RE: pick ME!
Linda J. MacDonald
Diane I feel like (am) slow learner asking yet again for help with the same issue, but if you want to help me I can try to get myself reconnected to SL
I will see about the state of it on this computer before I run out of steam tonight. Wired, must watch out.
Linda
From: mecfs...@googlegroups.com [mailto:mecfs...@googlegroups.com]
Sent: Wednesday, August 29, 2012
4:34 AM
To: Digest Recipients
Subject: [ME/CFS Centre] Digest
for mecfs...@googlegroups.com -
12 Messages in 1 Topic
Group: http://groups.google.com/group/mecfscentre/topics
§ How to Be sick Book group [12 Updates]
Dianne
Elton <dianne...@gmail.com> Aug 28 02:09AM -0700
Hi Sally, Elene, Nancy and Anne,
Places in the book club are filling up fast. I want to put a limit of 10
(or perhaps 12 at the absolute outside). Any more than that and i think
its difficult to have a say. So if you would like to join, please let me
know and join sl as soon as possible. Here is the link to join Second
Life. http://secondlife.com/
The person who I was helping to join sl , no longer needs help so I am
available to help one person.
Dianne
On Monday, August 20, 2012 8:13:44 AM UTC+8, Dianne Elton wrote:
Sally
Koetsveld <dragon...@gmail.com> Aug 28 08:14PM +1000
I'd like to join the book club. I created a new account yesterday because
I couldn't remember my old one!
Now I just have to work out how to get around there, its very confusing.
cheers
Sally
(Melbourne, Australia)
Nancy
Seely <see...@hotmail.com> Aug 28 12:33PM -0500
Hi Dianne, First, I'm so delighted that you're initiating such a group. I
stumbled across Toni's book almost right when it was being published, and its
the first book on coping with illness that has actually been helpful. I've been
ill 25 years. I've been a studen of Buddhism, but I never dealt with my illness
with the wisdom and compassion Toni demonstrates in everything she writes.
Second, thank you so much for writing and offering to assist one of us with
getting set up in SL. I've never used SL. I do not have an avatar. I'm clueless
re what I need to do, but I usually learn fairly quickly. My one concern is the
time of the group. I live in Nova
Scotia, where we're on Atlantic time. When the group
begins at 7p Pacific time, that's 11p, 4 hours later for me (its better in Nov
at 10p). However, I live in rural NS and even though I have a partner,
sometimes I feel so isolated and lonely, so this group would be a priority for
me. If your offer still stands, please let me know what I need to do to get
started, if I'm not too late in contacting you. With gratitude for what you're
doing, Nancy
Date: Tue, 28 Aug 2012 02:09:01 -0700
From: dianne...@gmail.com
To: mecfs...@googlegroups.com
Subject: [ME/CFS Centre] Re: How to Be sick Book group
Hi Sally, Elene, Nancy and Anne, Places in the book club are filling up fast. I
want to put a limit of 10 (or perhaps 12 at the absolute outside). Any more
than that and i think its difficult to have a say. So if you would like to
join, please let me know and join sl as soon as possible. Here is the link to
join Second Life. http://secondlife.com/The
person who I was helping to join sl , no longer needs help so I am available to
help one person. Dianne
On Monday, August 20, 2012 8:13:44 AM UTC+8, Dianne Elton wrote:
Hi everyone,
I wrote previously to ascertain whether anyone in this group
might be interested in forming a book study group to discuss “How to Be Sick”
by Toni Bernhard. http://howtobesick.com/
My original idea was, (if there was enough interest), for
the book group to meet in Second Life, (SL) at the ME/CFS centre. Whilst some
members have indicated they would
be able to meet in SL, others have said that although the study group on “How
to
be Sick” interests them, they do not use SL.
If there is enough interest, the group will still meet in
SL. However, I thought (also if there is
enough interest), that I could post discussion questions here on this Google
groups website each week, and people could comment and join the discussion
without using second life.
I am happy to do this if people would like to participate,
but if there is no interest, I would prefer to save my meagre energy.
So, if a book group via discussion on this site interests you,
could you please let me know by replying to this email. You would of course
need to buy the
book. It is also available on Kindle, (which
I believe is much cheaper.)
-------------------
I include some words from Toni Bernhard to tell you a little
more about her book.
“I fell ill on a trip
to Paris in
2001 with what the doctors diagnosed as an acute viral infection,
but I never recovered. I wrote this book
while bed-bound – on my back, laptop on my stomach, notes strewn about on the
blanket, printer within arm’s reach.
