http://www.mpnresearchfoundation.org Donate to the different sources and stay active on petitions. Robert Rosen
fsigu...@mpdfoundation.org,
rro...@mpdfoundation.org The MPD Foundation is where one can make donations. They have a lot of good activity underway to stimulate collaboration among MPD Clinic"
http://www.mpdhopkins.org/ and your contributions will go to good use. Whatever you can send or even if you can't send anything right now, please write to them and let them know of your interest and it will make a difference. Dr. Jerry Spivak, The Johns Hopkins University School of Medicine, Division of Hematology, Traylor 924, written to me, "If any of your list wants to support clinical research in New York, they can send a contribution to the Cancer Research and Treatment Fund, 1440 York Avenue, P-4, New York, NY, 10021." 212 288 research into breast, prostate and brain cancers. I just thought you would like to know about where the money goes.
Thanks again. Keith Muhleman, CR&T - National Organization for Rare Disorders, CT06812-8923. Any source of information on our rare disorders has value, and one of the best resources for accurate, complete, unbiased information on our various diseases is available through both NORD and at www. emedicine. com. If you join the National Organization for Rare Disorders, Inc., I believe it entitles one to free access on downloading a single report from their extensive database. If you or anyone else wishes to make a NORD donation directed specifically to your MPD disorder, you can do so by donating to NORD's Restricted Research Grant Program. Indicate on your check the specific disorder.
MPD-RC
http://bit.ly/H0FmEP
[ Thanks to the generous gifts of donors like you the Myeloproliferative Disorders-Research Consortium (MPD-RC) is able to continue to search for a cure of Myeloproliferative disorders (MPDs). Together, we can continue to make a difference in the lives of those who suffer from this life-threatening disease.
Gifts to the MPD-RC directly fund MPD research. One hundred percent (100%) of every dollar contributed supports more than 60 researchers at over 15 research institutions in USA, Italy, Germany and Canada. All non-research costs associated with the Research Program are paid through the National Cancer Institute's general fund. ]
You can send a contribution to the European MPN and VWD Research Foundation for Classification of Prefibrotic ET and PV: non-leukemogenic therapeutic implications, European Working Group on Myeloproliferative Neoplasm
(EWG. MPN) Goodheart Institute, ErasmusTower, Veenmos 13, Rotterdam, NL email
goodhea...@upcmail.nl.
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