Help need for Leigh's disease

[Anand kumar]

Hi All,

Requesting you all the pls read the below message, lets stand with him in this period of life.

prathap reddy <prathap...@gmail.com>

Pls do the needful to it

Regards,
Anand Soni. 
http://aksnitw.blogspot.com/           

Work for Green Environment :)

From: prathap reddy <prathap...@gmail.com>

Date: 4 October 2013 08:37
Subject: Fwd: Leigh's disease
To: Ravi Chandra Enaganti <ravichandr...@gmail.com>, ravi kumar <ravi.82...@gmail.com>, Darshan Shah <darsha...@gmail.com>, Venu Gatla <gatla...@gmail.com>, G K Reddy Chinthalapudi <kondared...@gmail.com>, harika thalla <harika...@gmail.com>, gollapalli murali <mura...@gmail.com>, sreenu vasu <srinu59...@gmail.com>, Vivek choudhary <vivek...@gmail.com>, Vivek Choudhary <vivekc...@gmail.com>

Hi All,

 

Recently my kid Rithvik(of age 1 year 4 months) has been diagnosed as having rare mitochondrial disease(Leigh's disease SURF 1 mutation). it is a genetic disorder.

 

Because of this he is not gaining weight from last 8 months and what ever he eats it will not be converted in to energy or cell. Eventually they can't survive for more than 3 to 4 years.

 

Doctors says there is no treatment of this any ware in the world. I searched in the net and found that there is one Drug(EPI-743) currently under clinical trials. I have contacted with them and they says that they are ready to take my kid for clinical trials. They are giving 99% guarantee.

 

For International patient to participate in this trials I should deposit $90,000 in international medical council and stay  for 1 year in US with the kid. 

 

I have arrange for stay in US with my sister but deposit is very difficult. I need your help  what ever amount you can? since it is deposit I will return it back after 1 year once treatment is over.

 

Thanks

Prathap