Cyberknife

[Tim Maher]

Hi Paula,

 

My wife had great success with Cyberknife for multiple tumors, including three on her spine.  If only the rest of it was that easy.

 

Good luck,

TIm

 

From: nl...@googlegroups.com [mailto:nl...@googlegroups.com] On Behalf Of Paula Zmuda
Sent: Tuesday, March 26, 2013 7:27 AM
To: nl...@googlegroups.com
Subject: Re: [NLMSF] that handsome man NED and a long slow dance........may it continue

 

Congratulations, Joni! So happy for you!       Wish I could say the same...do you know if any of our listmates have had any experience with Cyberknife?  I've been put up as a candidate for it by the tumor board where I get treatment, and am a little leery.  I, too, remember you were the first person to respond to my SOS back in 09 when I first found out I had this disease. You were so kind and gave me very good info.  Thanks, Joni! --- On Tue, 3/26/13, Joni <joma...@aol.com> wrote: From: Joni <joma...@aol.com> Subject: [NLMSF] that handsome man NED and a long slow dance........may it continue To: LMSa...@yahoogroups.com, nl...@googlegroups.com Date: Tuesday, March 26, 2013, 8:24 AM Good Morning Listmates!   I had my scans last week Friday and after waiting all weekend for the results, I finally went to my doctor's appointment this morning. Imagine my surprise when the receptionist told me that my appointment was yesterday!  Well, those of us battling LMS are a tad obsessive about our dates.......so I pulled out my appointment card which had been tacked to the side of my refrigerator for a YEAR and showed her the date - 3-26-13!......yep, it had the right date but the wrong day of the week in the computer. And my doctor was in surgery and the PAC was not in.    Sooooooo, not being one to take no for an answer............I refused to leave without at least having someone (anyone - I didn't care if it was a damn janitor at this point) give me my scan results!!!....so I was asked to please sit and wait.    Soon, my doctor's lovely nurse Sue (love her!) came out and told me that I am and remain NED and that there has been no change. I still have to go see the doctor on Thursday.........but that is just routine at this point.    So, please join me in raising a glass to entering my 10th YEAR OF DANCING WITH NED!!!!!    Joni (MI) ULMS  7/03 NED  - surgery only 10 year survivor!!!   President NLMSF visit www.nlmsf.com     -- You received this message because you are subscribed to the Google Groups "NLMSF" group. To unsubscribe from this group and stop receiving emails from it, send an email to nlmsf+un...@googlegroups.com. To post to this group, send email to nl...@googlegroups.com. Visit this group at http://groups.google.com/group/nlmsf?hl=en. For more options, visit https://groups.google.com/groups/opt_out.

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[Marian Birdow]

Hi Joni,
Congratulations to you!!
I am new at this.
Was is the meaning of NED??

Marian, LMS survivor

[Joni]

Hi Marian - NED means No Evidence of Disease...........so 10 years of No Evidence of Disease.......we say we are dancing with NED!

Joni

[Marian Birdow]

Wow, I like to dance with NED too!

I had a clean scan last week, results given last Friday.

This was my first scan ever after my LMS diagnosis and surgery in Dec. 2012

Let's celebrate!!!

wishing you all the very best,

Marian Birdow

[Joni]

Congratulations to you too Marian! Many more dances with NED for you too!!

[vicky peters]

Dear Marian,

 

May your dance with NED continue on for a very long time, like "forever"

 

GOD Bless!

 

Vicky Peters

supporter of Theresa Miller (sister) 9 yr survivor

aka: LMS American Idol

Singer and co-author of our LMS Fight Song

---

From: Marian Birdow <marb...@gmail.com>
To: nl...@googlegroups.com
Sent: Wed, March 27, 2013 5:54:36 AM
Subject: Re: [NLMSF] Cyberknife

[Marian Birdow]

Thank you, all, for your encouragement!!

Marian Birdow

[Paula Zmuda]

Hi, Tim,    Thank you for replying to my query! Appreciate the info. Glad to hear it was a successful procedure for your wife...relieves my anxiety a bit to know it might actually work to get rid of it. Wishing you both a happy day today! Paula 09 ULMS --- On Tue, 3/26/13, Tim Maher <tcm...@hotmail.com> wrote: