Joubert Syndrome in the UK
jsuk@googlegroups.com
Description
JSUK
This is a Support Group for UK families and carers of children affected with Joubert Syndrome a rare genetic disorder.
The group is for parents and carers so they can discuss and share information as well as being able to support each other.
This is a Support Group for UK families and carers of children affected with Joubert Syndrome a rare genetic disorder.
The group is for parents and carers so they can discuss and share information as well as being able to support each other.
Language
English (United States)
Privacy
Anyone on the web
can see group
Group members
can view members
Group members
can view conversations
Group members
can post
Invited users
can join group