seeking info on aniridia

[glenn doebler]

Seeking info on aniridia,for my sister who was born without iris in both
eyes,any info would help ,also seeking support groups

[james....@aniridia.org.uk]

Hi there

I saw your post and although it is very old thought I'd see if I could help your sister.

There are a number of aniridia support groups, where you can contact people with and connected to aniridia. Maybe you are already part of one of them but just in case not:

If you are in the Europe here is a list of support organisations/contacts: http://www.aniridia.eu/members/

If you are in the USA or elsewhere:
* Aniridia Foundation International www.aniridia.net
* United Families of Aniridia: www.visionfortomorrow.org/united-families-of-aniridia-ufa/

These groups are also on Facebook and Twitter

Make sure you join the Aniridia Network International mailing list on Yahoo Groups: http://groups.yahoo.com/group/aniridianetwork

Hope that helps

James
Aniridia Network UK
www.aniridia.org.uk