My goal in writing it
was to help and inspire those who must meet the challenges posed by any chronic
illness or condition: coping with the relentlessness of symptoms; weathering
fear about the future; coming to terms with a life of relative isolation;
facing the misunderstanding of others; dealing with the health care system;
and, for a spouse, partner, or other caregiver, adapting to so many unexpected
life changes.
The book contains
easy-to-learn tools and practices to help people live skillfully, maintain
equanimity, and even find joy despite the profound changes in their lives. Each
tool and practice is illustrated with examples from my own experience, so the
book is also highly personal.
Although our bodies
may be sick or otherwise disabled, our minds can be at peace.”
--
You have received this message because you are subscribed to the "ME/CFS
Centre" mailing list.
- To post a message, send an email to mecfs...@googlegroups.com
. Messages will be archived and made publicly available.
- To unsubscribe from this list, send an email to
mecfscentre...@googlegroups.com
== The ME/CFS Centre is located in Second Life (http://tinyurl.com/mecfscentre). Our
website is located at www.mecfscentre.org The calendar of events can be found
at www.mecfscentre.org/calendar-of-events ==
Time zones for events are listed as Pacific time (San Francisco, USA)
since this is the time in Second Life. To convert to your own time zone, use
this calculator: http://www.timeanddate.com/worldclock/converter.html
(choose USA-California-San Francisco). Or use this calculator: http://www.worldtimeserver.com/convert_time_in_US-CA.aspx
(set the event time in the first window, then press submit).
Roslyn
Callister <roscal...@gmail.com> Aug 29 07:54AM +1000
Hi dianne,
Is there still room in the group? I am quite keen to join if there is. Have
only been on SL once since my son was born but this would be a good
motivator. I hope you are doing well.
Ros
Xo
Sent from my iPhone
On 27/08/2012, at 3:11 AM, Dianne Elton <dianne...@gmail.com> wrote:
Hi Josephine, Sally, Elene, Nancy, Anne, Priscilla, Linda and Yona,
Thank you all for your interest in the book study group for Toni Bernhard's
"How to be Sick". I hope you don't mind me replying to you all
together.
I am trying to conserve energy.
As you know, my first idea was for a book group in Second Life. There is
definitely enough interest now for that to go ahead. I then rather rashly
offered to post the discussion questions to this website also. After a
moment of clarity, I now realise, that trying to both would be "crash
inducing" territory!!
The Second Life book group will stretch me to my limits anyway, so I'm
afraid I will not be posting discussion to this site after all. (I know
you will all understand not just my limitations, but the difference between
my desire to do something, and the reality of actually being able to do
it!! :) (Many thanks to those who gently reminded me I was overstretching).
The good news however, is that the SL book group will go ahead.
We will begin by meeting weekly, and if that is too much for anyone, we can
try fortnightly. The club will run for 8 t o 10 weeks.
Times
I have chosen October 6th/7th as the starting date.
I have chosen this date because:
1. This gives everyone just over a month to order the book and hopefully
gives enough time to read the first couple of chapters at least.
2. Its the start of daylight savings in Australia, in the ACT, New
South Wales, South Australia, Victoria, and Tasmania.
(Queensland,
Northern
Territory and Western Australia
do *not* participate in Daylight
Saving.) So once chosen, the time will be constant for the duration of the
club, in Australia
at least. The time will however change for those in the
US.
TIMES AND DATES FOR HOW TO BE SICK BOOK GROUP.
WEEK ONE:
- Pacific Daylight Savings Time Saturday 6th October 7PM (this will
change for the following month when daylight savings ends in the US on Nov
4th and from then will be 6pm)
- =PERTH Sunday
October 7th 10AM (this time should be constant for the
entirity of the book club)
- =MELBOURNE
Sunday October 7th 1PM (this time should be a constant
also).
Phew, I sure hope I got that right!!
Anyway, we shall all muddle along as best we can and I have done my very
best to get these times correct. PLEASE check the times given and let me
know if I have anything incorrect.
If you already have an avatar in SL, please let me know and I will send you
an invitation (in SL) to join the group.
If you wish to join second life, please post here also. We will try to
find someone to help you get started. (I have already committed to helping
someone, so please do not ask me), but I will try to find someone to help
you.
Dianne Elton
On Monday, August 20, 2012 8:13:44 AM UTC+8, Dianne Elton wrote:
> * *
> *Although our bodies may be sick or otherwise disabled, our minds can be
> at peace.”*
--
You have received this message because you are subscribed to the "ME/CFS
Centre" mailing list.
- To post a message, send an email to mecfs...@googlegroups.com
.
Messages will be archived and made publicly available.
