Leo's Pride 5K

[Peg Nichols]

Hi Everyone,

 

I hope you are all doing well!  I would like to invite you to join me in running or walking the first annual Leo’s Pride 5K on October 25th.  My good friend’s little boy, Leo, was diagnosed with Spinal Muscular Atrophy (SMA), a terminal neuromuscular disease, last November when he was just 3 weeks old.  The race will raise money for medical expenses for the family, research for SMA, and the Families of SMA, a non-profit support organization.

 

SMA is the #1 genetic killer of young children. SMA is estimated to occur in nearly 1 out of every 6,000 births and 1 in every 40 people are carriers. SMA affects motor neurons and causes weakness and wasting of voluntary muscles.

There are varying degrees of severity of SMA ranging from Type I to Type IV. Leo has the most severe form, Type I. Babies diagnosed with Type I are given a poor prognosis and told the majority will die before age 2.

 

If you are interested in learning more about Leo and SMA, here is a link to his Facebook prayer page.  Even if you are unable to participate in the race, please consider sharing on Facebook to help get the word out.

https://www.facebook.com/#!/pages/Leos-Pride/282888821877039

 

To get more information and register for the race, click the link below.   I have attached a sponsorship form, if you or anyone you may know may be interested in sponsoring the race.

www.runhard.org/leo

 

Thanks for your consideration! 

 

Peg

 

 

Peg Nichols
Controller | United Way of the Midlands
Direct: 803.733.5405 | Fax: 803.779.7803

www.uway.org | www.facebook.com/uwmidlands | www.twitter.com/ylsmidlands

LIVE UNITED. GIVE. ADVOCATE. VOLUNTEER.
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[Franklin Buchanan]

Peg beat me to it but I want to echo her email and hope to see a bunch of you at the race!

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