GI (bowel) waking up after anesthesia n pain Meds.  That was intermittent n off n on only a few days.  If you're at a major cancer center, and seeing a reputable thoracic surgeon, that's most important.

Dorien age 64

Diagnosed uterine LMS 5/08 w lung mets

Gem/tax for chemo for 5 months

3 lung surgeries at MDAnderson

NED ( no evidence of disease) since Dec 2010

*I wish you the best!

Sent from my iPhone

On Mar 29, 2013, at 3:28 PM, "nl...@googlegroups.com" <nl...@googlegroups.com> wrote:

  Today's Topic Summary

Group: http://groups.google.com/group/nlmsf/topics

• Surgery vs No Surgery [2 Updates]

 Surgery vs No Surgery

Susan Titus <ansk...@gmail.com> Mar 29 07:42AM -0700  

Need an opinion from some of you in the group. I was diagnosed in September
with stage IV LMS. I had surgery to remove the tumor in my abdomen and
started chemo on 11/1 for the two tumors in my lungs. I have had seven
rounds of chemo and am starting to develop a toxicity to the chemo. The
tumors have reduced significantly and could at this point just be scar
tissue. My oncologist is going to talk to the group running my clinical
trial but I may have to be done with chemo if that is true about the
toxicity. That leaves me with a decision whether to remove the tumors/scar
tissue in my lungs. I am meeting with a thoracic surgeon next week but
would like your opinion. One option is to leave them in and they would
serve as 'markers' to watch for future cancer activity. The other option is
to remove them. The surgery sounds like it would be pretty painful. The
tumors are in the same lung but different nodes and surgery would be very
painful.
 
Thank you for your thoughts and any questions we might want to ask the
Thoracic surgeon.
 
Susan Titus


 

LaVon Esswein <les...@gmail.com> Mar 29 02:16PM -0400  

I would ask if there was any way to do a needle biopsy to make sure if it's
cancer or not. If it's not then surgery wouldn't be needed. I will keep my
fingers crossed it's not. As far as the toxicity goes,,,,,good luck. I
had to stop after 2 rounds I was so toxic. My prayers Ares with you. :-)


 

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[Susan Titus]

Thanks Dorien. It sounds like your journey is very similar to mine. Did you have surgery prior to chemo? How small did your tumors in your lungs get before they were removed?