DATABASES : BIOLOGY: HUMAN: GENETICS : GUIDELINES: Guidelines for Human Biobanks and Genetic Research Databases (HBGRDs)

[David P. Dillard]

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DATABASES :
BIOLOGY: HUMAN: GENETICS :
GUIDELINES:
Guidelines for Human Biobanks and Genetic Research Databases (HBGRDs)



Guidelines for Human Biobanks and Genetic Research Databases (HBGRDs)
Organisation for Economic Co-operation and Development
<http://www.oecd.org/sti/biotechnology/hbgrd>



Innovation in the life sciences, particularly in biotechnology and
genetics, contributes significantly to sustainable growth and development
of economies as well as addressing social and global challenges.
Biomedical research involving human genetic or genomic information
analysed in conjunction with personal or health data is particularly
promising and will be critical to improvements in the prevention,
detection, diagnosis, treatment, and cure of disease and for the
development of new products and services.



The use and exchange of human genetic material and the information derived
from it, is not without some controversy. Within the scientific community,
there is consensus that progress in understanding disease will depend on
the establishment, harmonisation and broad use of human biobanks and
genetic research databases.



Human biobanks and genetic research databases which bring together and
allow the sharing of human biological material and information derived
from its analysis, are a key element of the scientific infrastructure
underpinning such research. In October 2009, the OECD Council adopted a
Recommendation on Human Biobanks and Genetic Research Databases (HBGRD).



Click here to download.
<http://www.oecd.org/dataoecd/41/47/44054609.pdf>



<snip>



Further reading



As background work, an OECD book entitled Creation and Governance of Human
Genetic Research Databases provides an analysis of a number of complex
issues that arise in the establishment, governance, management and use of
HBGRDs.

<http://www.oecd.org/document/50/
0,3343,en_2649_34537_37646258_1_1_1_1,00.html>


A shorter URL for the above link:


<http://tinyurl.com/yhrnsnl>



Also available:


Lignes directrices relatives aux biobanques et bases de donns de recherche
en gique humaine (BGH) (French)
<http://www.oecd.org/document/
13/0,3343,en_2649_34537_40377613_1_1_1_1,00.html>


A shorter URL for the above link:


<http://tinyurl.com/y8f2j7o>



Related documents:


Creation and Governance of Human Genetic Research Databases (English)
<http://www.oecd.org/document/50/
0,3343,en_2649_34537_37646258_1_1_1_1,00.html>


A shorter URL for the above link:


<http://tinyurl.com/yhrnsnl>



Genetics and Genomics (English)
<http://www.oecd.org/document/20/
0,3343,en_2649_34537_39405140_1_1_1_1,00.html>


A shorter URL for the above link:


<http://tinyurl.com/ykdhmv4>


Biotechnology, Innovation and Health
<http://www.oecd.org/document/10/
0,3343,en_2649_34537_33790794_1_1_1_1,00.html>


A shorter URL for the above link:


<http://tinyurl.com/ybh5xdt>



The links between innovation, productivity, health and wealth are
recognised by many countries and the need to encourage innovation is also
apparent. Investing in and encouraging innovation is a priority for many
jurisdictions as is the affordability, quality and sustainability of
healthcare systems. There is an apparent tension between these goals that
can be mitigated with timely policy development work. The OECD
Biotechnology Division is looking into how to encourage and foster
innovation which addresses health needs and priorities, maximises access
to the benefits, and manages the challenges and risks in a way that is
beneficial both to innovators and health systems. The following are
projects the Division is currently looking into.


Topics Covered in this Article:


Task Force on Biomedicine and Health Innovation

Biomarkers and Targeted Therapies

Emerging Research Models for the delivery of Health Innovation

High-Level Forum on Medicines for Infectious Diseases

Pharmacogenetics

Uptake and Diffusion of Health-related Biotechnologies




Health Technologies and Decision Making (English)
<http://www.oecd.org/document/55/
0,3343,en_2649_34537_35589431_1_1_1_1,00.html>


A shorter URL for the above link:


<http://tinyurl.com/yl4z24q>



Genetics and Genomics
<http://www.oecd.org/document/20/0,3343,en_2649_34537_39405140_1_1_1_1,00.html>


A shorter URL for the above link:


<http://tinyurl.com/ykdhmv4>


Work in the area of genetics and genomics undertaken by the OECD
Biotechnology Division includes:

OECD Guidelines for Human Biobanks and Genetic Research Databases

OECD Guidelines on Quality Asssurance in Molecular Genetic Testing

OECD Guidelines on Licensing of Health Care Genetics

Pharmacogenetics

Biomarkers and targeted therapies





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David Dillard
Temple University
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