- To unsubscribe from this list, send an email to
mecfscentre...@googlegroups.com
== The ME/CFS Centre is located in Second Life (
http://tinyurl.com/mecfscentre).
Our website is located at
www.mecfscentre.org The calendar of events can be found at
www.mecfscentre.org/calendar-of-events ==
Time zones for events are listed as Pacific time (San Francisco, USA)
since
this is the time in Second Life. To convert to your own time zone, use this
calculator: http://www.timeanddate.com/worldclock/converter.html
(choose
USA-California-San Francisco). Or use this calculator:
http://www.worldtimeserver.com/convert_time_in_US-CA.aspx
(set the event
time in the first window, then press submit).
Dianne
Elton <dianne...@gmail.com> Aug 28 05:59PM -0700
Hi everyone,
thanks so much for all your responses. its great to see so much interest in
the group.
I am very brain fogged this morning, but will muddle through your replies
one by one.
Sally,
great that you have rejoined (totally understand not being able to
remmember the old account!! hehe ). What is the name of your new avatar?
Once you tell me, I will send you an invitation to join the bookclub within
Second Life. I will also send you a request to be my friend. If you
accept this, you will be able to see when i am in SL and we can contact
each other.
Yes, it is very confusing. I have prepared a very basic guide to learn SL,
that hopefull will give new avatars the ability to participate in the book
club (but not much more)
I just have to figure out a way to get this guide to you all
Perhaps try emailing me directly - dianne.elton at gmail. com. (I have
written at instead of @, as the google groups condences the email addresses
so they cant' be seen.) If you email me, I'll send you my basic guide.
Another tip. there is an excelllent orientation course here:
http://maps.secondlife.com/secondlife/Virtual%20Ability/170/99/23
i suggest you learn how to move your avatar, how to sit, how to type in
local chat, how to expand the chat window for starters. I recommend
resisting any well meaning attempts to help you change your avatar. this
will sap your energy.
and here is the landmark for the ME/CFS Centre in Second Life.
http://maps.secondlife.com/secondlife/Murdoch%20University/184/163/23
Good Luck Sally!!
On Tuesday, August 28, 2012 6:14:59 PM UTC+8, Sally Koetsveld wrote:
Dianne
Elton <dianne...@gmail.com> Aug 28 06:12PM -0700
Hi Nancy,
congratulations on joining second life - well done you!!
Like you I have been sick for 25 years and like you, I have found Toni's
book very helpful and very positive.
Yes I would be happy to help you learn SL. I am in Perth Western
Australia. I have consulted the world time clocl, and
it seems the best
time to meet would be 9pm your time (perhaps Thursday , which equals 8am
Friday , my time.).
Please read what I wrote to Sally about learning sl.
I have sent an invitation to your avatar to join the bookclub in sl. if
you look at the top right of your screen, you will see a tiny envelope.
its like email. all your second life messages are in there. there will me
an ivitation from me to join the group. you will need to accept it.
Good luck and I look forward to meeting you on your Thursday evening
regards
Dianne
On Wednesday, August 29, 2012 1:33:41 AM UTC+8, Nancy Seely wrote:
Dianne
Elton <dianne...@gmail.com> Aug 28 06:19PM -0700
Hi Roz,
So good to hear form you again!. Yes there is still room in the group. I
have sent an invitation to join to Michelle Kurmin. I hope this is you
avi!! :)) How old is your son now?
I look forward to catching up again
cheers
Dianne.
On Wednesday, August 29, 2012 6:06:35 AM UTC+8, Ros Callister wrote:
Dianne
Elton <dianne...@gmail.com> Aug 28 06:33PM -0700
i have attempted to attach my file of learning the basics in sl. I don't
know if it will come through. If it does work you might not be able to see
the pictures. which are essential for it to be of use!! Any way its worth
a try and if it doesn't work, you can always write directly to me
Dianne
On Wednesday, August 29, 2012 9:12:46 AM UTC+8, Dianne Elton wrote:
Sally
Koetsveld <dragon...@gmail.com> Aug 29 11:46AM +1000
it came through. Thanks
cheers
Sally
(Melbourne, Australia)
"Dianne
Elton" <dianne...@gmail.com> Aug 29 09:54AM
+0800
And Musetta Fieschi has offered to help you on SL. she is lovely and very
patient and kind
From: mecfs...@googlegroups.com
[mailto:mecfs...@googlegroups.com]
On
Behalf Of Sally Koetsveld
Sent: Wednesday, 29 August 2012 9:47 AM
To: mecfs...@googlegroups.com
Subject: Re: [ME/CFS Centre] Re: How to Be sick Book group
it came through. Thanks
cheers
Sally
(Melbourne, Australia)
On Wed, Aug 29, 2012 at 11:33 AM, Dianne Elton <dianne...@gmail.com>
wrote:
i have attempted to attach my file of learning the basics in sl. I don't
know if it will come through.
--
You have received this message because you are subscribed to the "ME/CFS
Centre" mailing list.
- To post a message, send an email to mecfs...@googlegroups.com
.
Messages will be archived and made publicly available.
- To unsubscribe from this list, send an email to
mecfscentre...@googlegroups.com
== The ME/CFS Centre is located in Second Life
(http://tinyurl.com/mecfscentre).
Our website is located at
www.mecfscentre.org The calendar of events can be found at
www.mecfscentre.org/calendar-of-events ==
Time zones for events are listed as Pacific time (San Francisco, USA)
since
this is the time in Second Life. To convert to your own time zone, use this
calculator: http://www.timeanddate.com/worldclock/converter.html
(choose
USA-California-San Francisco). Or use this calculator:
http://www.worldtimeserver.com/convert_time_in_US-CA.aspx
(set the event
time in the first window, then press submit).
Dianne
Elton <dianne...@gmail.com> Aug 28 07:08PM -0700
YAY the file worked ok. hope its helpfull!!
Dianne
On Wednesday, August 29, 2012 9:33:16 AM UTC+8, Dianne Elton wrote:
<bsam...@bigpond.net.au>
Aug 29 12:23PM +1000
Hi,
My name in Second Life is Lee Lastchance. Could you invite me into the
group.
I checked last night that my second life worked on this computer and I could
log in, and all was good.
Thank you.
Elene
_____
From: mecfs...@googlegroups.com
[mailto:mecfs...@googlegroups.com]
On
Behalf Of Dianne Elton
Sent: Wednesday, 29 August 2012 11:00 AM
To: mecfs...@googlegroups.com
Cc: dragon...@gmail.com
Subject: Re: [ME/CFS Centre] Re: How to Be sick Book group
Hi everyone,
thanks so much for all your responses. its great to see so much interest in
the group.
I am very brain fogged this morning, but will muddle through your replies
one by one.
Sally,
great that you have rejoined (totally understand not being able to remmember
the old account!! hehe ). What is the name of your new avatar? Once you
tell me, I will send you an invitation to join the bookclub within Second
Life. I will also send you a request to be my friend. If you accept this,
you will be able to see when i am in SL and we can contact each other.
Yes, it is very confusing. I have prepared a very basic guide to learn SL,
that hopefull will give new avatars the ability to participate in the book
club (but not much more)
I just have to figure out a way to get this guide to you all
Perhaps try emailing me directly - dianne.elton at gmail. com. (I have
written at instead of @, as the google groups condences the email addresses
so they cant' be seen.) If you email me, I'll send you my basic guide.
Another tip. there is an excelllent orientation course here:
http://maps.secondlife.com/secondlife/Virtual%20Ability/170/99/23
i suggest you learn how to move your avatar, how to sit, how to type in
local chat, how to expand the chat window for starters. I recommend
resisting any well meaning attempts to help you change your avatar. this
will sap your energy.
and here is the landmark for the ME/CFS Centre in Second Life.
http://maps.secondlife.com/secondlife/Murdoch%20University/184/163/23
Good Luck Sally!!
On Tuesday, August 28, 2012 6:14:59 PM UTC+8, Sally Koetsveld wrote:
I'd like to join the book club. I created a new account yesterday because I
couldn't remember my old one!
Now I just have to work out how to get around there, its very confusing.
cheers
Sally
(Melbourne, Australia)
On Tue, Aug 28, 2012 at 7:09 PM, Dianne Elton <dianne...@gmail.com
<javascript:> > wrote:
Hi Sally, Elene, Nancy and Anne,
Places in the book club are filling up fast. I want to put a limit of 10
(or perhaps 12 at the absolute outside). Any more than that and i think its
difficult to have a say. So if you would like to join, please let me know
and join sl as soon as possible. Here is the link to join Second Life.
http://secondlife.com/
The person who I was helping to join sl , no longer needs help so I am
available to help one person.
Dianne
On Monday, August 20, 2012 8:13:44 AM UTC+8, Dianne Elton wrote:
Hi everyone,
I wrote previously to ascertain whether anyone in this group might be
interested in forming a book study group to discuss "How to Be Sick"
by Toni
Bernhard. <http://howtobesick.com/>
http://howtobesick.com/
My original idea was, (if there was enough interest), for the book group to
meet in Second Life, (SL) at the ME/CFS centre. Whilst some members have
indicated they would be able to meet in SL, others have said that although
the study group on "How to be Sick" interests them, they do not use
SL.
If there is enough interest, the group will still meet in SL. However, I
thought (also if there is enough interest), that I could post discussion
questions here on this Google groups website each week, and people could
comment and join the discussion without using second life.
I am happy to do this if people would like to participate, but if there is
no interest, I would prefer to save my meagre energy.
So, if a book group via discussion on this site interests you, could you
please let me know by replying to this email. You would of course need to
buy the book. It is also available on Kindle, (which I believe is much
cheaper.)
-------------------
I include some words from Toni Bernhard to tell you a little more about her
book.
"I fell ill on a trip to Paris
in 2001 with what the doctors diagnosed as an
acute viral infection, but I never recovered. I wrote this book while
bed-bound - on my back, laptop on my stomach, notes strewn about on the
blanket, printer within arm's reach.
My goal in writing it was to help and inspire those who must meet the
challenges posed by any chronic illness or condition: coping with the
relentlessness of symptoms; weathering fear about the future; coming to
terms with a life of relative isolation; facing the misunderstanding of
others; dealing with the health care system; and, for a spouse, partner, or
other caregiver, adapting to so many unexpected life changes.
The book contains easy-to-learn tools and practices to help people live
skillfully, maintain equanimity, and even find joy despite the profound
changes in their lives. Each tool and practice is illustrated with examples
from my own experience, so the book is also highly personal.
Although our bodies may be sick or otherwise disabled, our minds can be at
peace."
--
You have received this message because you are subscribed to the "ME/CFS
Centre" mailing list.
- To post a message, send an email to mecfs...@googlegroups.com
<javascript:> . Messages will be archived and made publicly available.
- To unsubscribe from this list, send an email to mecfscentre...@
<javascript:> googlegroups.com
== The ME/CFS Centre is located in Second Life (http://tinyurl.com/
<http://tinyurl.com/mecfscentre>
mecfscentre). Our website is located at
www.mecfscentre.org The calendar of events can be found at
www.mecfscentre.org/calendar-
<http://www.mecfscentre.org/calendar-of-events>
of-events ==
Time zones for events are listed as Pacific time (San Francisco, USA)
since
this is the time in Second Life. To convert to your own time zone, use this
calculator: http://www.timeanddate.com/
<http://www.timeanddate.com/worldclock/converter.html>
worldclock/converter.html (choose USA-California-San Francisco). Or use this
calculator: http://www.worldtimeserver.
<http://www.worldtimeserver.com/convert_time_in_US-CA.aspx>
com/convert_time_in_US-CA.aspx (set the event time in the first window, then
press submit).
--
You have received this message because you are subscribed to the "ME/CFS
Centre" mailing list.
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.
Messages will be archived and made publicly available.
- To unsubscribe from this list, send an email to
mecfscentre...@googlegroups.com
== The ME/CFS Centre is located in Second Life
(http://tinyurl.com/mecfscentre).
Our website is located at
www.mecfscentre.org The calendar of events can be found at
www.mecfscentre.org/calendar-of-events ==
Time zones for events are listed as Pacific time (San Francisco, USA)
since
this is the time in Second Life. To convert to your own time zone, use this
calculator: http://www.timeanddate.com/worldclock/converter.html
(choose
USA-California-San Francisco). Or use this calculator:
http://www.worldtimeserver.com/convert_time_in_US-CA.aspx
(set the event
time in the first window, then press submit).
You received this message because you are subscribed to
the Google Group mecfscentre.
You can post via email.
To unsubscribe from this group, send an empty message.
For more options, visit this
group.
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Centre" mailing list.
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. Messages will be archived and made publicly available.
- To unsubscribe from this list, send an email to
mecfscentre...@googlegroups.com
== The ME/CFS Centre is located in Second Life (http://tinyurl.com/mecfscentre). Our
website is located at www.mecfscentre.org The calendar of events can be found
at www.mecfscentre.org/calendar-of-events ==
Time zones for events are listed as Pacific time (San Francisco, USA)
since this is the time in Second Life. To convert to your own time zone, use
this calculator: http://www.timeanddate.com/worldclock/converter.html
(choose USA-California-San Francisco). Or use this calculator: http://www.worldtimeserver.com/convert_time_in_US-CA.aspx
(set the event time in the first window, then press submit).
Dianne Elton
Hi Linda. Yes of course I would be happy to help you. I’ll write to you at your home email
Dianne